Long Covid in the media and social media 2023

If you have a dry sense of humour posts from the Vertlartnic may raise a chuckle.
Otherwise the graphics are succinct at getting info across the melee of misinformation

https://twitter.com/user/status/1702773417412272210

 

An opinion piece published in the journal of the Swedish Medical Association.

Vilken nytta har betablockad vid kronisk och akut covid-19?
https://lakartidningen.se/opinion/d...ar-betablockad-vid-kronisk-och-akut-covid-19/

 

I attended the webinar of "The New Wave of COVID: A Conversation with Dr. Ashish Jha" today hosted by USC Anneberg School of Journalism. Jha served as the White House COVID-19 Response Coordinator from 2022-2023.

Sharing this response from Jha to a question on Long COVID & RECOVER Initiative during the Q&A:

“We need more progress on this issue..we have to find new treatments, and that means studying therapies, interventions, and doing more randomized trials, and that has to be the next phase."

“I think it’s important for Congress to not walk away from this - and say, we made some progress from the money we spent - we have got to put more money in, and we have to focus those dollars on what I would like to see - more randomized trials of new therapeutic options - to try to actually help people feel better and alleviate a lot of the symptoms. Millions are suffering on an ongoing basis and we need to make progress here.”

Sharing with footage, if interested.

 

Article in a Swedish local paper. (With comments from BPS ME doctor/researcher Indre Ljungar.)

Cissi tvingas vila nästan hela dagarna
https://www.mitti.se/nyheter/cissi-tvingas-vila-nastan-hela-dagarna-6.3.77982.3a319ae370

Google Translate, English ("Ciccis is forced to rest amost all the time")

 

Comes from this, at about 33 minutes:

https://www.youtube.com/watch?v=QDBMoI353v0

They are just completely lost and incapable of asking for directions. They can't even assess what they do properly. I never could have imagined that things were so bad, even with everything we knew of.

 

The physio woman from the Bath clinic says that referrals are dropping and currently they are getting about 30% of what they were 12 months ago. There might several reasons for this.
But also it is at odds with what the BMJ paper by doctors says; (ie that they can't get referrals for LC patients).
https://www.s4me.info/threads/bmj-—-long-covid-the-doctors’-lives-destroyed-by-an-illness-they-caught-while-doing-their-jobs.35354/#post-495140

 

They clearly have established a reputation .

 

Anyone have Nat Geo access?

"What is POTS? This strange disorder has doubled since the pandemic"

"Millions of people now live with the debilitating disorder, which can be triggered by viral illnesses like COVID-19. And many say the recommended treatment—exercise—has backfired'

https://www.nationalgeographic.com/premium/article/pots-exercise-harm-fatigue-long-covid

 

The main message of the article is that exercise is recommended for POTS, but it's dangerous if you have PEM. They also discuss how it's not the end-all be-all of treatment, and that anecdotally, most people find medication more helpful.

 

TY, @RedFox. Does Nat Geo have gift links or anything like WP, if someone wanted to read?

 

I just bypassed the paywall.

 

Using a 12 foot ladder?

 

Long Covid SOS, one of the Long Covid charities represented at the UK Covid Inquiry, posted on Twitter.

"Today we found out that @BorisJohnson scrawled 'BOLLOCKS’ across a @DHSCgovuk document about #LongCovid He admitted in his witness statement that he didn’t believe #LongCovid ‘truly existed’ We now know that he thought it should be dismissed as "Gulf War Syndrome stuff""

 

I posted a lot of the content on new thread today.
What is POTS? This strange disorder has doubled since the pandemic | Science for ME (s4me.info)

 

It's a fair assumption, but given any random MD from the UK, what is the probability they'd give the same advice? Now make it one likely to advise a Conservative PM who badly wanted to ignore an ongoing pandemic and its consequences? Not likely to be anywhere below 90%.

Wessely did a lot of damage putting out those lies, but the lies were repeated and turned into false reality by a system that either wanted the lies to be true, or was OK with it. Those lies have made it into the official record a long time ago, many licensed MDs were taught those lies at medical school, from their perspective it was always the truth and they can't even imagine a time when there was any controversy over it.

 

Who else would even have Gulf War Syndrome on their radar?

 

NZ's The Spinoff: Gambling with Covid: Repeat infections are damaging us