Hi All, It's be really interested in what people's thoughts are for the most accurate fatigue scales that can be used in research studies? Ones that also give representation to PEM over time. The CFQ (chalder fatigue scale/ questionnaire) is often used but has serious limitations. The DePaul Questionnaire does seem to be more accurate for PEM. Thanks in advance for ideas and suggestions
if you click on the different tags for this thread you will find many threads discussing various measurement scales including the ones you mention.
Hi Lapis, welcome. Well, the first question would be what is wanted to be measured? As far as I can recall, we have never tried to compare the various scales that exist but if the desire is to measure the level of reduced functioning, or otherwise, in pwME then my expectation would be that they would all be lacking to one extent or another. To my knowledge there is no scale that does this. Issues with the CFQ are laid out here, S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire And here are a couple of discussion threads that discuss the DSQ. The Development of the DePaul Symptom Questionnaire: Original, Expanded, Brief, and Pediatric Versions, 2018, Jason The DePaul Symptom Questionnaire-2: a validation study, 2019, Sunnquist et al Hope that is of some use.
I am looking for articles discussing the use of the Chalder instrument. I've found this public comment submission on Chalder to NIH's ME/CFS CDE initiative. But I thought I remembered a publication on it as well. If so, does anyone have a link to that? Or am I misremembering that?