knowmecfs.org: Understanding ME/CFS

rvallee

rvallee

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Know ME/CFS | Complete Patient & Caregiver Guide

Complete ME/CFS guide: symptoms, pacing, crash management, long COVID, POTS, mold/CIRS, Lyme, MCAS, diagnosis, treatments, and caregiver support. 165+ clinical references.
knowmecfs.org
Understanding ME/CFS

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome is a serious, complex multi-system neuroimmune illness. This guide covers everything from biology to daily management - grounded in the latest published science.


Found this from a reddit thread yesterday. It's basically similar to what we try to achieve in terms of making fact sheets and giving a general overview of ME/CFS. Written by a pwME.

I think it has many strengths, the good parts are excellent, presentation and tone are good, but goes too far in some other areas, especially on evidence, weakening the document overall. Removing some parts would make it much more valuable, IMO, as it's quite lengthy.

Reddit thread from a relative of the author:

 
There has been new functionality added according to this reddit post:
Updated with a personalized printout tool. You pick what applies to you and it generates a fact sheet you can bring to doctors, specialists, or share with family/caregivers (or just for yourself to have all relevant information for you condensed). Free, no sign-up. Hope it's useful for those of you navigating appointments, school, work, family, and everything in between.
Click to expand...
knowmecfs.org

Know ME/CFS | Complete Patient & Caregiver Guide

Complete ME/CFS guide: symptoms, pacing, crash management, long COVID, POTS, mold/CIRS, Lyme, MCAS, diagnosis, treatments, and caregiver support. 165+ clinical references.
knowmecfs.org
 
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