Fundraising for ME/CFS research - opportunities, problems

I have just remembered that ME Association fund the UK ME/CFS biobank running costs of £80,000 per year; the samples have been used by researchers around the world.

Also to be thorough, Action for ME and the ME Research UK gave some initial money to the biobank, though the vast majority over the years has been from the ME Association along with some US NIH grant money and a smaller amount from other sources such as fundraising and the Irish ME/CFS Association.