stigma

Self-management support needs for individuals with Myalgic Encephalomyelitis and their next of kin – a qualitative study Grønning, Kjersti; Lysfjord, Liv Eli; Røstad, Ann Katrin Hagen Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, disabling condition...

Stigmatisation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) - a scoping review Patricia Vester, Stefanos Boudouroglou-Walter, Chantal Wieting, Jonas Schreyögg, Niklas Dammann, Annemarie Feißel, Katharina Piontek, Christine Blome Objective Myalgic Encephalomyelitis/Chronic...

Discrepancies between patient-reported and physician-reported severity and disability in functional and non-functional movement disorders BACKGROUND Functional movement disorder (FMD) is a common cause of debilitating symptoms in neurology patients. Due to the stigma that is associated with...

What is the Role of “the Psyche”? Long COVID and ME/CFS as Test Cases for Evidence-Based and Patient-Centered Psychiatry and Psychotherapy Only available in German: https://www.thieme-connect.com/products/ejournals/pdf/10.1055/a-2866-9127.pdf Posted in the psychosomatic forum but is sympathetic...

Perception versus practice: the reality of functional neurological disorder FND diagnosis at a large neurological centre Functional neurological disorder (FND) encompasses a wide range of neurological symptoms without identified structural pathology.1 Defined by positive clinical signs, FND is...

Complex chronic adverse events following immunization: a systemic critique and reform proposal for vaccine pharmacovigilance Tiff-Annie Kenny The COVID-19 pandemic has renewed attention to complex chronic health conditions that challenge conventional biomedical paradigms. Syndromes such as...

“Everything Looks Normal”: Patient Narratives of Contested Legitimacy in Long COVID Medical Encounters Rhidenour, Kayla B.; Thompson, Charee M.; Babu, Sara; Kelpinski, Lindsay F. [Line breaks added] Abstract This study examines how individuals with long COVID navigate illness experiences when...

Chronic Fatigue Syndrome: A Moral Exploration of Illness and Accountability Jennifer McMurray [Line breaks added] Abstract Chronic fatigue syndrome (CFS) is a complex and often debilitating condition characterized by persistent fatigue accompanied by a variety of additional symptoms that...

Full title: “Have you considered that it could be burnout?”—psychologization and stigmatization of self-reported long COVID or post-COVID-19 vaccination syndrome Ronja Büchner, Christian Sander, Stephanie Schindler, Martin Walter, Carmen Scheibenbogen & Georg Schomerus Abstract Background...

‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice Sazana Jayadeva; Deborah Lupton This article focuses on the struggles of people with Long COVID to obtain diagnoses and treatment in the face of medical...

8: How Stigma Emerges and Mutates: The Case of Long COVID Stigma Hannah Farrimond, Mike Michael [Line breaks added] Introduction How do new stigmas emerge? How do they relate to existing stigma? Why are we seeing an emergent devaluation and discrimination of people who have long COVID, given...

From Literary Hub: Two Households, Both Alike in Indignity: An Interview with Anne Ursu Anne Ursu is the author of Not Quite a Ghost, a middle grade novel about "an eleven-year-old, Violet, who comes down with a post-viral illness" It's hard to pick a section to quote, but here's one that...

Catastrophism, Myalgic Encephalomyelitis-Chronic Fatigue Syndrome and Fibromyalgia: how research questions ‘construct’ realities Oter-Quintana; Alameda-Cuesta Letter to the Editor. No abstract. Link (Enfermería Clínica (English Edition)) [Paywall]

“I would love to say it’s the fatigue but honestly it’s not”: Into Adulthood with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis A. Tenhave; R. Bognar; A. Sidis Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a debilitating and poorly understood condition which interferes...

The impact of long COVID on UK healthcare workers and their workplace: a qualitative study of healthcare workers with long COVID, their families, colleagues and managers Al-Oraibi, Amani; Tarrant, Carolyn; Woolf, Katherine; Nellums, Laura B.; Pareek, Manish Healthcare workers (HCWs) have been...

Stigma, Chronicity and Complexity of Living with Long Covid in Kenya Bosire, Edna N.; Kamau, Lucy W.; Mendenhall, Emily Living with a complex chronic illness can be debilitating as people are constantly negotiating new bodily symptoms, constant treatment-seeking, readjustments to identity and...

“I still can’t forget those words”: mixed methods study of the persisting impact on patients reporting psychosomatic and psychiatric misdiagnoses Sloan, Melanie; Bosley, Michael; Gordon, Caroline; Pollak, Thomas A; Mann, Farhana; Massou, Efthalia; Morris, Stephen; Holloway, Lynn; Harwood...

The Experience of Stigma in People Affected by Fibromyalgia: A Metasynthesis Benedetta Colombo, Eleonora Zanella, Alessandro Galazzi, Paola Arcadi Aim To review the qualitative literature regarding how people with fibromyalgia experience and are impacted by stigma. Design A systematic review...

Patient-reported outcome measures for post-COVID-19 condition: a systematic review of instruments and measurement properties Ann-Kristin Baalmann; Christine Blome; Nina Stoletzki; Theresa Donhauser; Christian Apfelbacher; Katharina Piontek OBJECTIVES Post-COVID-19 condition (PCC), also referred...

Medical ambivalence and Long Covid: The disconnects, entanglements, and productivities shaping ethnic minority experiences in the UK Ridge; Broom; Alwan; Chew-Graham; Smyth; Gopal; Kingstone; Gaszczyk; Begum Structural violence -related to ‘isms’ like racism, sexism, and ableism – pertains to...