Carol Monaghan has applied for a debate in UK House of Commons main chamber

DokaGirl said:
Yes,@Barry, and @JaimeS. It does get very tricky. And I do struggle when I have mixed feelings about certain individuals, or situations.

In general I try to take a no fault approach to these things. In other words, some may say I'm a raving Lefty.

I was voicing my frustration with situations more familiar to me, that have lasted decades, with little to no improvement. I am also negatively effected by these individuals' opinions, which has coloured my thinking, as in "It must be nice" to sit around all day, you "undeserving pwME". As in they dismiss my situation as inconsequential, but view their own as very important - a natural human tendency.

I am a proactive person, and have difficulty understanding people who don't want to help themselves, but look to others to fix it.

I just shake my head when I read BPSers say things like pwME are lazy.

This is probably an inadequate explanation for my expression of my doubts and struggles with some of the depressed people I know, but I can't seem to get any closer right now.
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It's a very adequate explanation @DokaGirl :). I appreciate entirely what you say here.
 
I am thinking of sending our local MPs ( N.Ireland) a few recent abstracts to illustrate the complexity of the research needed, with a brief summary. My aim is that by showing them the complexity, it makes the utterly simplistic CBT/GET look ridiculous.Very few MPs have a science background.
 
That is worrying if the wrong information is being spread.
The MEA Facebook note shared here by @Russell Fleming states:
HOUSE OF COMMONS CHAMBER DEBATE ON ME/CFS

Carol Monaghan MP reported that she had been successful with her application for a full chamber debate on ME/CFS in the House of Commons.

No date has yet been arranged for the debate - partly due to all the problems with the parliamentary timetable that are being created by BREXIT
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@Eagle, I believe you are Carol Monahan's constituent in touch with her. Can you shed any light on this?
 
Carol Monaghan was sitting towards the right end of the front row in the House of Commons this afternoon, Nicky Morgan on back row well behind PM.
Not relevant to debate I know but I was interested.
Have already written to my MP to say debate has been agreed so I really hope it has been.
Can’t see that MEA was likely to get it wrong.
 
Binkie4 said:
https://www.meassociation.org.uk/2007/11/house-of-commons-adjournment-debate/

Have just found this when looking for the announcement from last week.

Is there anyone around who can explain it a bit more? @Stewart
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I believe this is a post by MEA from some years ago @Binkie4 it refers to John Bercow tabling an adjournment debate but as the current speaker of the house he wouldn’t be taking such actions which are reserved for backbench MPs. It also mentions DLA and “new” NICE guidelines so I’m assuming it’s from 2007/8.
 
Possibly it’s a question of interpretation of the parliamentary process where Steve Toople is going by the committee not yet having made any formal announcement. Whereas Carole Monaghan has likely shared this information based on informal assurances that she has no reason to disbelieve.

I’ve no idea whether the committee makes formal announcement of which topics have been accepted onto their list for debate or if the only formal confirmation is when the debate is actually announced in the parliamentary timetable (order of business)
 
NelliePledge said:
I believe this is a post by MEA from some years ago @Binkie4 it refers to John Bercow tabling an adjournment debate but as the current speaker of the house he wouldn’t be taking such actions which are reserved for backbench MPs. It also mentions DLA and “new” NICE guidelines so I’m assuming it’s from 2007/8.
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Thank you @NelliePledge. I lost power .....rather dramatically....when a local substation blew up just after I sent my post. No WiFi, lights, power etc. Fire service needed to put out fire. Was unable to research further. But thank you for your explanation.
 
I came back on just before I sent my last post. Am not opening the freezer.....should be ok. Off for 2-3 hours.

The really alarming thing is that the underground substation is right outside one school and opposite another. 10 hours later and the pavement would have been full of children going to school.
 
NelliePledge said:
Oh blimey hope you got power back reasonably quickly
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That's what is needed for all PwME ;).

Esther12 said:
It would be good to have this confusion cleared up. Hard to know who got the wrong end of the stick.
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I suspect @NelliePledge is probably correct on this, and that people close to Carol Monaghan (no 'e' on the end of Carol note @NelliePledge :) ) have likely been told this by her. I cannot imagine she would have said this without it being valid, even though it may not be written public knowledge yet.
 
Trish said:
That is worrying if the wrong information is being spread.
The MEA Facebook note shared here by @Russell Fleming states:


@Eagle, I believe you are Carol Monahan's constituent in touch with her. Can you shed any light on this?
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Dear @Trish

Please accept my apologies for the delayed response. I am Carol Monaghan MP's constituent but limited in time in what I can do to communicate with the wider ME community as I am focusing on the important parliamentary ME/PACE trial issues with my MP amongst other matters. I was hoping that the charities, as they are set up for this, could take responsibility for accurate communication to the wider ME community and all other MP’s and this is again disappointing especially after all the issues in June with the parliamentary briefing document.

These statements by these two charities are wrong. My Member of Parliament, Carol Monaghan MP, has petitioned for a House of Commons Main Chamber debate in front of the Backbench Business Committee. It is in the list for debates and the debate is not currently scheduled or accepted for the House of Commons Main Chamber. The committee cannot give time for this as yet. The committee offered another Westminster Hall debate but this was rejected by her this time. This was advised in June and in the last committee in October. There have been two Westminster Hall debates previously in February on the ‘PACE trial and its effect on people with ME’ and in June for ‘ME Research and Treatments’.

There is a long list of other debates awaiting currently and it is unclear when it would be accepted and scheduled in the House of Commons Main Chamber. She is prepared to wait for the House of Commons Main Chamber rather than another smaller Westminster Hall debate as offered again which is the correct course of action. Due to the current political environment the debate is not scheduled with a date and time and therefore it cannot be said the House of Commons Main Chamber debate was accepted and successful at this point in time. The journalist from the Canary is also correct.

Therefore it is incorrect for #MEAction to state “Carol Monaghan MP has been successful with her application for a House of Commons Main Chamber debate on ME as she announced during a Forward ME Group meeting yesterday”. It is also incorrect for the ME Association to state "Carol Monaghan MP reported that she had been successful with her application for a full chamber debate on ME/CFS in the House of Commons.”
 
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