Follow-up actions from 21 June Westminster debate - thank the MPs, donate to UK #MEAction

I wonder what the probability of the one reviewer who was out of line being known to us is.

EDIT would one not expect the chief executive to have ensured a fair and proper procedure, or have I missed something?
 
Sasha said:
From Hansard, the list of speakers is:

  • Carol Monaghan (Glasgow North West) (SNP)
  • Mr Jim Cunningham (Coventry South) (Lab)
  • Mark Tami (Alyn and Deeside) (Lab)
  • Jeremy Quin (Horsham) (Con)
  • Robert Courts (Witney) (Con)
  • Patrick Grady (Glasgow North) (SNP)
  • Liz McInnes (Heywood and Middleton) (Lab)
  • Andrew Selous (South West Bedfordshire) (Con)
  • Michelle Donelan (Chippenham) (Con)
  • Sir Henry Bellingham (North West Norfolk) (Con)
  • Scott Mann (North Cornwall) (Con)
  • Sir Edward Davey (Kingston and Surbiton) (LD)
  • Michael Tomlinson (Mid Dorset and North Poole) (Con)
  • Dr David Drew (Stroud) (Lab/Co-op)
  • Alex Sobel (Leeds North West) (Lab/Co-op)
  • Alex Chalk (Cheltenham) (Con)
  • Jim Shannon (Strangford) (DUP)
  • Kate Green (Stretford and Urmston) (Lab)
  • Kerry McCarthy (Bristol East) (Lab)
  • Ben Lake (Ceredigion) (PC)
  • Stephen Kerr (Stirling) (Con)
  • Kelvin Hopkins (Luton North) (Ind)
  • Liz McInnes (Heywood and Middleton) (Lab)
  • Stephen Pound (Ealing North) (Lab)
  • Luke Pollard (Plymouth, Sutton and Devonport) (Lab/Co-op)
  • Liz Twist (Blaydon) (Lab)
  • Sir Desmond Swayne (New Forest West) (Con)
  • Gavin Newlands (Paisley and Renfrewshire North) (SNP)
  • Mrs Sharon Hodgson (Washington and Sunderland West) (Lab)
There were also:

  • The Parliamentary Under-Secretary of State for Health and Social Care (Steve Brine)
  • Andrew Rosindell (in the Chair)
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Think these are just the ones who actually spoke.
 
Barry said:
I'm afraid I'm just p'd off with my Tory-toe-the-line-do-what's-best-for-my-career-prospects MP. I briefly emailed him asking for him to attend the debate, and I got the standard-letter claptrap back. So I replied simply by pasting the complete transcription of Sir Edward Davey's speech, as per @strategist's post https://www.s4me.info/threads/uk-21...red-by-carol-monaghan.4468/page-14#post-84032, including the Hansard link.
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Would you consider making your views known to others?

Every MP has a constituency party/branch/whatever and opposition parties, who can be engaged in an attempt to get some movement in the right direction. It might also be worth your while to contact local councillors about the general situation. Letters published in local papers sometimes do the trick too.
 
Barry said:
I'm afraid I'm just p'd off with my Tory-toe-the-line-do-what's-best-for-my-career-prospects MP.
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Ours is the same. I am thinking of writing to thank Carol, and copy it to my MP, along with the letter to the minister. Then a group of us were thinking of making an appointment to see her. I doubt if it will do much good, but I'm sure the balance is tipping in our favour, so it's time for everyone to start putting on the pressure in whatever way they can.
 
Graham said:
Ours is the same. I am thinking of writing to thank Carol, and copy it to my MP, along with the letter to the minister. Then a group of us were thinking of making an appointment to see her. I doubt if it will do much good, but I'm sure the balance is tipping in our favour, so it's time for everyone to start putting on the pressure in whatever way they can.
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Yep. Cannot remember which MP it was to now, a year or so back, but I sent a thank you letter to them for their good work, and copied my MP in on it.

In this case, it seemed to me just copying the transcription of Sir Edward Davey's speech and saying nothing else would say quite a lot, being as it was a very good speech, it was from the debate my MP should have attended, and it demolished the bullshit in my MP's standard letter to me. But I'm sure he has a hide like a rhinoceros.
 
Graham said:
Ours is the same. I am thinking of writing to thank Carol, and copy it to my MP, along with the letter to the minister. Then a group of us were thinking of making an appointment to see her. I doubt if it will do much good, but I'm sure the balance is tipping in our favour, so it's time for everyone to start putting on the pressure in whatever way they can.
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yes @Graham unfortunately i think it is going to require people to do the face to face meetings to make a dent in the awareness of MPs who have not responded, or have given disinterested replies to letters, emails they've been sent about Unrest EDMs etc, and if there is a group of you all the better.
I am thinking about how best to do my meeting with MP when I get it. I can suggest watching Voices from the Shadows but in order to make it about people in this constituency and therefore my MPs responsibility I was thinking of asking in the local ME support group if someone who has severe ME would be interested in taking part with me in the discussion through facetime/whatsapp or similar video calling. Or maybe I could ask if they can record a short video? something like that to make it more about people with severe ME not just me who can get out when needed.
 
Graham said:
Ours is the same. I am thinking of writing to thank Carol, and copy it to my MP, along with the letter to the minister. Then a group of us were thinking of making an appointment to see her. I doubt if it will do much good, but I'm sure the balance is tipping in our favour, so it's time for everyone to start putting on the pressure in whatever way they can.
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Trouble is they dont see the severely affected who can't visit so showing them a (short) video of someone severely affected if you are able to visit could really help.
 
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