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JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

Discussion in 'ME/CFS research' started by Kalliope, May 1, 2021.

  1. Barry

    Barry Senior Member (Voting Rights)

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    What are the similarities, if any, between GET and standard treatment for people genuinely deconditioned, especially not convinced they are deconditioned.
     
  2. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Not sure I follow. There isn't a particular treatment for people who deconditioned other than advising them that in the long term exercise is healthy so worth doing when they are up to it. If they are not convinced they are deconditioned then it may be uphill giving advice!
     
  3. Graham

    Graham Senior Member (Voting Rights)

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    Does "deconditioned" actually exist? Less fit than before certainly does: in my case that wouldn't take much proof. But before I had ME I was pretty fit and active. Many of my colleagues were less so. Is there a magic level at which they could be deemed to be deconditioned? Could I have been described as deconditioned because I counld have been fitter? Are all physically disabled people automatically deconditioned because they can't reach the same levels?

    I don't think "deconditioned" does exist, other than being less fit than before, which of course can occur with age, or quite simply, with a change in interests or employment. After a year on and off in hospital, I am certainly much less fit and have much less strength than I did. I am slowly improving. But who defines what my target fitness level should be? Is it only acceptable when I reach my physical peaK? If so, virtually everyone is deconditioned.

    And what about cognitive fitness? Do I need cogniotherapy?
     
    Shinygleamy, rainy, MEMarge and 16 others like this.
  4. Mij

    Mij Senior Member (Voting Rights)

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    I consider myself 'fit' if I can still lift my cast iron lid off of my Dutch oven.
     
  5. Barry

    Barry Senior Member (Voting Rights)

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    Maybe I'm wrong then. I though people could become severely deconditioned under some circumstance, such as when totally bedridden for a long time, or a long time in space etc. I thought even bone mass could deteriorate etc. Is it always possible to get back to full health unaided, for all people?
     
  6. dave30th

    dave30th Senior Member (Voting Rights)

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    I had two weeks of bronchitis 31 years ago when I was a robust 33-year-old. It took me two months not to be exhausted from anything. No one needed to tell me how to recover once I was told that a slow recovery was normal. Maybe for some people a program would be needed but I'm not sure why. I would guess that most people who are "deconditioned" after a viral illness and nothing more just do it in their own time.
     
  7. Sean

    Sean Moderator Staff Member

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    Interesting possibility.
     
    alktipping, Missense, Barry and 2 others like this.
  8. Barry

    Barry Senior Member (Voting Rights)

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    Isn't that what we all get here in this forum? :)
     
    MEMarge, alktipping, JemPD and 3 others like this.
  9. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    People can certainly get severely deconditioned but I don't know of any evidence that they need more than following their natural body signals as they get back to doing things.
     
  10. PhysiosforME

    PhysiosforME Senior Member (Voting Rights)

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  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  12. rvallee

    rvallee Senior Member (Voting Rights)

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    tmrw and alktipping like this.
  13. mango

    mango Senior Member (Voting Rights)

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    You can use Tor browser to get around that, if you'd like:

    https://www.torproject.org/download/
     
    alktipping, Mij, Andy and 3 others like this.
  14. Andy

    Andy Committee Member

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    Mithriel, Sean, geminiqry and 8 others like this.
  15. rvallee

    rvallee Senior Member (Voting Rights)

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    One of the best descriptions I have read so far. Short, accurate. Unrecognizable to BPS zealots.
     
    tmrw, Arnie Pye, geminiqry and 5 others like this.
  16. Hutan

    Hutan Moderator Staff Member

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    There are some great comments beneath David's latest piece. Here's one by Alida Miller:
    And jimells says something I think many of us would agree with:
     
    Mithriel, Art Vandelay, Sean and 13 others like this.
  17. Barry

    Barry Senior Member (Voting Rights)

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    Absolutely. It's spot on. I shared the FB post and drew attention to that comment.
     
  18. Kalliope

    Kalliope Senior Member (Voting Rights)

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