Brain fog poll

Do you have brain fog?

  • Always, almost always

    Votes: 71 77.2%

  • Only during PEM

    Votes: 5 5.4%

  • Never, almost never

    Votes: 2 2.2%

  • Sometimes

    Votes: 14 15.2%
  • Total voters
    92
J

Jaybee00

Senior Member (Voting Rights)
Do you have brain fog (e.g. impaired concentration, cognition, etc.)?

1) Always, almost always
2) Only during PEM, otherwise I am normal
3) Never, almost never (e.g. can read long complex books with no issues)
4) Sometimes
 
Last edited by a moderator:
Jaybee00 said:
Do you have brain fog (e.g. impaired concentration, cognition, etc.)?

1) Always, almost always
2) Only during PEM, otherwise I am normal
3) Never, almost never (e.g. can read long complex books with no issues)
Click to expand...
Would you consider adding something like,
Not all the time, but I have cognitive fatiguability, and constant brain fog during PEM/crashes.

Jaybee00 said:
I’m intrigued by MECFS patients with no brain fog....seems like they have a better prognosis. I think under IOM you can be diagnosed without cognitive issues.
Click to expand...
I am one of these. At least, when my ME was mild, I managed to keep working part time as a Maths teacher as well as doing an Open University Maths degree very part time. I only had brain fog when in PEM/ crashed then.

My main problem was physical fatiguability and pain, and PEM when I overdid it physically (as little as walking 100 metres several times in a day). Plus a range of the usual extras like OI, nausea, headaches, sore throats, etc etc.

Now my ME is physically pretty severe but my brain fog still relatively mild. I'm really noticing cognitive fatiguability now - I'll get stuck into drafting a letter, concentrate well for 20 minutes, then my brain turn to mush and my typing full of mistakes in every word.

So I'd say I don't have constant brain fog, but it kicks in pretty quickly these days, and I keep having to stop and rest.

If by 'better prognosis' I have no idea for others, but it hasn't been the case for me. I have slowly and steadily got sicker over 30 years.
 
I can't vote as none of those options apply to me. You need a "sometimes" option. I don't have brain fog all of the time. It's not "almost always" or "almost never" but somewhere in between. It really depends on how I am feeling that day. A bad night's sleep can trigger it, PEM definitely, working too many hours.
 
I can't remember a time before brain fog! :laugh: I've had it since the mid-70s.

Every now and again I get a couple of hours without it. It comes as such a surprise to find myself able to think clearly that it startles me!

I was reasonably bright as a youngster; I reckon that, during my adult the years, I've had to get by on between 20% and 60% of my real intellectual potential because of brain fog. :rolleyes:
 
DigitalDrifter said:
My brain fog depends on how much / what quality sleep I get. The effects of sleep deprivation being cumulative. At my old house I was suffering from brain fog and memory issues most of the time due to noise disrupting my sleep.
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Yes totally, for me the cumulative sleep disturbance and deprivation affect most of my ME symptoms and exertion capacity before getting PEM.
 
Most of the time I dont notice it because i am not asking a lot of my brain. I gave up work because I couldn’t trust my brain any more, and my memory is pretty poor. I cant read a decent book any more. If I try to concentrate on something for a couple of hours, i get a headache...
 
Trish said:
At least, when my ME was mild, I managed to keep working part time as a Maths teacher as well as doing an Open University Maths degree very part time. I only had brain fog when in PEM/ crashed then.
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Yes - I did both my Open University degrees when I had ME. It took me maybe twice as long, but I did well. That's before I suffered my worsening a few years ago.
 
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