Keep a severe pwME from forced institutionalisation - petition

Peter T

Peter T

Senior Member (Voting Rights)
Please consider supporting this #MEACTION petition in support of a young Swedish ME sufferer being threatened with enforced psychiatric treatment.
#HelpHolgerNow: Please sign!
Keep a severe pwME from forced institutionalization
Holger, a person with severe myalgic encephalomyelitis living in Sweden, is fighting to receive appropriate and informed medical care from doctors and caretakers who understand his disease. Doctors who do not understand his condition, or believe him, are now threatening to force him into institutionalized psychiatric care against his will.

These doctors have dismissed his symptoms of severe ME – his inability to eat, speak or sit up – as pervasive refusal syndrome, meaning that he is either consciously, or subconsciously withdrawing from the world because of some trauma, real or imagined.

ME is a multi-systemic disease, causing dysfunction of the immune, neurological, and energy metabolism systems. ME has been recognised by the World Health Organisation (WHO) as a neurological disease since 1969. ME is highly debilitating, leaving 75 percent unable to work and 25 percent home or bed bound. Approximately one out of 20 people with ME are severely disabled and totally dependent on others for their basic needs.

Holger’s family have launched an urgent appeal to prevent this forced institutionalization, and we need your help. Add your name to this petition now.
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https://act.meaction.net/page/25125...fm5s3GNtGc5aQHLEwlgZ9YxzqHQAWmArucalj9vshU5Jc
 
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thanks for highlighting this truly awful abuse of power by so called medical professionals . i have signed and shared . perhaps what is truly needed is a change in law that halts this paternalistic and myopic view of the medical profession that they cannot possibly get anything wrong . ego seems to be the largest player in these abusive situations i am sure a jury would spot this type of narcissism very quickly .
 
FYI
The following was just sent to #Sweden to #HelpHolgerNow #HjälpHolgerNu, because #IgnoranceIsACrime. Send your own postcard cheaply via https://postcards.postnord.com/

"I write regarding Holger Klinterberg. Depriving liberty due to a physical disease based on prejudicially unscientific medical folklore will lead to criminal investigation eventually, once Sweden's healthcare system catches up. As confirmed by UK & US authorities, there is zero psychogenic component to ME/CFS. Links to trauma, thinking or experiences have no evidence. None. Full stop. You would not treat an MS or Parkinson's patient this way.
This case is now logged for research purposes. We look forward to regretless compliance with the low risk and correct side of history.
Dr. Richard Ramyar"
Help Holger Now
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Address in more easily usable form:
Sjukhusledning
Länssjukhuset Ryhov
551 85 Jönköping
Sverige
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ScottTriGuy said:
I interviewed Holger's brother Anton and will publish on Monday -- the health director recently refused the petition -- so the possibility of forced institutionalization is still very real.
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I have not yet written a personal letter of protest, but as well as that is there anything we can do in relation to the health director’s refusal to receive the petition?
 
Peter Trewhitt said:
I have not yet written a personal letter of protest, but as well as that is there anything we can do in relation to the health director’s refusal to receive the petition?
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Anton's update, in part:

"We have not accepted the healthcare director's reply and asked him to invite us to a meeting and also give us an informed answer because he obviously isn't aware of the details. He is now questioned already by IVO because of the region's handling of Covid-19 patients. They have failed."

(IVO = healthcare inspection authority)
 
David Tuller talks with Holger's brother



ETA: Hmm.. the plug-in from Facebook doesn't seem to work. Here's link to Tuller's Facebook page https://www.facebook.com/david.tuller.1
The video with their conversation is currently first post.

This is the text posted with the video:
Holger Klintenberg, a 35-year-old from the southern Swedish city of Jonkoping, has severe ME. His illness began after a bout of mononucleosis (or glandular fever) when he was 19. He has recently experienced difficult interactions with the health care system. His family fears he could be forced into psychiatric care against his and their wishes. They are concerned that the medical professionals overseeing Holger’s care do not understand ME and, in particular, the role of post-exertional malaise, or PEM.
Holger’s situation has attracted international attention, including a petition that currently has over 8,000 signatories. I zoomed a few days ago with Anton Karlsson, Holger’s younger brother, about the current situation. (One correction: Holger met his future wife when he was 23 and got married at 27, not 21 as Anton says in the video.)
 
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