mecfs

Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis de Canson, Chloé Abstract It is usually assumed that patient and doctor know strictly different things: the patient knows the phenomenological aspects of their illness, and the doctor knows its...

What Medical Specialties do ME/CFS Sufferers Consult? A Public Health Study on the need for Better Medical Education and Training Habermann-Horstmeier, Lotte; Horstmeier, Lukas Maximilian Abstract Background The disease ME/CFS is unknown to many doctors in Germany. Within the healthcare...

Pharmacological Treatment Approaches in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Habermann-Horstmeier, Lotte Abstract Background. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a neuroimmunological disease characterized by a diverse symptom profile...

Persistent symptom burden in long-standing systemic lupus erythematosus: a subgroup-focused hypothesis for an SLE–ME/CFS research phenotype Habermann-Horstmeier, Lotte Abstract Background Despite improved control of inflammatory disease activity in systemic lupus erythematosus (SLE), many...

Physician’s perception of ME/CFS sufferers as “difficult patients” A mainly qualitative public health study from a patient perspective Habermann-Horstmeier, Lotte; Horstmeier, Lukas M. Abstract Background The disease myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is unknown to...

Machine translated title: Is Sport Always a Good Thing? Historical Instrumentalizations and Challenges of (Lay) Medical Health Knowledge and Imperatives to Exercise in the Context of ME/CFS Wittmann, Barbara First two pages from a preview (machine translation): “I’ll say it again: I walked...

Wie Betroffenheit (nicht) anerkannt wird: Zur Struktur medizinischer Gewalt bei ME/CFS und Long COVID Machine Translation: 5. Conclusion Last but not least, engaging with ME/CFS and Long COVID also raises a professional-policy concern for social work: The consequences of COVID-19 have been...

The Tudor Sweating Sickness and ME/CFS: A Hypothesis of Pathogenic Evolution and Modern Disease Manifestation Matthew, Kovacs Abstract This paper presents a novel hypothesis connecting Tudor Sweating Sickness (TSS), which caused five major epidemics in England between 1485 and 1551, with...

The Context of Recovery Among Adults Who Recover from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Post-COVID Condition Following Mind-Body Approaches: A Qualitative Descriptive Study Protocol Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and...

https://studypages.com/s/donate-saliva-and-help-us-understand-persistent-fatigue-in-mecfs-and-long-covid-470612/ An upcoming study from Stanford. Unfortunately, the clinical trial number, study name, duration etc. are not available yet on that site. Donate saliva and help us understand...

Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating female-biased disease with neither diagnostic biomarker nor effective treatment nor well-understood aetiology. To investigate its biological basis, we used TarGene to perform a genome-wide association study in...

https://chroniclivingtherapy.com/ripple-effects-stigma/ 2300-word article. THE RIPPLE EFFECTS OF STIGMA This post looks at the effects of ‘psychologisation’ and stigma – in particular as it relates to M.E. (or ME/CFS or Chronic Fatigue Syndrome). The effects are far-reaching and have blocked...

Healthy Control Population for PAIS-ME/CFS: Study to Evaluate Possible Biomarkers and Methods for Examination of PAIS-ME/CFS Diagnostics in Healthy Volunteers (HelP) ClinicalTrials.gov ID NCT06653712 Sponsor Technical University of Munich Last Update Posted 2024-10-22 Study Overview Brief...

Effectiveness of Tuina Therapy for Patients With Chronic Fatigue Syndrome: Protocol for a Multicenter, Randomized, Open-Label, Assessor-Blinded, Parallel-Group Clinical Trial Abstract Background: Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is a debilitating...

https://www.telegraph.co.uk/news/2026/09/05/disability-became-cool/ Archived Link 3400-word article How having a disability became cool Young women, nicknamed ‘sickfluencers’, are turning chronic illness into a lifestyle trend and entrenching a culture of economic inactivity Poppy Coburn...

Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome This article has been retracted. Partial Retraction 14 OCT 2011 This article has been retracted. Retraction 23 DEC 2011 This article has an editorial expression of concern. Editorial...

Chronisches Fatigue-Syndrom Kupferschmitt, Alexa Alica; Köllner, Volker Abstract (machine translation) Chronic Fatigue Syndrome (CFS) is characterized by persistent, severe fatigue that substantially impairs physical and cognitive functioning and may be exacerbated by exertion...

A general thread for discussing ethics in relation to PAIS. https://www.viviennematthiesboon.com/post/what-is-a-postinfection-ethics What is a Postinfection Ethics? From within the field of Ethics, there is so much to say about Postinfection Ethics - how it is related to the fields of...

Beyond genes: EpiSwitch® and Orion platform-powered 3D genome architecture biomarkers reveal shared biology across ME/CFS, long COVID, PTSD, rheumatoid arthritis, and multiple sclerosis Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long COVID (LC19)...

Medical invalidation is associated with structural barriers in postacute immune mediated syndromes based on patient perspectives in Germany Abstract Post-acute immune-mediated syndromes (PAIMS), including Long COVID/Post-COVID (LC/PC), Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...