"Doctors as Patients" documentary Anil van der Zee

@Grigor after having watched the whole documentary; it's way better than Hollywood productions.

It's real. I'm grateful for all of you.
Your documentary should become obligatory to watch for everyone working in healthcare.

I meet doctors that did not have ME. They still psychologize ME/CFS and judge and dismiss me as a patient or worse.
Trust me I'm a doctor? Hell no.

 

If you click on 'more' under the video on youtube then scroll down you will see
'transcript'. If you then click it on, it comes up in the right hand corner of the screen.
I was going to try and cut and paste it here but each post here will only allow 20000 chars and it's a lot more than that.
Possibly 5 or 6 posts?
maybe someone else could have a go.

 

Thanks Trish and glad you got to see the whole thing. Obviously they don't say much that we don't know, but it's still quite healing to hear and see them say it out loud. Hopefully it will reach the right people.

 

Thank you. Very kind. Actually we had a Professor of General Practice and Head of General Practice Research Erasmus University Marco Blanker on LinkedIn. He wrote the following and send the film to several other medical schools.

https://www.linkedin.com/posts/marc...d&rcm=ACoAAARREA8BzeyJJtciMwOrM0dNqu0SjEBHFxM

"A compelling documentary about doctors who have been struck down by post-infectious disease. They provide insight into what it means for their - until then active - lives and paint an honest picture of what they themselves knew about these conditions when they were not yet ill: little to nothing. Just like many colleagues now.

I think it would already be helpful if this documentary were shown in the medical curriculum, general practitioner training and training for medical specialists. My advice: watch, be silent, let it sink in. And then get back to work in a different way. Not directly with the solution to this problem, but with more proximity.

Misunderstood diseases should not translate into a lack of understanding of the situation in which patients with such diseases find themselves.

Thanks to Anil van der Zee for making and sharing. And thanks to Gitte Boumeester, Jolien Plantinga, Peter Hulshof, Mark Vink and Laura de Vries, PhD for sharing their experiences."

If you haven't watched the film check it out here:

https://www.youtube.com/watch?v=J0ywwLIfH_w

#pwme #myalgicE #millionsmissing"

Good to see things are moving. A bit...

 

Seen it yesterday. Was happy that one patient mentioned having an MRI scan that proved they had brain inflammation.

 

Have now watched the film. It's a superb piece of work, and very moving—thank you, @Grigor, for all your work on it, and thank you to everyone involved.

Let's hope things really do get better for us all.

 

As I said before. I'm planning to post the transcript on my website, but my brain needs to recover first. Of course you can post it here if need be.

 

Super kind of you. Hoping with you!

 

I copied the transcript—attached here.

 

Thank you for this, I have saved it for myself to watch later. Really appreciated.

 

I am watching this in small chunks. It's fantastic. The people were so well chosen.

Thank you so much.

 

Thank you. Glad you liked it. I agree they're great speakers. Not easy considering the cognitive dysfunction.

 

Italian and Spanish subtitles have been added.

 

I've watched it now too.

It's so well done, and it shows very starkly not only the personal impact but the sheer waste of human potential. And the fact that doctors' testimony is viewed by society as being as unreliable as anyone else's; they're stripped not only of their careers, but also of their professional credibility and standing.

I also really liked the format, which makes the film very amenable to being watched chapter-by-chapter. Also, the screens that separate each chapter—which have dark backgrounds and large text, and are held for several seconds—can easily be located by just scrolling back and forth along the time line.

A big thank you to everyone involved, it must have taken a huge amount of work and a lot of determination. Thanks in particular to the doctors for telling their stories and allowing us to see their vulnerability.

 

Really well done. Congrats @Grigor and to the well-spoken docs who shared their precious energy to participate and all others who made the movie possible.

Yes, @Kitty the loss of human potential for these five docs and the millions of other patients just makes me sick to my stomach. Especially the line where one of the doctors wonders how far along with treatments we could be now if medicine had taken this illness seriously from the beginning.

It’s really sad for the field of medicine that doctors have to be “promoted to patient” to get the perspective that ME is real and serious.

 

…I also couldn’t help wondering if any of the docs in the movie would like to join the discussion on S4ME. I suppose some might be here already…

 

Thanks @Kitty and @wingate. I'm glad you like it and that it's overall well received.

I'll ask them to join for sure.