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Ken Ware - Neurophysics therapy

Discussion in 'Other treatments' started by unicorn7, Feb 26, 2021.

  1. unicorn7

    unicorn7 Senior Member (Voting Rights)

    Sorry, I thought you were Dutch :D

    I agree with you, I am totally put of by secretive stuff, I think if you have something that works well, you should give if to the world to use. But maybe that's just my Dutch social healthcare attitude speaking ;)
    It's definitely nothing like the lightning proces, as that is a four day course and they claim your are then suddenly healed :D. This is more of a: "if you make a tiny change every day, maybe somethings has changed in a year from now". I think there is actually still a lot of BPS talk around it (by Ken Ware), but for me the exercises are completely physical, nothing BPS about it.

    The exercises are light and everyone I know (that was mild or moderate) could do them. Your are not supposed to strain yourself, feel pain or have any negative reaction to them.
    I have the feeling especially people with OI respond very well to this, I think those people are the "extreme" cases I talked to.

    What it does for me: I think I train my body now to do everything with the least bit of muscle involvement. Because of this, I got really aware that my body (it's not something I consciously do) uses a lot of muscles tension/muscle involvement in every movement that I make. And that goes on even hours after I made some exertion, when I lay in bed or sit on the couch. I learned to slowly turn those responses off under controlled circumstances. It means I use less energy with things like sitting, standing and walking, so I can do much more.
    So I don't know yet if it goes further than that, but what that means for me is that I can a lot more without getting PEM. The other thing is that my heart rate variability is going up after I have done the exercises, so more parasympathetic activity?
    Trish and Peter Trewhitt like this.
  2. Hawki77

    Hawki77 New Member

    Hi @unicorn7 thank you for your response. Sorry I've been in a bad patch so haven't got round to checking on here for a while. So would you summarise the Ken Ware stuff as becoming aware of your body more while you are making any movement and trying to relax your body and use the most minimal effort so learning to do things in a less strained and more minimal way? I think it's good if it has helped you have less PEM but it doesn't really sound like it's something that complicated based in a lot of theory? It sounds similar to Alexsnder Technique in respect to how its all about being aware of how you are moving and holding your body For? I just don't understand really how it can help. For example I have mild fatigue and can do small walks most days without always getting PEM but it hasn't helped improve my ME I've had it for 10 years. Anyway thanks for trying to explain it to me and sorry if I sound negative about it. I just wanted to try and understand exactly what it was before throwing more money down the drain!!
    Peter Trewhitt, Wyva and Trish like this.
  3. unicorn7

    unicorn7 Senior Member (Voting Rights)

    I am being really cautious with the explanation, because I’m still working on it and have no idea what the long term will be.
    Plus I have had a lot of other treatment with medication, so no idea what’s doing what.

    I have tried a lot of physical therapies, like yoga, feldenkrais, neuromovement, all kinds of therapies, but it never made a difference. So I don’t know if it’s the method, or just the right time and motivation? I do notice that there is a enormous difference when you make small differences in posture and movement.

    Do you notice symptoms being worse with certain movements? I have always felt that upper body movement was harder and arms above my head was killing and anything with my neck as well.
    Missense, Trish and Peter Trewhitt like this.
  4. unicorn7

    unicorn7 Senior Member (Voting Rights)

    Just a little update!
    I’m doing amazingly well, I can hardly believe it:nailbiting::nailbiting: I am beginning to think this might be remission. I have the feeling I actually have my life back since 2 months now:angel::angel::angel:

    I think I finally hit the right combination of medication and exercises. I’m going to Australia in September to train for 4 weeks with the wife of Ken Ware. This beginning of a basic training has helped so much, I want to get better as soon as possible now. So I will do a intensive 4 week therapy (and intensive is nothing aerobic or something, it’s getting rid of as much muscle tension as possible in that short time).
    oldtimer, Missense and Peter Trewhitt like this.
  5. Sasha

    Sasha Senior Member (Voting Rights)

    Glad you were feeling so much better, @unicorn7!

    Has your improvement maintained?
  6. unicorn7

    unicorn7 Senior Member (Voting Rights)

    Yes, it going really well! With all the practice I’m putting in, it’s getting easier and easier to turn of all that excessive muscle activity, that I really don’t need:banghead:

    it’s really insane how my body wants to involuntary use muscles when lying on the couch after exertion for hours and hours! I do spend time practising and when I do a real exertion (I rode my horse yesterday:angel:), I do half an hour of getting all those muscles to release again. But I do find that the payback is so much less, so it’s definitely worth the time I put in:thumbup:

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