IiMER International Conference Week London 2019

Discussion in 'ME/CFS research news' started by Sly Saint, Sep 26, 2018.

  1. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    I emailed them a few times. They have now decided to forego DVDs this year and make presentations available afterwards..they will have edits to make so cannot commit to a definite time line for when presentations will be available. I haven't been on their website.
     
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  2. Trish

    Trish Moderator Staff Member

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  3. Andy

    Andy Committee Member

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  4. NelliePledge

    NelliePledge Moderator Staff Member

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    How many U.K. based researchers and clinicians go to these conferences other than people from UEA?
     
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  5. MEMarge

    MEMarge Senior Member (Voting Rights)

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    I have heard Julia Newton (Newcastle) and Jo Cambridge with Fane Mensah give presentations in recent years. Chris Ponting was in the audience last year. Karl Morten says he has been for the last 3 years. Dr Bansal has also presented.

    I think these days some of the researchers go to the Colloqium, but not necessarily the public day, unless they are presenting.

    It certainly is a day when you come across loads of people you have heard about/read their papers.
     
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  6. Andy

    Andy Committee Member

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    I spoke to Luis Nacul there last year.
     
  7. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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    I assume that there is no livestream of the conference?

    Also if anyone from here is going to the conference, would really appreciate it if anyone could ask Dr. Fluge when he anticipates submitting the cyclophosphamide manuscript for review (or maybe it is under review?).

    Thank you.
     
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  8. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    Cyclophosphamide paper was supposed to be published in late 2017...its a long wait
     
    Last edited: May 24, 2019
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  10. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  12. rvallee

    rvallee Senior Member (Voting Rights)

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    My, it's almost as if Michael Sharpe and Simon Wessely are manipulative liars and researchers are not being chased out of the field. How odd. They must be very confused about things.

    Well, actually they kind of are chased out so in truth this is happening despite coordinated obstruction.

    It's slow but it's hard to deny that there is progress under way in rebuilding the research capacity that was destroyed by the invention of CFS. As long as we can prevent acts of sabotage aimed at defunding research we should see continuous increase and eventually an end to the current lethal and ruinous psychosocial paradigm. Fortunately we avoid much of it thanks to private funding.

    It will eventually be seen as an exciting field in which there is the capacity for the kind of once-in-a-lifetime major breakthrough that can change millions of lives. Genuine frontier medicine.
     
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  13. Marylib

    Marylib Established Member (Voting Rights)

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    Merged thread

    If anyone has time, energy or brain cells, there was a twitter feed from the Invest in ME conference in London. No summary available yet, but Ros Vallings has been doing one and is there now. If interested check the ANZMES website, as it will be posted there as soon as possible.

    https://twitter.com/Invest_in_ME
     
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  14. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  15. Kalliope

    Kalliope Senior Member (Voting Rights)

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  16. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    What the hell is the first grant.. Use of a rocking bed!? Pleeeease :rolleyes:
     
  17. lansbergen

    lansbergen Senior Member (Voting Rights)

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    Like rocking a baby?
     
  18. Trish

    Trish Moderator Staff Member

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    I think it's a daytime sleep study so the rocking is to help induce sleep. It would just make me seasick!
     
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  19. lansbergen

    lansbergen Senior Member (Voting Rights)

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    It would not have helped me when I was severe.
     
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  20. Andy

    Andy Committee Member

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