Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Londinium, Feb 2, 2018.

  1. Sean

    Sean Moderator Staff Member

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    We are well into cult territory with these clowns, and they show no signs of turning back.

    Throw in a couple unicorns farting fairy floss rainbows, and you got a deal!
     
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  2. Trish

    Trish Moderator Staff Member

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  3. Sarah

    Sarah Senior Member (Voting Rights)

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    Last edited: Jun 27, 2018
  4. Sarah

    Sarah Senior Member (Voting Rights)

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  5. Trish

    Trish Moderator Staff Member

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    Just tried it for places scattered around the country. The data quoted for most that have data included something called 'Reliable recovery rate' which seems to be in the range 45 to 55%, and 95 to 100% 'Patients recommend this service'.

    On those figures, however crap and unreliable and questionnaire based they may be, it's going to be impossible to put a stop to this 'service'.

    I guess at the moment people being sent to them have mild to moderate depression or anxiety and appreciate someone listening to them, and their doctors like having somewhere to refer them to. Maybe it is a valuable service for some of their clients, at least temporarily.
     
  6. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I think when the JHP volume comes out it will be clear just how rigged these figures are. And the fact that such figures are being banded about will add to the lack of credibility of the service. Shifting IAPT is a big job but I think it contains the seeds of its own destruction.
     
  7. NelliePledge

    NelliePledge Moderator Staff Member

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    I wonder whether some practitioners in the former NHS services are doing more of a counselling approach and whether people get one hour sessions

    I did it with a service run by the largest UK CBT provider there wasn’t much listening going on when I did IAPT CBT the sessions were 30 minutes every 2 weeks. Often I would get cut off because they needed to spend the time telling me what to do for next time which when I reported back would get cut off to talk about the next homework.

    Maybe if being told to go through these checklists makes you do thinking you’ve never done before about how you feel and what your priorities are it could be useful. But I don’t see how this format would really support people in working through and actually addressing their challenges.
     
    Last edited: Jun 27, 2018
  8. Sarah

    Sarah Senior Member (Voting Rights)

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    There's a serious problem with the Government mandating a recovery rate of 50 per cent for relevant disorders, mandating incentivised outcomes-based payment systems for providers, and then expecting service claims of "reliable
    recovery" rates approaching or exceeding that number to be taken even remotely seriously, all other substantive crisiticisms of IAPT and national reporting aside.
     
  9. Sarah

    Sarah Senior Member (Voting Rights)

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    Tying in with the HOME study, from the Technical Guidance for Refreshing Plans 2018/19 Annex B: Information on Quality Premium:

    "Proportion of people accessing IAPT services aged 65+; to increase to at least 50% of the proportion of adults aged 65+ in the local population or by at least 33%, whichever is greater in Year 1.

    "For Year 2, to increase to at least 70% of the proportion of adults aged 65+ in the local population, or where 70% has already been achieved or exceeded by the end of Year 1, to not decrease in Year 2."

    https://www.england.nhs.uk/publication/technical-guidance-annex-b-information-on-quality-premium/
     
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  10. NelliePledge

    NelliePledge Moderator Staff Member

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    IAPT for older people :banghead:
    no! spend the money on
    addressing isolation for people living on their own
    supporting older people who have caring responsibilities
     
  11. Sarah

    Sarah Senior Member (Voting Rights)

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    As you are answering questions on the forum today @Action for M.E., would you be able to confirm whether Action for ME has been a member or attended meetings of the Expert Advisory Group for the joint Work and Health Unit, and if so, whether it has raised any objection with the WHU that ME/CFS patients are being referred to IAPT services under which ME/CFS is categorised as medically unexplained symptoms, and that patients referred as such are categorised for national reporting purposes with ICD-10 F45.0 Somatization disorder?
     
  12. Sarah

    Sarah Senior Member (Voting Rights)

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    Event: Integrating IAPT Services for Long-Term Conditions and Medically-Unexplained Symptoms

    http://www.iapt-nnf.co.uk/Home/ViewEvent/92
     
    Last edited: Jul 10, 2018
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  13. Trish

    Trish Moderator Staff Member

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    So IAPT is not just about mild to moderate anxiety and depression that I understand it was originally for - literally improving access to psychological therapies already established for those conditions.

    Now they've added MUS. We know about that and need to fight it.

    But they are also adding other well understood and treated long term physical conditions - diabetes, cardiac and respiratory.

    I understood the direction care for these very common chronic conditions had taken quite successfully was to have specialist nurses based in GP practices who help patients manage and monitor their treatments. So what on earth are CBT therapists going to add that the nurses aren't already doing? They can't help them with monitoring and managing the conditions because they haven't a clue about the medical treatments prescribed for the conditions, so what's their role supposed to be?
     
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  14. Sarah

    Sarah Senior Member (Voting Rights)

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    IAPT-LTC is intended for people with anxiety or depression "in the context" of a LTC, and for people with MUS with no requirement for co-morbid anxiety or depression. The IAPT-LTC Full Implementation Guidance trots out the "two-thirds of people with LTCs have also have a mental health problem" line, citing Naylor C et al., Long-Term Conditions and Mental Health. The Cost of Co-morbidities. London: The King's Fund; 2012.

    The applicable NICE Guidelines for anxiety/depression in LTCs in IAPT-LTC are:

    • Depression in Adults with a Chronic Physical Health Problem: Recognition and Management (NICE clinical guideline 91)

    • Multimorbidity: Clinical Assessment and Management (NICE guideline 56)
     
  15. Sarah

    Sarah Senior Member (Voting Rights)

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    Though in reality, I'm not sure there's that much concern who is referred for what.

    From the IAPT LTC/MUS Pathfinder Evaluation Project Interim Report (2013)

     
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  16. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    To whom should we be directing our concerns about this new and devious plan for subjecting sick people to magical placebos in the name of treatment?
     
  17. Sarah

    Sarah Senior Member (Voting Rights)

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    IAPT certainly isn't new; generic IAPT was rolled out nationally in 2008, and the IAPT-LTC Pathfinder Project was rolled out in April 2012. IAPT-LTC is currently being rolled out nationally. (Although it is called IAPT-LTC, it actually encompasses both LTC and MUS referrals.)

    Others elsewhere on the forum have discussed contacting their MPs to discuss in what ways their MP can support ME in the wake of the recent Westminster Hall debate, so it may be that individuals planning to do this might want to consider addressing the fact that ME/CFS patients are being referred to IAPT under which programme the condition is categorised as MUS, if they feel that is something they want to address. Advocacy efforts can backfire, so I think it is down to the individual to weigh up the approach and recipient of any communication carefully. Just my tuppence worth.
     
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  18. Sarah

    Sarah Senior Member (Voting Rights)

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    Any possibility of a response to this, @Action for M.E.?
     
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  19. Action for M.E.

    Action for M.E. Established Member (Voting Rights)

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    Apologies for my delay in responding to this.

    Yes, we have been part of the Expert Advisory Group (EAG) for the joint Work and Health Unit. Our input was focused on sharing learning from our SEE M.E. project, which involved setting up a pilot service that offered specialist employment support (NOT talking therapies) to people with M.E. who self-referred, with the aim of supporting them to achieve the employment-related goals they set for themselves (eg. achieving their best possible exit from unsustainable employment, achieving more sustainable existing employment, successfully returning to their job after lengthy sickness absence, starting a new job, or starting volunteering or a training course).

    The EAG operates with a very clear focus on disability employment from and does not have any remit relating to IAPT or ICD classifications - as far as I know this was not discussed at meetings.

    I will highlight the links you have shared here with the Countess of Mar in advance of the next Forward ME meeting on 17 July, the serious issue of IAPT for M.E. being on the agenda. We are keen to see tangible actions agreed at the meeting to address concerns re IAPT being prescribed for M.E., as well as moves to reclassify M.E. as MUS.
     
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  20. Sarah

    Sarah Senior Member (Voting Rights)

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    Thank you, @Action for M.E., for your response.

    Action for ME will be aware of the Employment Adviser in IAPT pilots that have sought to embed Employment Advisers in IAPT services, and this in increasing numbers whilst flowing additional employment-related information about patients for IAPT national reporting. So even as you describe the remit, there is clear reason why the categorisation of ME/CFS patients as MUS for referral to IAPT is relevant to disability employment in the context of a WHU EAG's remit, and should have been raised.

    With regard to the SEE ME project, I strongly support the misgivings expressed by @Esther12 elsewhere on the forum, and am dismayed that Action for ME is feeding its putative "remarkable results" back to the WHU. I'm not even sure what a "best possible exit from unsustainable employment" means for a pwME. In addition to this thread, it may also be edifying to look at the thread on the Employment Adviser pilots in IAPT to better gauge how feedback such as that on the SEE M.E. project rationalises and supports IAPT Employment Adviser service implementation. Patients of any sort should not be referred by healthcare providers to DWP contracted service providers to receive employment advice. ME patients should not be being referred to IAPT to start with.

    https://www.s4me.info/threads/uk-iapt-employment-adviser-pilots-some-information-docs.3512/
    This is appreciated. The MUS thread on PR is also a good source of information on IAPT and MUS as they relate to ME/CFS. It's extremely unfortunate that Forward ME's Chair unilaterally dispensed with Suzy Chapman's input, given her knowledge as relates to MUS and ICD classificatory issues is unsurpassable.

    https://forums.phoenixrising.me/ind...ary-care-whats-happening-across-the-uk.48710/

    Any transparency Action for ME can provide in relation to its involvement with the WHU, particularly in respect of IAPT and ME patient referral to the same would I think be generally much appreciated going forward. Thank you again for responding.
     
    Last edited: Jul 10, 2018
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