David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

I was expecting the exchange rate to be closer - now I’ve seen my credit card bill I realise I should have adjusted for that so the second amount will need to be adjusted to round everything up to the figure I wanted to give in £quids. I’m pretty certain the same thing occurred last year. Minion brain was not in gear. :confused:
 
NelliePledge said:
I was expecting the exchange rate to be closer - now I’ve seen my credit card bill I realise I should have adjusted for that so the second amount will need to be adjusted to round everything up to the figure I wanted to give in £quids. I’m pretty certain the same thing occurred last year. Minion brain was not in gear. :confused:
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The CAD exchange rate sucks so my donation will be less in USD then i am paying in CAD :(
 
Clementine said:
A little push to help the crowdfunding in Sweden. It's a short piece about the accomplishments so far, stating that ROI is great so people should donate. (The headline means "Help David Tuller report on the ME-scandal") https://pacegranskaren.wordpress.com/2019/04/09/hjalp-david-tuller-att-beratta-om-me-skandalen/
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Hope it's OK to put a Google translation here ...
Date: April 9, 2019 Author: pace reviewer 0 Comments
Public health scientist and journalist David Tuller at Berkeley is one of the few people who do not have ME or any relative with ME but who nevertheless engage in the issue. His work has, among other things, resulted in open letters to The Lancet's editor-in-chief Richard Horton, where over a hundred researchers, academics, clinics and organizations of ME sufferers summarize the major methodological and ethical problems of the PACE study and require an independent review.

Successful gathering of so many knowledgeable and competent people and telling the outside world about the medical and scientific scandal that is going on is very valuable for achieving change. To be able to continue his work, Tuller needs help with financing. Anyone who appreciates good science and wants research fraud and generally substandard research to be highlighted are welcome to donate money in order for the work to continue. Go to the fundraiser and donate! If you do not have the financial opportunity to participate, please share the collection page further, and it will reach someone else who can contribute. Telling about how substandard research leads to guidelines in healthcare that damages ME disease is central to in the future being able to provide care that benefits and is based on well-researched research.

Tuller has applied for funding in this way earlier and accomplished a lot with the funding he managed to collect. Here you can find everything he has written about ME, the PACE study and other biopsychosocial studies on ME on the Virology blog. He has written on other platforms too (go to the PACE page in the media and you will find examples), participated and made one of the re-analyzes made by the PACE study data, traveled around the world and visited ME-sick and told about PACE study and similar studies. As a result of, among other things, Tuller's work (together with very many others), we now see a slight lightening in the outside world's knowledge of ME, including in the UK and Denmark.

You can also read a chapter by David Tuller in the newly published book Osynligt sjuk, which is about the ME-sick author Karin Alvtegen (written by Karin Thunberg).
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@Wonko Thanks, I deleted my post above before you posted. I had asked whether I would be charged more for my NZ dollars donated.

I tried to donate just a while ago and it wouldn't go through. I think it is because I haven't activated this particular bank card which was renewed last October. I use this card just for buying things on the internet. So don't use it often and only put a little money into it. I will activate it tomorrow at a money machine. It should be OK then, so I will donate tomorrow once sorted.
 
There is a FB group I post on occasionally, but they have a strict rule against any posts asking for money, for whatever cause. It's frustrating because there must surely be many more people who would be prepared to donate.
 
A reminder for those who don't have credit cards:

An easy way to donate without a credit card is offered by the Dutch ME/cvs vereniging (a registered charity), at least for people having a bank account in the SEPA* countries:



You can donate via bank transfer to the ME/cvs vereniging with reference to David Tuller. They will collect the donations and transfer them to the Berkeley Crowdfunding.

The bank details at a glance:

ME/cvs Vereniging te Zuurdijk
IBAN: NL85 INGB 0004 2869 57
BIC/SWIFT = INGBNL2A
with reference to 'David Tuller'

https://www.me-cvsvereniging.nl/contact

The transfers should be made by April 23th.

In the meantime I asked the ME/cvs vereniging and they feel comfortable with the idea of spreading the info via Twitter in English and every other language. (Thanks, Carolien!)

I am not on Twitter myself--so any Tweets with regard to this matter will be highly appreciated.

*SEPA -> wikipedia: "The Single Euro Payments Area (SEPA) is a payment-integration initiative of the European Union for simplification of bank transfers denominated in euro. As of 2018, SEPA consists of the 28 member states of the European Union, as well as the four member states of the European Free Trade Association (Iceland, Liechtenstein, Norway and Switzerland), and Andorra[3][4], Monaco, San Marino, and Vatican City "

Edit: Added URL to the charity: the https://www.me-cvsvereniging.nl/contact
 
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Barry said:
There is a FB group I post on occasionally, but they have a strict rule against any posts asking for money, for whatever cause. It's frustrating because there must surely be many more people who would be prepared to donate.
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As DT has mentioned his crowdfunding in some of his more recent blog posts could you just post up one of those and sing his praises without mentioning the crowdfunding. Then at least some might read and incidentally see the crowdfunding link? If anyone queries it as against the rules you were posting the blog.....might get away with it

There’s a certain support forum I go on fairly regularly where theyre not hot on advocacy/research posts. I am quite inventive in finding ways to make sure issues get raised nevertheless. Felt a bit like Michelle of the resistance from Allo Allo at one time. I am often mentioning stuff on what are you thankful for posts for example. I posted a thread about DT that didn’t have fundraiser in the title & seem to have got away with it and a couple of people on there have donated.
 
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