Cochrane ME/CFS GET review temporarily withdrawn

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by Trish, Oct 17, 2018.

  1. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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  2. Trish

    Trish Moderator Staff Member

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    Thank you. I write tweets like that not because CG will take any notice, but for her followers to see and ponder.
     
  3. TiredSam

    TiredSam Committee Member

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    She has lived with the cause for 25 years.
     
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  4. Kalliope

    Kalliope Senior Member (Voting Rights)

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  5. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

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    As others have noted, the BPS cabal are engaging in Damage Control 101 here. That is, when you suffer a humiliating defeat, you leak the story to a friendly/gullible journalist which allows you to control the narrative (ie, frame/distort/alter the facts) to minimise the damage.

    In this case, the story has been reframed around the theme of "militant activists force Cochrane to back down" as opposed to the real story of "shoddy research under review".

    They then rely on the fact that most journalists are too lazy to fact-check the initial story so they repeat and propagate the lie. Mrs Wessely has no doubt been used to spread the story further (and of course lazy journalists won't pick up that she has a conflict of interest).

    This demonstrates just how big a set-back this news is for the BPS cabal. If Conchrane falls, they really have very little left. I expect more dirty tactics as their empires continue to crumble.

    0171f4b5f4688d156be93fbcfb06e4ce.jpg
     
    Last edited: Oct 18, 2018
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  6. rvallee

    rvallee Senior Member (Voting Rights)

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    It's got to be a bit embarrassing to be a critic of poor science and professional skeptic and find yourself having defended obviously fraudulent science, especially in the midst of a massive crisis of replicability and specific claims about this research precisely failing on poor methodology, confirmation bias and conflicts of interest.

    I expect similar poor defenses from others who have insisted there was nothing wrong there.
     
  7. rvallee

    rvallee Senior Member (Voting Rights)

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    Can't even have the decency to acknowledge her own conflicts of interest and bias while whining about fake bias.
     
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  8. Adrian

    Adrian Administrator Staff Member

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    I think it means that when a 'patent' title is put on someone their opinion doesn't count any more as they clearly have no knowledge of capacity to reason.
     
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  9. Daisymay

    Daisymay Senior Member (Voting Rights)

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    And especially so if they are female.
     
  10. Barry

    Barry Senior Member (Voting Rights)

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    Maybe just ponder the notion that whispering in people's ears is his stock in trade, and will have been doing it to many, many people over many, many years, in his life long strategy of winning influence and power. It's by no means just his other half. Probably doesn't help your imagery much though :p.
     
  11. Esther12

    Esther12 Senior Member (Voting Rights)

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    I thikn it's a response to the "respect patients" line she was replying to:

    https://twitter.com/user/status/1052850748919304192


    I think that she interpreted that line as meaning 'respect patient views no matter how wrong they are', rather than as 'respect patients enough to engage with them as equals when they identify problems with research'.
     
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  12. Cheshire

    Cheshire Senior Member (Voting Rights)

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    :nailbiting:
    OMG, that's getting worse!:nailbiting:
     
  13. Andy

    Andy Committee Member

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    So is there a code of conduct for researchers, which we can use to hold the PACE authors, and others, to account for their statements, communications and actions I wonder, or is this idea of CG's only meant to work one way?
     
  14. SallyC

    SallyC Senior Member (Voting Rights)

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    Well I've managed to write my email to Reuters, whether it'll do any good is another matter
    :thumbsup:
     
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  15. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    @Trish
    I am sorry that you have had to be on the receiving end of Clare Gerada’s vileness. You have represented our case so well. Thank you.
     
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  16. TiredSam

    TiredSam Committee Member

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    That doesn't help. I can now feel his hot rancid breath on my neck.
     
  17. large donner

    large donner Guest

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    Its still irrelevant anyway, this is about junk science. We didn't produce the science from the people who have had it withdrawn from the Cochrane review. Others did, then because other scientists including patients showed their data to be flawed leading to flawed conclusions, conclusions that they themselves claimed, Cochrane took this decision.
     
    Last edited: Oct 18, 2018
  18. Stewart

    Stewart Senior Member (Voting Rights)

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    Just picture Sir Simon whispering into Michael Sharpe's ear whilst he tweets. No need to thank me - you're welcome.
     
  19. inox

    inox Senior Member (Voting Rights)

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    Listening to Katarina Lien from todays conference in Sweden - she is up to date on things! Mentioned the (temporarily) withdrawn cochrane review :thumbup:

    She was also very clear on what she hears from and sees in patients don't match the story a certain research community tells. And she hopes the reviewers will take this oportunity to re-evalue their work - phrased in a way that makes it very clear she hopes the review goes.

    (Since it's in spoken norwegian I dont bother link? but it's about at 13:34 in the second part from today)
     
    Last edited: Oct 18, 2018
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  20. chrisb

    chrisb Senior Member (Voting Rights)

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    The images could get worse. What one needs to know is whose whispers first seduced him and led him astray. You know how concerned we are with grooming.
     

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