Campaigners in Scotland call for more ME funding

[Guest 102]

From the above-referenced article:

https://www.pressandjournal.co.uk/f...clusive-north-east-family-speak-of-me-ordeal/



I think it is very important to be concerned about what might happen when politicians are asked to consider the problem of lack of specialist care for ME sufferers. We've already seen it go horribly wrong in Germany, and the above excerpt shows what could go wrong in Scotland. Very far from "bizarre" to be concerned about such things.

Hi, Tired Sam, If you'd been there you would know that we highlighted the harms of GET as best we could. I certainly did and also a woman whose poor son had a seizure after being forced to do GET spoke of his dreadful experience. We only have one CFS clinic in Scotland, in Edinburgh, I personally disavow it every chance I can. What utterly vexes me is that I used time and energy to try to educate MSPs - where 5 mins down the road we have Dr Jon Stone backing up Chalder and Sharpe's continued championing of GET/CBT nonsense. I find it horrifying to have been diagnosed by a neurologist in Glasgow almost 35 years ago - with true expertise in ME - and yet today in 2018 we have neurologists in Edinburgh peddling such dangerous notions of GET and CBT. It really scares me.

But as far as the Scottish Parliament event went I think is good to to focus on the good and congratulate Janet, who organised the event. We are doing our best up here to educate. I also politely tweeted both Profs Sharpe and Stone about the Scot Parl event and the harms of GET, but got no response, unsurprisingly.

 

[Guest 102]

Just saw this comprehensive article on the Scottish Parliament event, I think it sums up the evening well.

https://www.meaction.net/2018/02/07/unrest-at-the-scottish-parliament/

 

[Dolphin]

In response to further questions the panel spoke of the need for education of healthcare professionals in order for them to better understand ME, and stressed the urgent need for more specialist nursing services like that in Fife – the only such service in Scotland.

I can't say that specialist nursing services like that in Fife would excite me.