Long Covid in the media and social media 2022

I would infer from that that they think all the media psych people are either liars or idiots, as thos 'experts' won't shut up and are saying the exact opposite.

 

Could that be the same study discussed in this thread?

https://www.s4me.info/threads/lance...ix-nations-an-observational-study-2022.24993/

 

Yes, it's the same flawed study that relied upon inappropriate use of a mental health questionnaire that conflates typical post-viral symptoms with anxiety and depression.

The authors are drawing very long bows:

It's complete rubbish.

 

Anyone who is even a single step ahead of the rest is technically leading the way. It's mostly a reflection of how poorly medicine has performed here, that it's accurate to say those two, including a documentary filmmaker without any medical training, really qualify as leading experts on the issue. They really do understand the issue better than 99.9% of physicians.

Funny thing about pseudoscience, you can be an expert at it and learn nothing from it. Real funny how it works. Especially how it's a complete surprise that it works like that, apparently.

 

Good thread. Putrino is one of the few people who can claim to be leading the way as a legitimate expert, I remember at first they stumbled a bit on the exercise/anxiety bit and managed to correct the course.

This is more understanding, in a short twitter thread, than 99.9% of physicians have about chronic illness in general, let alone ME:
https://twitter.com/user/status/1504462085484384263

 

https://www.newscientist.com/letter/mg25333780-300-it-might-be-wise-to-temper-long-covid-cure-hopes/

 

Hmm. Good thinking but the wise thing to do was acknowledging reality from the start. 2 years later, that's just learning from experience, which is happening far slower than it should, there are still people "coming up" with this idea on a regular basis. Can't really talk about wisdom while you're committing an old mistake for the exact same reasons it was committed and escalated for decades.

Otherwise this is a bit like saying that the wise thing to do after you've drunkenly crashed your car into someone's living would be to at least not try to drive home. It's way too late for the wise thing, that (cruise) ship has sailed to its predetermined destination before this whole disaster even began.

 

The really amazing thing is that they know what will be definitive in 7 months time when the book is released.

 

Long Covid Holds a Mirror Up to Medicine—NYT
https://www.nytimes.com/2022/03/17/...AWdoR5y7S_ZYS7FM_QnxtIlNFrb6ig&smid=url-share

 

Source: Minnesota Public Radio
Date: March 18, 2022
Author: Catharine Richert
URL:
https://www.mprnews.org/story/2022/03/18/for-some-kids-long-covid19-is-harder-than-having-the-virus


For some kids, long COVID-19 is harder than having the virus
[..]
'We believe you'

Sharon said Anna's symptoms share a lot of similarities to other
post-viral illnesses like chronic fatigue syndrome - syndromes that
haven't been taken seriously by the medical community in the past. 'With
chronic fatigue syndrome because it's not a common thing, most doctors
have never gone through that themselves, or they don't know anyone who
went through that themselves, they never learn about it in medical
school,' he said.

Long COVID has helped normalize the symptoms and has helped medical
professionals understand them better, Sharon said. Kids, in particular,
are expected to bounce back fast after an illness, said Sharon's
colleague Dr. Matthew Armfield, who is medical director for the
pediatric pain and palliative care service at M Health Fairview. And
they learn to hide their discomfort well.

 

ABC News Researchers probe 'astounding' links between long-COVID and chronic fatigue syndrome

quote:

Griffith University's Menzies Health Institute Queensland and The National Centre for Neuroimmunology and Emerging Diseases has been studying ME/CFS patients for the past four years.

Their findings have identified faulty calcium ion channels, known as transient receptor potential ion channels, which can affect major organs and muscles throughout the body.

"They are threat receptors, and they respond to viruses, bacteria, vibration, like exercising and driving because the body perceives these as threats," Professor Marshall-Gradisnik said.

"The receptors are like a stop and go man.

"In a healthy person, when it perceives the threat, these receptors activate and open and say 'go'.

"But in ME/CFS patients, this stop-go receptor only partially activates, so there's less calcium coming inside the cell.

"And we can categorically show that in real-time on cells.

"We're now looking at long-COVID to see if we see the same type of behaviour of these stop-go receptors to see if there's some commonality between the two."

 

Waiting on a critical mass of physicians to personally experience gaslighting in order to put an end to this barbaric, and needlessly cruel, practice is seriously dystopian but also not entirely surprising given the decades of prior dystopian nightmare.

https://twitter.com/user/status/1498483041630523392

 

Something to watch for: a case of denied Long Covid disability was overturned based on the impact of PEM in Austria. I'm not sure if "rehab money" is a mistranslation.

Thread in German:

https://twitter.com/user/status/1504818485603541018

https://twitter.com/user/status/1504818494973616142

 

New in Medscape (read by a lot of healthcare professionals)

Covid's 'Silver Lining'

https://www.medscape.com/viewarticl...sso=true&impID=4098788&src=wnl_edit_tpal#vp_3
(May require free registration)

Most of page 3 discusses the similarity between many cases of Long Covid and Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

 

Don't know if this from March 16th has been shared already?

ABC News AUDIO: Doctors report long COVID and MECFS similarities

- The impact of the long term effects of COVID-19 are becoming better understood. It's estimated that up to 30 per cent of people who get infected with COVID show symptoms months later. ABC NewsRadio's Cameron Green spoke to Dr Richard Schloeffel, Medical Director of Emerge Australia an organisation which specialises in complex and chronic disorders, including Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (MECFS). He says there are a lot of similarities between long COVID and MECFS, which has been misunderstood and misdiagnosed for many years.

 

Bloomberg Twitter spaces session about long Covid.. ME mentioned briefly half way through by the physician guest as being a possible beneficiary of LC research, having being ignored decades.
https://twitter.com/i/spaces/1lDxLLRrYvmxm?s=20

 

Somehow there are people going on talking about how the BA.2 variant has new symptoms to watch for. Those symptoms? Fatigue and dizziness. Apparently new to some people who, I guess, are new to this. I don't understand how not paying attention is OK in the medical profession but whatever. The whole process seems to simply break down when multiple symptoms are possible, with no plan B.

Just to be clear, dizziness was always a prominent symptom in LC, just one that's been mostly ignored. As for fatigue... ugh. "I have never heard of this" is not the same thing as "this is news to everyone".

https://twitter.com/user/status/1499863970156400640

 

I think there are differences between vertigo and dizziness?

Vertigo is when the room spins when turning your head suddenly, particularly first thing in the morning.

Dizziness is a feeling of passing out or light headedness and wobbling which I've never experienced. Could be different issues at play?

 

An 'expert' on the latest Independent Sage apparently recommending the gym for deconditioning in Long Covid.

 

Response from Putrino Lab:

“Deconditioning” does not satisfactorily explain any #LongCovid symptoms. Not one. To assert that it does ignores consensus LC science in favor of a reductionist mindset. To assert that it does on a large, “trusted” platform like @IndependentSage places patients in danger.