@unicorn7 thanks for replying. I am in the Ken Ware UK Facebook group but there doesn't seem to be much information on there about the theory of how it works. Could you explain how they teach you to do exercises differently to normal that has enabled you to do them without PEM? What makes me feel a bit suspicious is that it seems a bit vague and secretive which reminds me of the Lightning Process and that didn't help me at all and I don't want to pour more money down the drain as I'm sure you can understand. I've been ill for 10 years and I have mild fatigue anyway most of the time and can do small walks most days but feel rubbish when I'm doing it. I get PEM if I try and do anything more like gentle yoga, table tennis, walking too far. My neurological and gut symptoms are the most debilitating for me. Thank you
Sorry, I thought you were Dutch

I agree with you, I am totally put of by secretive stuff, I think if you have something that works well, you should give if to the world to use. But maybe that's just my Dutch social healthcare attitude speaking

It's definitely nothing like the lightning proces, as that is a four day course and they claim your are then suddenly healed

The exercises are light and everyone I know (that was mild or moderate) could do them. Your are not supposed to strain yourself, feel pain or have any negative reaction to them.
I have the feeling especially people with OI respond very well to this, I think those people are the "extreme" cases I talked to.
What it does for me: I think I train my body now to do everything with the least bit of muscle involvement. Because of this, I got really aware that my body (it's not something I consciously do) uses a lot of muscles tension/muscle involvement in every movement that I make. And that goes on even hours after I made some exertion, when I lay in bed or sit on the couch. I learned to slowly turn those responses off under controlled circumstances. It means I use less energy with things like sitting, standing and walking, so I can do much more.
So I don't know yet if it goes further than that, but what that means for me is that I can a lot more without getting PEM. The other thing is that my heart rate variability is going up after I have done the exercises, so more parasympathetic activity?