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Canadian Federal Health Minister to make announcement regarding ME, August 22

Discussion in 'General ME/CFS news' started by DokaGirl, Aug 21, 2019.

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Page 2 of 8
  1. Milo

    Milo Senior Member (Voting Rights)

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    2,138
    I am so sorry the livestream begins at 10;30 pacific time, in 10 minutes.
     
    Milo, Aug 22, 2019
    #21
    ScottTriGuy, Louie41, Binkie4 and 2 others like this.
  2. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    2,640
    Anyone having trouble? Time link has been replaced by “ off air” statement.
     
    Binkie4, Aug 22, 2019
    #22
    Louie41, TigerLilea and Wonko like this.
  3. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    6,881
    Location:
    UK
    It's now 12 minutes since you posted that and it says 'off air'
     
    Wonko, Aug 22, 2019
    #23
    Louie41, Forbin, Binkie4 and 1 other person like this.
  4. DokaGirl

    DokaGirl Senior Member (Voting Rights)

    Messages:
    3,664
    DokaGirl, Aug 22, 2019
    #24
    Louie41 likes this.
  5. Forbin

    Forbin Senior Member (Voting Rights)

    Messages:
    1,581
    Location:
    USA
    Got a still image at 10:41 Pacific Daylight Time.


    still2.jpg
     
    Last edited: Aug 22, 2019
    Forbin, Aug 22, 2019
    #25
    Louie41 and DokaGirl like this.
  6. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,798
    Location:
    Oregon, USA
    I see a couple of comments in the chat window but, sadly, "je ne parle pas francais" ;)
     
    ahimsa, Aug 22, 2019
    #26
    Louie41, Simbindi and DokaGirl like this.
  7. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    I'm getting crowd noise... that progress?
     
    Esther12, Aug 22, 2019
    #27
    Louie41, DokaGirl, Joh and 2 others like this.
  8. Hoopoe

    Hoopoe Senior Member (Voting Rights)

    Messages:
    5,446
    It works fine for me. The livestream is up, but the event will start in a few minutes.

    It will be in both English and French according to the chat participants.
     
    Hoopoe, Aug 22, 2019
    #28
    Louie41, DokaGirl, ahimsa and 3 others like this.
  9. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,798
    Location:
    Oregon, USA
    FYI, for folks who are deaf or hard of hearing there are no subtitles and no signed interpreters. Probably best to wait for a transcript.
     
    ahimsa, Aug 22, 2019
    #29
    MSEsperanza, Louie41, Binkie4 and 1 other person like this.
  10. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,885
    Location:
    Canada
    Sounds like a reasonably-sized audience from the clapping.
     
    rvallee, Aug 22, 2019
    #30
    MSEsperanza, Louie41, lunarainbows and 2 others like this.
  11. Andy

    Andy Committee Member

    Messages:
    23,234
    Location:
    Hampshire, UK
    Andy, Aug 22, 2019
    #31
    MSEsperanza, ScottTriGuy, JaneL and 8 others like this.
  12. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,885
    Location:
    Canada
    Emphasized the 580K number and that it does not discriminate. Good start.
     
    rvallee, Aug 22, 2019
    #32
    Forbin, Ravn, MSEsperanza and 11 others like this.
  13. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,885
    Location:
    Canada
    Wish the framing weren't on how we "feel" that we are ignored. We are. Systematically. Measurably.

    Anyway...
     
    rvallee, Aug 22, 2019
    #33
    Snow Leopard, Ravn, MSEsperanza and 13 others like this.
  14. rvallee

    rvallee Senior Member (Voting Rights)

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    Location:
    Canada
    Confirmed that the center will be located at CHU Ste-Justine and headed by Alain Moreau.

    Woop!
     
    rvallee, Aug 22, 2019
    #34
    mariovitali, Ravn, MSEsperanza and 19 others like this.
  15. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

    Messages:
    622
    Good news so damn rare!!
     
    Sunshine3, Aug 22, 2019
    #35
    Ravn, Samuel, MSEsperanza and 11 others like this.
  16. rvallee

    rvallee Senior Member (Voting Rights)

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    Location:
    Canada
    As expected, CHU Ste-Justine being a children's hospital, there will be a pediatric focus.
     
    rvallee, Aug 22, 2019
    #36
    Ravn, MSEsperanza, Ebb Tide and 13 others like this.
  17. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,885
    Location:
    Canada
    Pillars:
    1. Increase research capacity
    2. Develop a national cohort and common database
    3. Develop new talent
     
    rvallee, Aug 22, 2019
    #37
    Snow Leopard, Ravn, MSEsperanza and 26 others like this.
  18. Denise

    Denise Senior Member (Voting Rights)

    Messages:
    505
    Any word on who will be helping on the pediatric work?
     
    Denise, Aug 22, 2019
    #38
    MSEsperanza, Lidia, Louie41 and 3 others like this.
  19. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,885
    Location:
    Canada
    Blunt words from Dr Khan: pressing his GP colleagues to "remove the insult from this injury", that they have to accept that "I don't know" is a valid answer, one that should lead to trying hard to solve it. Important words. Thank you, Dr Khan!
     
    rvallee, Aug 22, 2019
    #39
    Ravn, MSEsperanza, Ebb Tide and 41 others like this.
  20. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,885
    Location:
    Canada
    Nothing specific mentioned. One of Moreau's specialty is childhood scoliosis so his team is already well-versed on pediatric research and care.
     
    rvallee, Aug 22, 2019
    #40
    MSEsperanza, ScottTriGuy, Annamaria and 5 others like this.
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