Article/personal account: My Wife isn't Tired

[Andy]

I'm not writing this for me, I'm not writing this for Amy my wife either, today I was made aware of a lady who suffers not only from ME but also from her family's disbelief and ignorance - so this is for her.

Admission

I need however, to start with a moment of humility: if I did not live with a sufferer of this cruel illness I wouldn't believe it was real; I wish I was better than that, but I am not. Without the experience, I suspect I would have fallen into the: "it's all in your head" category and that shames me.

https://spark.adobe.com/page/uNLWHP6la8KmK/

 

[Trish]

A good article to show someone who doesn't believe ME is real, but not particularly helpful in terms of advice. His wife is still in the early stages of the illness, so he doesn't have a full picture of the long term prospects. He seems very trusting of the clinic she's being treated by. I wonder if it's an NHS clinic.

I looked on Amazon for the book the writer recommends. It's written by an NHS OT who runs a CBT based clinic it seems. It sounds from the reviews as though it's the usual start people on pacing, but then follow NHS guidelines to increase activity, in other words CBT/GET.

 

[NelliePledge]

A good article to show someone who doesn't believe ME is real, but not particularly helpful in terms of advice. His wife is still in the early stages of the illness, so he doesn't have a full picture of the long term prospects. He seems very trusting of the clinic she's being treated by. I wonder if it's an NHS clinic.

I looked on Amazon for the book the writer recommends. It's written by an NHS OT who runs a CBT based clinic it seems. It sounds from the reviews as though it's the usual start people on pacing, but then follow NHS guidelines to increase activity, in other words CBT/GET.

Yes I thought the same @Trish i guess people at that stage are entitled to document their experience but most likely haven’t yet cottoned on to the big picture about ME so it is a limited perspective.

 

[Barry]

I can empathize with this a lot, given it is my wife who has had ME over 10 years now. When we first found out and saw a specialist, we were completely in his hands, and believed all he said and recommended. Thankfully he was very aware I think, and advised my wife she was already doing all the right things, and there was nothing more beyond that that would help. He spent a lot of time with my wife discussing how her life had previously been, how it was then at that point and how she managed things. I realise now her pacing instincts were good, and he could tell from talking to her that she already pushed herself far enough.

Given where the author and his wife are at, it is incredibly tricky to get everything right. He is obviously trying hard to do the right thing. Let's hope the clinic does not screw things up for them

 

[ladycatlover]

I looked on Amazon for the book the writer recommends. It's written by an NHS OT who runs a CBT based clinic it seems. It sounds from the reviews as though it's the usual start people on pacing, but then follow NHS guidelines to increase activity, in other words CBT/GET.

The book is currently on special price on amazon for January. They seem to be running a "healthy lifestyle" type promo with reduced prices - presumably to snag people who have made New Year Resolutions.