IV IG: Intravenous immunoglobulin infusions

Which type of groups are you in ?
Seasoned ME patients ?

Would be interesting how you summarize their experience.

Personally, I know some patients that benefit / benefited and also some patients that have crashed from IVIG
From SCIG I haven’t heard any crash story as of yet.
……………

Currently wrt data - as far as I can recollect - there were a few (inconclusive) small ME patient IVIG trials quite some time ago, one recent on low dosage SCIG, and there is one trial for Long Covid coming up in the US.
And than there is anecdotal experiences and lowest quality of online survey data available.
I relapsed on SCIG. Haven’t gained back that function in two years since. Apparent treatment harms just don’t have the legs apparent improvements do.
 
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