Fragrance sensitivity

Looking for good suggestions on how to get the fragrances etc out. I end up re-washing 4 or 5 times, one time with white vinegar. But even all this doesnt fully get rid of it.

Have you tried just hanging things up outdoors to air for a few days or perhaps even longer? I always do that with new clothes before I wash them and find it works quite well.
 
Have you tried just hanging things up outdoors to air for a few days or perhaps even longer? I always do that with new clothes before I wash them and find it works quite well.
I have sometimes left things on a washing line for over a year, after soaking in vinegar or bicarbonate, sometimes both in sequence. They have often lost their colour, and still smelt. I have sometimes had to give up. But they are not new items but things bought from charity shops.
 
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I have sometimes left things on a washing line for over a year, after soaking in vinegar or bicarbonate, sometimes both in sequence. They have often lost their colour. and still smelt. I have sometimes had to give up. But they are not new items but things bought from charity shops.

Yes, it makes shopping from charity shops nigh on impossible.
 
Looking for good suggestions on how to get the fragrances etc out. I end up re-washing 4 or 5 times, one time with white vinegar. But even all this doesnt fully get rid of it.

Manufacturers add sticking chemicals to the fragrances which make them bond closely with cloth. The fragrances themselves are made from the sweet smelling part of petroleum—bad for everyone. This part includes benzene, a known carcinogen, among other chemicals. In the U S A any product labelled a fragrance gets a free pass from the potential testing and scrutiny of the govt—afterall, we all “know” that fragrances are harmless, pleasant things, right?
Soak in a solution of warm water and soda crystals for a few hours. Wash as usual in 30 degree wash. Repeat if necessary.

I mainly came to this thread because, although I am sensitive to some perfumes ie they give me migraines etc.

I also get allergic skin reactions. But what I have recently discovered rather dramatically is that the major allergen that I have become sensitised to, possibly over years, are the preservatives
  • Methylisothiazolinone (MIT / MI)
  • Methylchloroisothiazolinone (CMIT / MCI)
  • Benzisothiazolinone (BIT)

They are in nearly all liquid laundry detergents (and pods), washing up liquids, and many other cleaning products such as bath cleaners and glass cleaners.
Up until 2017 (I think) they were also in many other products.
There is loads of info on this. that's maybe not the best site to link to as people need to be aware that what they call 'safe alternatives' ie
  • sodium benzoate
  • phenoxyethanol
are not if you have sensitive skin.

I have spent several months now recovering from a severe allergic contact dermatitis and also eliminating all MIT/BIT products and hopefully residue.
Laundry POWDERs generally do not need or contain these particular preservatives.

The safest things I have now are :

Laundry cleaner :
I am currently using Ecover Zero non-bio POWDER (expensive and only available online), but have purchased some M&S non-bio Laundry Powder which is also fragrance free (available from Ocado) and apparently even better for sensitive skin.

Dri Pak liquid soap (brilliant stuff), non-diluted as heavy cleaner (eg baths), diluted with water for surface cleaning, washing up.
I also bought some Dri Pak soda crystals and add one tbsp to the laundry. They also have various cleaning uses, just need to be careful as they are very alkaline.

Something that is not widely known or understood is that 'sensitive' or 'for sensitive skin' on any product is purely marketing jargon. It means nothing. At best, with regards laundry detergent, it might indicate no enzymes (ie non-bio powder, but not necessarily non-bio liquid) but this doesn't make it safe for sensitive skin.
The term “non‑bio” only means no protease as the primary cleaning system, not “no enzymes at all”. Enzymes are highly sensitising.


WARNING: ECOVER Products
These may be 'better for the environment' but not necessarily good for sensitive skin.

ECOVER non-bio laundry liquid (contains amongst other things fragrance and SLS, and other known potential allergens)

not to be confused with

ECOVER ZERO non-bio sensitive laundry liquid

they've changed the formula and it no longer contains preservatives
(previously had phenoxyethanol)


BUT Contains:
Aqua, Sodium lauryl sulfate, Laureth-7, Alcohol denat., Potassium oleate, Sodium citrate, Tetrasodium glutamate diacetate, Bio poly ethyleneglycol propyleneglycol oligo ester, Citric acid, Sodium hydroxide

SLS is a well known potential irritant.

From what I have learnt MIT/BIT and the other similar preservatives are insidious, in loads of products and can lurk in residues in fabrics for ages. Once you are sensitised there is no safe level. They are even in some paints, even vapour exposure from say cleaning sprays Any exposure can trigger dermatitis.

The tricky thing is reactions are delayed.

I hope this might help someone. Please ask if any questions. I've spent ages researching.

Just as a note to anyone trying to find out exact ingredients for any product there are Safety Data sheets which companies have to let you have if you request them and these will have all potential hazards and usually a full proper list of ingredients (not the very vague and incomplete ones on retailers websites).

eta:
from 2013
https://www.calmandclear.co.uk/ingredients-methylisothiazolinone-and-methylchloroisothiazolinone/
 
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I find the best washing-up liquid to be Bio-D.


They also do laundry products and other cleaning products.

I use soap nuts for laundry, although some people may not find them sufficient to remove stains.

From experience, I think that the best way to avoid products with hard-to-remove perfume chemicals is to buy natural products, e.g. cotton. If they have been contaminated with perfume they usually lose it on the first wash.
 
I find the best washing-up liquid to be Bio-D.


They also do laundry products and other cleaning products.

I use soap nuts for laundry, although some people may not find them sufficient to remove stains.

From experience, I think that the best way to avoid products with hard-to-remove perfume chemicals is to buy natural products, e.g. cotton. If they have been contaminated with perfume they usually lose it on the first wash.
Yes I find Bio D prodcts very good too. And I can manage Faith in Nature soaps and shampoos. Waitrose do a cheap basic fragrance free soap
 
I had not looked at this thread before. I think it may be important to separate sensitivity to fragrance from chemical reactions to substances that may come in fragrant preparations but which may not themselves have any smell. It seems to me likely that people with ME/CFS are sensitive to fragrances, as fragrances, just like light or sound, and in this case the effect will be through the smell itself acting on sensory receptors in the nose. That might trigger migraine, for instance.

That needs to be separated from allergies to preservatives in washing powders and suchlike, that also happen to include fragrances. Allergies would explain rashes or hay fever symptoms.
 
I had not looked at this thread before. I think it may be important to separate sensitivity to fragrance from chemical reactions to substances that may come in fragrant preparations but which may not themselves have any smell. It seems to me likely that people with ME/CFS are sensitive to fragrances, as fragrances, just like light or sound, and in this case the effect will be through the smell itself acting on sensory receptors in the nose. That might trigger migraine, for instance.

That needs to be separated from allergies to preservatives in washing powders and suchlike, that also happen to include fragrances. Allergies would explain rashes or hay fever symptoms.
The thing is, for a long time I assumed my problem was with the fragrance in various products because I do have 'sensory' problems with strong chemical perfumes. But before ME I used to wear perfume regularly and use scented soap without any problems sensory or otherwise.

I appreciate this maybe should be on a different thread about allergies but
I was unaware of the whole 'sensitising process' with potential allergens. So things that I have used for years suddenly cause allergic reactions. Relatively minor at first but suddenly severe. I wanted to draw attention to the fact that it might not in fact be a fragrance causing the problem.

 
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The thing is, for a long time I assumed my problem was with the fragrance in various products because I do have 'sensory' problems with strong chemical perfumes. But before ME I used to wear perfume regularly and use scented soap without any problems sensory or otherwise.

Which would be compatible with the problem with fragranes being part of the ME/CFS. If olfactomedin genes are linked to ME/CFS that may be not so surprising.

I wanted to draw attention to the fact that it might not in fact be a fragrance causing the problem.

Which sounds right. Allergic reactions almost certainly have no particular correlation to having a smell. So there may be two different problems.
 
Soak in a solution of warm water and soda crystals for a few hours. Wash as usual in 30 degree wash. Repeat if necessary.

I mainly came to this thread because, although I am sensitive to some perfumes ie they give me migraines etc.

I also get allergic skin reactions. But what I have recently discovered rather dramatically is that the major allergen that I have become sensitised to, possibly over years, are the preservatives
  • Methylisothiazolinone (MIT / MI)
  • Methylchloroisothiazolinone (CMIT / MCI)
  • Benzisothiazolinone (BIT)

They are in nearly all liquid laundry detergents (and pods), washing up liquids, and many other cleaning products such as bath cleaners and glass cleaners.
Up until 2017 (I think) they were also in many other products.
There is loads of info on this. that's maybe not the best site to link to as people need to be aware that what they call 'safe alternatives' ie
  • sodium benzoate
  • phenoxyethanol
are not if you have sensitive skin.

I have spent several months now recovering from a severe allergic contact dermatitis and also eliminating all MIT/BIT products and hopefully residue.
Laundry POWDERs generally do not need or contain these particular preservatives.

The safest things I have now are :

Laundry cleaner :
I am currently using Ecover Zero non-bio POWDER (expensive and only available online), but have purchased some M&S non-bio Laundry Powder which is also fragrance free (available from Ocado) and apparently even better for sensitive skin.

Dri Pak liquid soap (brilliant stuff), non-diluted as heavy cleaner (eg baths), diluted with water for surface cleaning, washing up.
I also bought some Dri Pak soda crystals and add one tbsp to the laundry. They also have various cleaning uses, just need to be careful as they are very alkaline.

Something that is not widely known or understood is that 'sensitive' or 'for sensitive skin' on any product is purely marketing jargon. It means nothing. At best, with regards laundry detergent, it might indicate no enzymes (ie non-bio powder, but not necessarily non-bio liquid) but this doesn't make it safe for sensitive skin.
The term “non‑bio” only means no protease as the primary cleaning system, not “no enzymes at all”. Enzymes are highly sensitising.


WARNING: ECOVER Products
These may be 'better for the environment' but not necessarily good for sensitive skin.

ECOVER non-bio laundry liquid (contains amongst other things fragrance and SLS, and other known potential allergens)

not to be confused with

ECOVER ZERO non-bio sensitive laundry liquid

they've changed the formula and it no longer contains preservatives
(previously had phenoxyethanol)


BUT Contains:
Aqua, Sodium lauryl sulfate, Laureth-7, Alcohol denat., Potassium oleate, Sodium citrate, Tetrasodium glutamate diacetate, Bio poly ethyleneglycol propyleneglycol oligo ester, Citric acid, Sodium hydroxide

SLS is a well known potential irritant.

From what I have learnt MIT/BIT and the other similar preservatives are insidious, in loads of products and can lurk in residues in fabrics for ages. Once you are sensitised there is no safe level. They are even in some paints, even vapour exposure from say cleaning sprays Any exposure can trigger dermatitis.

The tricky thing is reactions are delayed.

I hope this might help someone. Please ask if any questions. I've spent ages researching.

Just as a note to anyone trying to find out exact ingredients for any product there are Safety Data sheets which companies have to let you have if you request them and these will have all potential hazards and usually a full proper list of ingredients (not the very vague and incomplete ones on retailers websites).

Looking for MI-free products?​

A very low level of methylisothiazolinone is still permitted for use in rinse-off products; this very low level is generally well tolerated.
there should be a caveat because a) this is how sensitisation works ie regular low exposure. and b) once sensitised to an allergen, NO amount is 'safe'.
 
Soak in a solution of warm water and soda crystals for a few hours. Wash as usual in 30 degree wash. Repeat if necessary.

I mainly came to this thread because, although I am sensitive to some perfumes ie they give me migraines etc.

I also get allergic skin reactions. But what I have recently discovered rather dramatically is that the major allergen that I have become sensitised to, possibly over years, are the preservatives
  • Methylisothiazolinone (MIT / MI)
  • Methylchloroisothiazolinone (CMIT / MCI)
  • Benzisothiazolinone (BIT)

They are in nearly all liquid laundry detergents (and pods), washing up liquids, and many other cleaning products such as bath cleaners and glass cleaners.
Up until 2017 (I think) they were also in many other products.
There is loads of info on this. that's maybe not the best site to link to as people need to be aware that what they call 'safe alternatives' ie
  • sodium benzoate
  • phenoxyethanol
are not if you have sensitive skin.

I have spent several months now recovering from a severe allergic contact dermatitis and also eliminating all MIT/BIT products and hopefully residue.
Laundry POWDERs generally do not need or contain these particular preservatives.

The safest things I have now are :

Laundry cleaner :
I am currently using Ecover Zero non-bio POWDER (expensive and only available online), but have purchased some M&S non-bio Laundry Powder which is also fragrance free (available from Ocado) and apparently even better for sensitive skin.

Dri Pak liquid soap (brilliant stuff), non-diluted as heavy cleaner (eg baths), diluted with water for surface cleaning, washing up.
I also bought some Dri Pak soda crystals and add one tbsp to the laundry. They also have various cleaning uses, just need to be careful as they are very alkaline.

Something that is not widely known or understood is that 'sensitive' or 'for sensitive skin' on any product is purely marketing jargon. It means nothing. At best, with regards laundry detergent, it might indicate no enzymes (ie non-bio powder, but not necessarily non-bio liquid) but this doesn't make it safe for sensitive skin.
The term “non‑bio” only means no protease as the primary cleaning system, not “no enzymes at all”. Enzymes are highly sensitising.


WARNING: ECOVER Products
These may be 'better for the environment' but not necessarily good for sensitive skin.

ECOVER non-bio laundry liquid (contains amongst other things fragrance and SLS, and other known potential allergens)

not to be confused with

ECOVER ZERO non-bio sensitive laundry liquid

they've changed the formula and it no longer contains preservatives
(previously had phenoxyethanol)


BUT Contains:
Aqua, Sodium lauryl sulfate, Laureth-7, Alcohol denat., Potassium oleate, Sodium citrate, Tetrasodium glutamate diacetate, Bio poly ethyleneglycol propyleneglycol oligo ester, Citric acid, Sodium hydroxide

SLS is a well known potential irritant.

From what I have learnt MIT/BIT and the other similar preservatives are insidious, in loads of products and can lurk in residues in fabrics for ages. Once you are sensitised there is no safe level. They are even in some paints, even vapour exposure from say cleaning sprays Any exposure can trigger dermatitis.

The tricky thing is reactions are delayed.

I hope this might help someone. Please ask if any questions. I've spent ages researching.

Just as a note to anyone trying to find out exact ingredients for any product there are Safety Data sheets which companies have to let you have if you request them and these will have all potential hazards and usually a full proper list of ingredients (not the very vague and incomplete ones on retailers websites).

eta:
from 2013
https://www.calmandclear.co.uk/ingredients-methylisothiazolinone-and-methylchloroisothiazolinone/
I just came across this thread. I react to Isothiazolinones too (methylisothiazolinone, octylisothiazolinone, etc). My reactions are systemic, mast cell activation symptoms, especially to airborne MI from decorating paints/products and cleaning products, rather than the more common dermatological ones. I just wanted to mention that isothiazolinones are not always mentioned on safety data sheets. I’ve found this from experience. If in any doubt, the phrase to look for is ‘May cause allergic skin reaction’. This often hides the fact that the product, especially things such as house renovating materials, including paints, does contain MI. Always best to contact the manufacturer for confirmation. Fortunately (or unfortunately) for me, my reactions to isothiazolinones are so strong that I know as soon as the tin/packaging is opened whether the product contains them. Leather is often treated with octylisothiazolinone. I only need to hold a handbag, or put my foot in a shoe, to know.

If anyone with MCAS or ME reacts to seemingly random products and is unable to ascertain what exactly they’re reacting to, methylisothiazolinone (aka MI, MIT, Kathon), Benzisothiazolinone (BIT) or octylisothiazolinone, might be good starting points, as allergies to these chemicals are becoming increasingly prevalent. There are some good MI allergy groups on Facebook with helpful information.
 

Warning to consumers as more than a third of ‘hypoallergenic’ products feature common allergens​

More than a third of personal care products marked as hypoallergenic on major online retailers have been found to contain common skin allergens, according to research being presented at the British Association of Dermatologists Annual Meeting in Liverpool (27th-29th June 2023).
“Our research suggests that some brands understate or downplay what constitutes a hypoallergenic product. There are various regulations governing marketing claims in the UK, however, many terms used to market personal care products aren’t clearly defined. Given the huge market for products suitable for sensitive skin, there is every incentive to stretch these terms to their limit. Clearer regulation or better enforcement of the existing rules is needed.
It is estimated that a fifth of the UK population may have allergic skin reactions to common environmental allergens. The percentage of people who report having sensitive skin is even higher, with one survey putting this at 71% of the population. As such, there is a big market for hypoallergenic products.
The most frequently encountered allergens were cetearyl alcohol and paraben mix, found in 42 (20%) and 37 (18%) of products, respectively. Other BSCA baseline series allergens identified included 2-bromo-2-nitropropane-1,3-diol, lanolin, decyl glucoside, diazolidinyl urea, methylisothiazolinone, limonene and linalool.
While there are various regulations relating to marketing claims made by cosmetic products there is no official standard for what constitutes a hypoallergenic product in the UK.

eta: other names this chemical goes by include
Methyl Isothiazolinones + methylchloro Isothiasolinone does go under various names FYI :2-Methyl-4-isothiazolin-3-one.
5-Chloro-2-methyl-4-isothiazolin-3-one.
Acticide
Algucid
Amerstat 250
Euxyl K 100
Fennosan IT 21
Grotan TK2
Kathon
Kathon CG
Mergal K7
Metatin GT
Methylchloroisothiazolinone
Methylisothiazolinone (MI)
Mitco CC 32 L1780231117279.png

eta: these harmful preservatives cannot be present in a product that claims :
  • no artificial preservatives
  • no synthetic additives
  • no artificial colours or fragrances

eta: what to be careful of. These preservatives are in nearly all liquid detergents. But many detergents call themselves 'soaps' eg pump bottle 'hand soap' is not soap. It must contain MI/MCI/BIT unless it uses phenoxyethanol or a similar alternative.

see also:https://allernote.com/learn/ingredients/methylisothiazolinone

useful site for finding MI free products: https://mi-free.com/about/
 
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I had a close call recently, a friend sent me flowers for my birthday.............they came with the base of the stems in a little bag of gel. I wasn't wearing gloves when taking them out, then spotted it. I'd only recently read that these damn preservatives are in those flower foods/gels, apparently it's a leading cause of ACD in florists. Ugh.
 
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