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Coronavirus: Advice from ME organisations

Discussion in 'Epidemics (including Covid-19, not Long Covid)' started by Eagles, Feb 11, 2020.

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Page 11 of 12
  1. ahimsa

    ahimsa Senior Member (Voting Rights)

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    ahimsa, Mar 20, 2020
    #201
    JaneL, Hutan, Dolphin and 2 others like this.
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Merged thread

    from email
     
    Last edited by a moderator: Mar 21, 2020
    Sly Saint, Mar 21, 2020
    #202
    JaneL, Simbindi, Invisible Woman and 1 other person like this.
  3. mango

    mango Senior Member (Voting Rights)

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    mango, Mar 21, 2020
    #203
    Anna H and Invisible Woman like this.
  4. Perrier

    Perrier Senior Member (Voting Rights)

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    794
    What Dr Tompkins says is all lovely, however, nowhere does he make a single little peep about the fact that the ME research needs to steam ahead, as folks need to have some help for their disease, they need time lines,(scientists seem able to give them for covid-19--or a range of time for a vaccine); ME patients need to know something is moving to help them, and not that all the attention has now turned elsewhere. I know about 10 people personally with this illness; and have known them for more than 10 years, and not a single one of them is any better, and they all continue to lie in silence suffering horribly.

    Please ME doctors--and these words are to you: get some more fire under your seats. Yes, Covid 19 needs urgent instant attention, but can't you all learn from this urgency, and realise that lying in bed, confined and suffering, for decades is also an urgent matter.
     
    Perrier, Mar 23, 2020
    #204
    Cinders66, Amw66, ukxmrv and 6 others like this.
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    A further video from Bateman Horner centre:
    The Bateman Horne Center addresses COVID 19.

    https://www.youtube.com/watch?v=aCbZ7Qat18A




    52mins long

    you can read a youtube generated transcript by :
    1 click on three dots next to SAVE under the video
    2 select 'open transcript'
    3 This will then appear in the top right hand side of the screen.
    4 you can copy and paste it into a word document or similar.
     
    Sly Saint, Mar 23, 2020
    #205
    Invisible Woman and Trish like this.
  6. Trish

    Trish Moderator Staff Member

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    Trish, Mar 25, 2020
    #206
    MSEsperanza likes this.
  7. Adrian

    Adrian Administrator Staff Member

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    6,563
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    UK
    Adrian, Mar 25, 2020
    #207
    Trish likes this.
  8. Ravn

    Ravn Senior Member (Voting Rights)

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    Aotearoa New Zealand
    Interested in comments about the "medical care considerations letter" in the resources. Sensible to take to the doctor/hospital or more likely to backfire?

    As an aside, if you have a person in your life who still doesn't get it about handwashing, scroll down to the bottom of the resources page for the video "Seeing Germs". Or, if you prefer cartoons, try this one. Both are suitably gross. https://thespinoff.co.nz/covid-19/25-03-2020/the-side-eye-viruses-vs-everyone/
     
    Ravn, Mar 27, 2020
    #208
    Amw66, JaneL, Invisible Woman and 2 others like this.
  9. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Thank you to @dave30th for putting the advices from ME Association’s Dr Charles Shepherd on Virology Blog:

    Among many other useful things, I think it's helpful that CS makes a clear statement about drugs and supplements:

    http://www.virology.ws/2020/03/26/t...ice-from-me-associations-dr-charles-shepherd/
     
    MSEsperanza, Mar 27, 2020
    #209
    ukxmrv, JaneL, Invisible Woman and 4 others like this.
  10. TiredSam

    TiredSam Committee Member

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    https://www.lawgazette.co.uk/news/c...+delays+advised+|+Criminal+defence_03/27/2020
     
    TiredSam, Mar 28, 2020
    #210
    JaneL, Invisible Woman, Dolphin and 3 others like this.
  11. Sasha

    Sasha Senior Member (Voting Rights)

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    Thanks for that, @TiredSam - I'm instructing a solicitor about updating my will but had no idea how to get it witnessed under the current circumstances. Hopefully by the time they've got the work done, there'll be some progress on this.
     
    Sasha, Mar 28, 2020
    #211
    JaneL, Invisible Woman, Simbindi and 2 others like this.
  12. Andy

    Andy Committee Member

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    Andy, Apr 1, 2020
    #212
    Invisible Woman, Ebb Tide, Mithriel and 4 others like this.
  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Apr 11, 2020
    #213
    JaneL, MeSci, Invisible Woman and 1 other person like this.
  14. Simbindi

    Simbindi Senior Member (Voting Rights)

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    Simbindi, Apr 11, 2020
    #214
    JaneL, Invisible Woman and Wonko like this.
  15. Adrian

    Adrian Administrator Staff Member

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    When the digital signature act came into law in the early 2000s I found it interesting that they excluded wills from it (at the time I was using a will as an example of the need for long-term secure digital storage).
     
    Adrian, Apr 11, 2020
    #215
    Invisible Woman likes this.
  16. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
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    Merged thread

    https://www.youtube.com/watch?v=fzs8qmSzwm4




    Alex Howard is a psychologist who set up the Optimum Health Clinic. I haven't watched this but it shouldn't be considered a recommendation.
     
    Last edited: Apr 17, 2020
    Dolphin, Apr 16, 2020
    #216
    Saz94, JaneL, Invisible Woman and 3 others like this.
  17. Hutan

    Hutan Moderator Staff Member

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    "Welcome to this week's Mindful Monday."
    Thanks Everyday Alex.
    Can we expect Trite Advice Tuesday, and Waffle Wednesday?

    There's a bit in there where EA suggests that our over-active immune systems mean that 'maybe there's actually a layer of protection that might come with that.' (Cos that sounds like a really safe attitude to have.)

    'Practice being in your body'. :rofl:
     
    Hutan, Apr 16, 2020
    #217
    meg22, MeSci, Saz94 and 6 others like this.
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I don't think he's a qualified psychologist; he has a BSc (although to hear him talk.........).
    He has also branched out (probably due to the OHC not doing very well financially) and has this site
    Conscious Life
    https://www.consciouslife.com/

    so he might now be a called a lifestyle guru(?)
     
    Sly Saint, Apr 16, 2020
    #218
    Saz94, Sean, Hutan and 3 others like this.
  19. rvallee

    rvallee Senior Member (Voting Rights)

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    :emoji_duck:

    https://www.consciouslife.com/the-optimum-health-clinic/

    I vaguely remember Optimum Health Clinic being a thing but can't place it.
    Bunch of woo peddlers.
     
    rvallee, Apr 16, 2020
    #219
    ladycatlover, Saz94, Sean and 5 others like this.
  20. TiredSam

    TiredSam Committee Member

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    Not forgetting FFS Friday.
     
    TiredSam, Apr 16, 2020
    #220
    NelliePledge, hellytheelephant, meg22 and 13 others like this.
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