Canadian Federal Health Minister to make announcement regarding ME, August 22

[Milo]

Time confusion: 2h00pm in the original release means? I assumed 2:00 pm, but others here have said the event starts at 10:30 EST, and the release to the media says - 2:00pm.

The count down clock says about 3 1/2 hours left till the event starts.

Any comments?

I am so sorry the livestream begins at 10;30 pacific time, in 10 minutes.

 

[Binkie4]

Anyone having trouble? Time link has been replaced by “ off air” statement.

 

[Wonko]

It's now 12 minutes since you posted that and it says 'off air'

 

[DokaGirl]

Thanks @Milo.

 

[Forbin]

Got a still image at 10:41 Pacific Daylight Time.

 

[ahimsa]

I see a couple of comments in the chat window but, sadly, "je ne parle pas francais"

 

[Esther12]

For others who are also technically inept:

I'm getting crowd noise... that progress?

 

[Hoopoe]

It works fine for me. The livestream is up, but the event will start in a few minutes.

It will be in both English and French according to the chat participants.

 

[ahimsa]

FYI, for folks who are deaf or hard of hearing there are no subtitles and no signed interpreters. Probably best to wait for a transcript.

 

[rvallee]

Sounds like a reasonably-sized audience from the clapping.

 

[Andy]

Today, @CDNMinHealth and @KarimKhan_IMHA announced an investment of $1.4M to establish a research network that will study M.E. and improve the quality of life of people living with this disease @ChuSteJustine Click for the live stream

https://twitter.com/mecfsbiobank/status/1164598108413726720?s=20

 

[rvallee]

Emphasized the 580K number and that it does not discriminate. Good start.

 

[rvallee]

Wish the framing weren't on how we "feel" that we are ignored. We are. Systematically. Measurably.

Anyway...

 

[rvallee]

Confirmed that the center will be located at CHU Ste-Justine and headed by Alain Moreau.

Woop!

 

[Sunshine3]

Good news so damn rare!!

 

[rvallee]

As expected, CHU Ste-Justine being a children's hospital, there will be a pediatric focus.

 

[rvallee]

Pillars:

1. Increase research capacity
2. Develop a national cohort and common database
3. Develop new talent

 

[Denise]

As expected, CHU Ste-Justine being a children's hospital, there will be a pediatric focus.

Any word on who will be helping on the pediatric work?

 

[rvallee]

Blunt words from Dr Khan: pressing his GP colleagues to "remove the insult from this injury", that they have to accept that "I don't know" is a valid answer, one that should lead to trying hard to solve it. Important words. Thank you, Dr Khan!

 

[rvallee]

Any word on who will be helping on the pediatric work?

Nothing specific mentioned. One of Moreau's specialty is childhood scoliosis so his team is already well-versed on pediatric research and care.