David Tuller interviews Adam Lowe about his experience as a lay member of the NICE ME/CFS guideline committee

[adambeyoncelowe]

Congratulations @adambeyoncelowe, you both look so happy. Thank you for your hard work for the guidelines. I bet it takes a toll on the patients on the committee, physically and otherwise.

Unsurprisingly, the moment it was over, my health got quite a bit better. But it was worth it for the outcomes we achieved.

 

[Blueskytoo]

Congratulations @adambeyoncelowe, what a lovely picture! You both look so happy, wishing you many more years of love and laughter together .

 

[adambeyoncelowe]

Congratulations @adambeyoncelowe, what a lovely picture! You both look so happy, wishing you many more years of love and laughter together .

Thank you!

 

[Ariel]

Congratulations @adambeyoncelowe - what a lovely photo!

Thank-you for all your work, and for doing this video to explain what happened. I hope there continue to be positive changes through this and the relationships formed. It's good to hear that minds may have been changed.

 

[Ravn]

Thanks for the informative video, Adam and Dave. And thanks for a job well done on the NICE committee @adambeyoncelowe. How did you find headspace for wedding preparations with all that going on? Congratulations anyway. Beautiful photo. Wishing you a great many good years together and that hopefully, soon, they will be healthy good years together, too.

 

[adambeyoncelowe]

Congratulations @adambeyoncelowe - what a lovely photo!

Thank-you for all your work, and for doing this video to explain what happened. I hope there continue to be positive changes through this and the relationships formed. It's good to hear that minds may have been changed.

Thanks for the informative video, Adam and Dave. And thanks for a job well done on the NICE committee @adambeyoncelowe. How did you find headspace for wedding preparations with all that going on? Congratulations anyway. Beautiful photo. Wishing you a great many good years together and that hopefully, soon, they will be healthy good years together, too.

Thank you both! Luckily, my best friend does set design and his mum does flowers, so they both decorated the venue, did the place settings, provided all the flowers, etc. The venue themselves did all the food and drink. So in the end, there wasn't a huge amount of organising to do.