Doctors’ attitudes toward specific medical conditions, Scoles, 2022 (includes ME/CFS)

Yeah, it's bad. But, this:

is all about perception. Basically any criticism against medicine is invalid. Everyone just has to suck it up, they know it all.

Apparently it's a "hot take" that we have lower quality than most diseases. Evidence is just something you choose to believe or not based on what your peers and institutions think, apparently. Facts to some are "hot takes" to others.

Frankly, you can't fix that culture. It's an insular culture that needs to be fixed from external forces, but there aren't any, in part because it's too big.

There are a few less awful comments. At the bottom. Not popular.

So now: how to fix a broken system that is completely insulated from anything happening outside of it? In politics, this is where revolutions are needed. Except oppressed people can't revolt, so we're basically forever screwed. What an awesome system.

 

Reddit medicine is the most sinister, dystopian wasteland imaginable. It’s the Mordor of online message boards. The comments that garner the most up votes are beyond awful. They hate us, and essentially argue that we deserve the attitudes highlighted by the paper

 

I might be wrong but i think reddit tends to attract certain kinds of people. If you look at r/science there's a large amount of very low quality psychology/sociology papers being posted daily. The people who post/comment from what i've seen over the years also seem to generally be very cynical/angry at the world. The social dynamics there are different compared to a forum like this one where people are having earnest discussions. It feels a lot more like an echo chamber where a lot of people go to vent and generally just be angry/outraged at things, and only occasionally discuss things seriously.

 

I shouldn't have read that, now I feel horrible. I feel like I waded through a sewage pond.

 

Simon says "Well then Schizophrenia and Anorexia Nervosa should also be regarded as physical illnesses".

 

My take is that Reddit is where medical professionals come to be honest and show their true colours, I'm glad it exists. I just wish some of them would come over here and debate us. See this thread: https://www.s4me.info/threads/chall...-the-medical-profession-where-are-they.24361/

 

Post moved from the Long Covid in the media thread.

I guess I have another place to look for horrific prejudice, yay sounds like an afternoon.

https://twitter.com/user/status/1587636737940983808

 

Merged
Recording of webinar with Brooke Scoles on her study on use of stigmatizing language used about ME patients on an online forum.

https://www.youtube.com/watch?v=gAyHbr5rdwI

&

https://fb.watch/hR88P5kpsj/

Organised by Norges Myalgisk Encefalopati Forening

"Stigmatizing language about ME wtih Brooke Scoles, MPhil

The language and words used when referring to a disease and the patients who have the disease affect the kind of care the patients receive. Brooke Scoles analyzed how different diseases were discussed in an online forum for doctors, finding that ME was mentioned more often in negative ways than other diseases. In this webinar she talks about the study."