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Cochrane ME/CFS GET review temporarily withdrawn

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by Trish, Oct 17, 2018.

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Page 15 of 41
  1. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    MSEsperanza, Oct 20, 2018
    #281
    Invisible Woman, Andy, rvallee and 19 others like this.
  2. Forbin

    Forbin Senior Member (Voting Rights)

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    "Where does a wise man hide a leaf? In the forest. But what does he do if there is no forest? He grows a forest to hide it in." - GK Chesterton

    Of course, it doesn't always work. :)

    https://www.youtube.com/watch?v=E4Tlob3U_1o


     
    Forbin, Oct 20, 2018
    #282
    Sarah Restieaux, MEMarge, TiredSam and 12 others like this.
  3. Sean

    Sean Moderator Staff Member

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    I am of the view that the 'temporary' withdrawal is basically the last warning to the review authors to get their act together and provide substantive responses and appropriate changes, or the review will be permanently withdrawn.

    This is closer to the end of a long process than to the start.

    If Tovey is genuinely trying to clean up Cochrane then he must give – and be clearly seen to give – the authors of dodgy review papers every possible opportunity to correct their papers first.

    It is how I would do it.

    It takes time, and seems overly generous and bureaucratic, but it covers the necessary bases as much as practically possible. Pulling a major, influential, and controversial review from the literature is no small thing, and you have to get it right, technically and politically.
     
    Last edited: Oct 20, 2018
    Sean, Oct 20, 2018
    #283
    Invisible Woman, Sarah Restieaux, Andy and 28 others like this.
  4. Joh

    Joh Senior Member (Voting Rights)

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    Last edited: Oct 20, 2018
    Joh, Oct 20, 2018
    #284
    Invisible Woman, Woolie, Indigophoton and 30 others like this.
  5. obeat

    obeat Senior Member (Voting Rights)

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    obeat, Oct 20, 2018
    #285
    Invisible Woman, rvallee, MEMarge and 18 others like this.
  6. Joh

    Joh Senior Member (Voting Rights)

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    Joh, Oct 20, 2018
    #286
    Jan, Invisible Woman, Woolie and 30 others like this.
  7. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    All the minus SD stuff is bullshit because the general population distribution is highly skewed with a prominent ceiling effect. The should be comparing to a population percentile. For the general population with demographics similar to the people in the PACE trial, a SF36 PF score of 60 is somewhere around the 10th percentile.
     
    Snow Leopard, Oct 20, 2018
    #287
    Invisible Woman, Woolie, Andy and 12 others like this.
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    could someone screen save all these Clare Gerada tweets; they might disappear.
     
    Sly Saint, Oct 20, 2018
    #288
    MEMarge, Esther12, inox and 10 others like this.
  9. Solstice

    Solstice Senior Member (Voting Rights)

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    Some already did.
     
    Solstice, Oct 20, 2018
    #289
    rvallee, MEMarge, Esther12 and 9 others like this.
  10. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Her reply to Keith Geraghty is screen saved.

    I also screen saved her first reply to Trish and her statements re accountability/ authority .

    Will post later.

    Edit: Here are the (only) ones I saved:
    Bildschirmfoto vom 2018-10-20 11-39-35.png Bildschirmfoto vom 2018-10-20 11-41-07.png Bildschirmfoto vom 2018-10-20 11-43-16.png Bildschirmfoto vom 2018-10-20 11-43-36.png

    Clare_G_to Keith_Geraghty.jpg

    Edit 2: Good to see that others are doing more professional screenshots.
    I already had missed this one now being reposted:

    https://twitter.com/user/status/1053612177272246273
     
    Last edited: Oct 20, 2018
    MSEsperanza, Oct 20, 2018
    #290
    Invisible Woman, rvallee, Hutan and 11 others like this.
  11. Lucibee

    Lucibee Senior Member (Voting Rights)

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    Keep digging, Clare. Keep digging...

    cgerada_20oct2018.png
     
    Lucibee, Oct 20, 2018
    #291
    Invisible Woman, Woolie, Andy and 9 others like this.
  12. Barry

    Barry Senior Member (Voting Rights)

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    Of course one significant source of pressure on doctors might be when they give badly flawed advice to ME patients, in the sincere belief they are right and doing their best, when in fact they have themselves have been hoodwinked by the heavily influential flawed research. In some cases they might be considered victims of it as well. Doctors these days must be hugely too busy to follow all the research, and have to rely on the integrity of medical researchers, and to trust the system.
     
    Barry, Oct 20, 2018
    #292
    Invisible Woman, Woolie, Sarah Restieaux and 14 others like this.
  13. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Kalliope, Oct 20, 2018
    #293
    Invisible Woman, Woolie, sea and 12 others like this.
  14. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    We know it is possible to be both patient and doctor, Clare. Some of us ME sufferers are doctors too.
     
    Last edited: Oct 20, 2018
    MSEsperanza, Oct 20, 2018
    #294
    Invisible Woman, Woolie, sea and 18 others like this.
  15. Sean

    Sean Moderator Staff Member

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    Sean, Oct 20, 2018
    #295
    Invisible Woman, Woolie, Hutan and 6 others like this.
  16. chrisb

    chrisb Senior Member (Voting Rights)

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    I feel sure that Dr Speight will be an interested observer of that.
     
    chrisb, Oct 20, 2018
    #296
    Invisible Woman, Woolie, Hutan and 3 others like this.
  17. Lucibee

    Lucibee Senior Member (Voting Rights)

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    Just to go back to the original topic: Have Cochrane issued any formal statement on this yet?
     
    Lucibee, Oct 20, 2018
    #297
    Invisible Woman, rvallee, MEMarge and 4 others like this.
  18. Cinders66

    Cinders66 Senior Member (Voting Rights)

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    Kind of ironic that the lady tweeter is now off to join the general public on a march to apply pressure to the politicians to get their way on Brexit. Shouldn’t the public just sit quietly and accept whatever elected politicians decide or do about their future ? Think how difficult this is making if for politicians and how it would seem if they listened to the people or even bowed to public pressure and slightly changed course. It would be a disgrace.
     
    Cinders66, Oct 20, 2018
    #298
    Invisible Woman, MEMarge, TiredSam and 9 others like this.
  19. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    As far as I can see not. It seems the press release was not from them. The press release says Cochrane have taken the decision to withdraw, not that they have withdrawn.
     
    Jonathan Edwards, Oct 20, 2018
    #299
    Invisible Woman, Andy, MeSci and 9 others like this.
  20. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    If you're on good terms with Cochrane, maybe it's time to suggest that they release their own statement that makes it very clear that the review is being withdrawn in reponse to high quality critique. It would be an opportunity for Cochrane to restore some trust and create a more positive relationship with patients.
     
    Hoopoe, Oct 20, 2018
    #300
    Invisible Woman, Woolie, MeSci and 14 others like this.
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