David Tuller: Trial By Error: Some Thoughts About NICE

Kalliope

Kalliope

Senior Member (Voting Rights)
Some thoughts about NICE

In fact, a robust debate about ME/CFS treatments rooted in scientific principles would be welcome, since such a debate has been largely absent in the UK. But it would require the NICE committee to include, in addition to a group of apparent GET/CBT proponents, a comparable cohort of biomedical professionals with some knowledge of clinical trials—that is, experts capable of rebutting claims of treatment effectiveness that exceed the evidence. The current list of committee members seems slim on that front. NICE should address this apparent discrepancy if it has any hope or expectation that the new guidance might prove credible and acceptable to a broad audience of clinicians, patients, care-givers, and others.
 
I'm not sure what I think about the NICE process, I think I'm feeling more negative about it than Tuller tbh, but I think that blog does a really good job of summarising lot of the issues surrounding the NICE review to people, and therefore works as something that could help introduce people to the whole ME/CFS/CBT/GET controversy.

"In fact, these GET/CBT proponents have a formidable job. They need to convince the rest of the NICE committee that open-label studies with subjective outcomes can provide reliable data—even though these studies cannot do that."

I fear that standards are so low in UK medicine that this is a far from formidable job. When they're stacking he committee it could be a cake-walk.
 
wdb said:
Well I can't figure it out

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Given that Ellen wasn't able to win the war using her tactics, why would we want David to repeat the same mistake? Why would we want to repeat it?

Same goes for Erik Johnson who has been trying to give David a hard time on Facebook. They, along with a number of other "advocates", can't seem to accept that others are making progress via different methods to their own, and therefore they seem to think that they should be working to undermine those more successful.
 
andypants said:
From her twitter account I gather she doesn't think anyone who isn't trained in a specific field themselves can criticize it. So, not trained in CBT, not allowed to voice criticism.
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I'm not trained in military strategy, but I can confidently say that walking slowly towards an enemy while singing 'here we are, come and get us' without any cover and weapons, is not a good military strategy.

Is she trained in David's speciality? ;)
 
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