Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

chrisb said:
To understand the significance of this it would be interesting to know how many of their videos suffer the same fate. Is this likely to be an exceptional event?
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Probably - promotion of the talks and TED is the whole point of putting them on Youtube. It might be hard to find them (which is the point) but a very short external list included:




All three seem to have some basic nonsense in their contents.

The head transplantation one had this note added:
NOTE FROM TED: We've flagged this talk, which was filmed at an independent TEDx event, because it appears to fall outside TEDx's curatorial guidelines. This talk is best viewed as a speculative what-if scenario, and with awareness that the 2017 surgeries performed by Dr. Canavero on human cadavers have raised practical and ethical concerns in the scientific community. The talk contains statements about nerve regeneration that are questioned by many neuroscientists. The guidelines we give our TEDx organizers are described in more detail here: http://storage.ted.com/tedx/manuals/t...
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So I think that answers the question of where TEDx draws the line - mutilation of corpses in the pursuit of obvious insanity. And even then, the video stays up :-P
 
chrisb said:
Well that's interesting. Someone seems to be concerned about damage to the brand, but who, and which brand?
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TEDx and TEDxBristol don't seem to be saying anything. But Esther Crawley's talk is still listed, described, and linked with the others on TEDxBristol's site, so maybe it's TEDx who decided to hide it under the bed?

Amusingly, Crawley's talk is far less popular (down votes versus up votes) than the other "Unlisted" TEDx talks that I could find. She even has one more down votes than the head transplant video (210 versus 209), and far fewer upvotes (65 versus 1,000).

But I suppose it's cool that we now have an objective benchmark for BPS spiels :p
 
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Took the Note from TED about the head transplantation from @Valentijn's post above (Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME") and edited it slightly. This is the note I'd like to see next to EC's talk :):
NOTE FROM TED: We've flagged this talk, which was filmed at an independent TEDx event, because it appears to fall outside TEDx's curatorial guidelines. This talk is best viewed as a speculative what-if scenario, and with awareness that the 2017 SMILE trial by Dr. Crawley on children has raised practical and ethical concerns in the scientific community. The talk contains statements about rehabilitation that are questioned by many neuroscientists. The guidelines we give our TEDx organizers are described in more detail here: http://storage.ted.com/tedx/manuals/t...
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Joh said:
We've flagged this talk...
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I thought that they'd actually added that when I saw your post.

Link to the video here:

What it currently says:

TEDx Talks
Published on Dec 19, 2017
Chronic Fatigue Syndrome/ME is a cruel and complex illness that causes chaos to peoples lives. It’s estimated that it affects around 1% of the adult population (approx 17 million people worldwide) and 1% of teenagers – that’s potentially 10-15 children in every UK secondary school.

But despite its prevailance, relatively little is known about its cause, and there is no current cure for CFS/ME. In this emotive and frank talk, Esther Crawley argues for better funding, better research, and crucially, better awareness of the challenges of researching, diagnosing and treating this complicated and often misunderstood illness.

Esther Crawley is a Professor of Child Health at the University of Bristol, and a Consultant Paediatrician at the Royal United Hospital Bath NHS Foundation.

This is the story of her personal journey as a practitioner, the bravery of the children she works with, and the threats, cyber-stalking and defamation that Esther and her fellow researchers and clinicians have encountered when attempting to work in this important area of medicine.

Esther says, “I choose to do the research because the children who come to see me in clinic deserve better treatments. The children who don’t get a diagnosis deserve help. We need to disrupt views of this illness and cast away the prejudices about it, because the truth is, we know so little about it.”

This talk is from TEDxBristol 2017: Dare To Disrupt. In a world of constant change and uncertainty, these are the ‘positive disruptors’ ripping up the rule book to challenge received wisdom, demand better, and transform seemingly insurmountable problems into break-through possibilities and new beginnings.

From making a big splash on single-use plastics, to a global campaign to end unwanted hair-touching, or a revolutionary approach to combining robotics with human creativity, we hope you’ll enjoy and feel inspired by these talks.

Watch all our talks here https://tedxbristol.com/talks

Our talks were produced, filmed and edited by a brilliant team of talented volunteers and pro-bono partners.

This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at http://ted.com/tedx

Esther Crawley is a Professor of Child Health at the University of Bristol, and a Consultant Paediatrician at the Royal United Hospital Bath NHS Foundation. She specialises in researching and developing treatments for children suffering from CFS/ME, an illness that affects 100,000 children in the UK alone. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx

Category
Nonprofits & Activism
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Joh said:
We've flagged this talk, which was filmed at an independent TEDx event, because it appears to fall outside TEDx's curatorial guidelines. This talk is best viewed as a speculative what-if scenario, and with awareness that the 2017 SMILE trial by Dr. Crawley on children has raised practical and ethical concerns in the scientific community. The talk contains statements about rehabilitation that are questioned by many neuroscientists. The guidelines we give our TEDx organizers are described in more detail here: http://storage.ted.com/tedx/manuals/t..
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What exactly is this statement, where is it from and when?
 
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