Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

There's also a broken link to it in the Paediatric CFS clinic's page: http://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp

 

According to this playlist it is now a 'private video': https://www.youtube.com/playlist?list=PLz9sRi8Qg5wDPdB-eEOuvlUlWHtOsZtgl

 

I wonder why this would be?

 

Is this in any way linked to the current investigation?

Is this simply revisionist ? A new central sensitisation approach is being launched that may require some tweaking?

Or, could things actually be changing......

 

I wondered this. It seems unlikely because the link between her talk and the studies under investigation would seem tenuous.

 

I am amazed that it was allowed to remain up for so long. I never understood how someone who might wish to be called upon to act as an expert witness could be seen to be publicly making such demonstrably incorrect assertions about the Sunday Times image.

 

I'm hoping that somebody has kept a copy. Be nice to put it up again?

 

I think we need to set up some resources to create backup copes of materials
The internet archive only does a percentage of mainstream websites and does not do vids at all

 

no thats Esther Crawley Evenbrite Better Science throBetter Data Oct 2017
the one being talked about is Disrupting Your View of ME Esther Crawley TEDxBristol
I have a copy.

 

We do. Reposting someone else's material without their permission would probably not be a sensible use of it.

 

I assumed it was TEDx taking action because their are so many problems with Crawley's talk, and it clearly breaches their guidelines.

Some other TEDx talk have been made 'unlisted' and have had a note explaining problems with them added, eg:

https://www.youtube.com/watch?v=FV5pOO5Mt64

I wonder if TEDx wanted to do that with Crawley's but she/Bristol refused to allow any note and so it was made private instead? Maybe TEDx were concerned about the way Bristol uni were continuing to promote the video to children even after clear problems had been identified?

There are so many things that could have worried them that it's hard to know what was going on.

 

I downloaded it last year.

 

I took a look at my hard drive, and it appears I have an unofficial recording on it. Sound goes a bit squiffy for a couple of minutes in the middle, but with a bit of effort you can make out what she's saying. Sound and vision a bit off kilter too.

I don't know who recorded it, so presumably we couldn't put it up here as don't even know the copyright owner. Ah well.

Trying to send it to myself to ensure when laptop dies I still have it... Gmail tells me that since "Your file is larger than 25 MB. It will be sent as a Google Drive link."