Cold or PEM?

[MinIreland]

Four confirmed infections in five years and dozens of LFTs, so I reckon 90% of my tests have been on flaming PEM.

I have only recently been 'diagnosed' with ME/CFS (2 weeks ago, but have been ill for a couple of years) and I still find it very surreal that these symptoms could actually be PEM. It feels so much like a normal virus (which it still could be, but that's not the point. The points is that I find it surreal that it MIGHT NOT be a virus.

 

[MrMagoo]

I have only recently been 'diagnosed' with ME/CFS (2 weeks ago, but have been ill for a couple of years) and I still find it very surreal that these symptoms could actually be PEM. It feels so much like a normal virus (which it still could be, but that's not the point. The points is that I find it surreal that it MIGHT NOT be a virus.

I still find that kind of crazy, despite years of experience!

I still don’t really know whether I had Covid in March 2020 or if I had a massive crash. Or both.

 

[Evergreen]

Is the verdict in, @MinIreland? The suspense!

 

[MinIreland]

Is the verdict in, @MinIreland? The suspense!

Ha ha! So... There's another option. I started LDN almost 2 weeks ago (.5 mg) and after using it for 6 days, these symptoms kicked in. According to my doctor (and the LDN research trust guidelines) it is quite common for ME/CFS patients to develop flu like symptoms initially (probably indicates the dose is too high or LDN doesn't work for them). My doctor told me to stop LDN for 2 weeks and then start again on a way lower dose.

I'm convinced now it's not a virus because there has been zero change over the course of the week. I'm just absolutely knackered and can't stop sleeping. Housebound, which I haven't been before.

I hope that, after this update you can breathe again, @Evergreen! LOL

 

[Evergreen]

Ha ha! So... There's another option. I started LDN almost 2 weeks ago (.5 mg) and after using it for 6 days, these symptoms kicked in. According to my doctor (and the LDN research trust guidelines) it is quite common for ME/CFS patients to develop flu like symptoms initially (probably indicates the dose is too high or LDN doesn't work for them). My doctor told me to stop LDN for 2 weeks and then start again on a way lower dose.

I'm convinced now it's not a virus because there has been zero change over the course of the week. I'm just absolutely knackered and can't stop sleeping. Housebound, which I haven't been before.

I hope that, after this update you can breathe again, @Evergreen! LOL

Phew! Glad your doctor was helpful.

I had wondered about the LDN. I took one 1mg capsule of LDN once and was in bits. Felt awful that day and then really hungover for the following days. I slept so much for about a week.

Hope you will feel better soon now that you've stopped, though I know it may take some time.