Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

David Tuller: Crowdfunding for Us All by Jennie Spotila

"I have supported David Tuller’s investigative journalism since he first began his crowdfunding campaigns,* but it has never been more important than right now. I urge you to join me in supporting his current fundraiser not only for yourself, but for millions of us.

Tuller’s work continues to have a tremendous impact on the controversial use of psycho-behavioral treatments for ME/CFS. As I said last fall, Tuller brought the controversy to the attention of media and scientific outlets in a way that no one had previously been able to do. Yet he didn’t just push one domino over, setting a cascade in motion. Tuller continues his reporting and his scientific commentary on the discredited PACE trial and other versions of the same theory."

http://occupyme.net/2021/04/22/david-tuller-crowdfunding-for-us-all/
 
Just want to say that I look forward each year to donating for this, and now to Brian Hughes (probably got the name wrong, you know who I mean(edit ...maybe Keith Geraghty)).

It's the most substantial way I can help our cause (apart from my will), and I know I'm going to get excellent bang for my buck. I just wish i could give more.
 
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Starlight said:
We all have skin in this game David, I feel your work is very important! We are all watching with you. I would like to think of any ways we could to help out.
Are there any charities we could lobby to help? Maybe we could ask any local groups we are part of if they've any money left over. I feel like this is as important as donating towards research. It is the best chance of better care in the near future.

! We will get there I'm sure.
Click to expand...

Read this interesting report.
Dave have you reached out/had contact with James?
Would be be another string for the bow?

Report is good other than I take exception to some pointed descriptive phrases.....!

https://www.theatlantic.com/health/archive/2021/04/john-james-aids-treatments-covid-pandemic/618679/

“I’m 79. I’m retired. I want to do things that are serious.”
"Few people understand the value of tracking treatments better than James. In 1986, when gay men across the country were dying from AIDS and were desperate for guidance, James began publishing updates on experimental-drug trials in a newsletter he called AIDS Treatment News, or ATN. James is not a doctor, and he is not HIV-positive, but during his time working as a computer programmer at the National Institutes of Health in the early 1960s, he learned to read medical research and interpret statistics. Despite operating on a tiny budget, ATN became one of the primary news sources for the queer community."
 
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