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Long Covid is being erased —again—Ed Yong

Discussion in 'Long Covid news' started by Jaybee00, Apr 19, 2023.

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  1. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Oregon, USA
    I just remembered one study which found 58% of Long Covid cases met the ME/CFS case definition. This study recruited patients via social media sites and email, not Long Covid clinics.

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9844405/

    I'm not good at finding flaws in studies - maybe this study has a lot of errors! But thought I'd add it to the discussion.

    I tried to find a thread for this study on the forum but couldn't find it. I'm probably not using the right title or keywords.
     
    ahimsa, Apr 22, 2023
    #21
    Sean, alktipping and Peter Trewhitt like this.
  2. Wyva

    Wyva Senior Member (Voting Rights)

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    Location:
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    Wyva, Apr 22, 2023
    #22
    Andy, Hutan, Sean and 3 others like this.
  3. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
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    Location:
    Oregon, USA
    ahimsa, Apr 22, 2023
    #23
    Binkie4, SNT Gatchaman, Michelle and 8 others like this.
  4. Mij

    Mij Senior Member (Voting Rights)

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    If it's anything like being evaluated for a M.E/CFS diagnosis then there are a lot of unknowns if physicians are doing proper investigating to r/o other conditions. The more severe cases of PASC could also be dealing with a different condition altogether.
     
    Mij, Apr 22, 2023
    #24
    Michelle, ahimsa, alktipping and 1 other person like this.
  5. Hutan

    Hutan Moderator Staff Member

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    30,182
    Location:
    Aotearoa New Zealand
    Even if 50% of people with one definition of Long Covid meet ME/CFS diagnostic criteria at 4 or 6 months, it doesn't mean that a lot of those people won't recover.

    We know from prospective studies of ME/CFS that a lot of people do recover within a year or so of onset.
     
    Hutan, Apr 23, 2023
    #25
    bobbler, ahimsa, NelliePledge and 6 others like this.
  6. Trish

    Trish Moderator Staff Member

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    Trish, May 5, 2023
    #26
    bobbler, Peter Trewhitt, Hutan and 1 other person like this.
  7. DigitalDrifter

    DigitalDrifter Senior Member (Voting Rights)

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    Yes, but what criteria are those studies using?
     
    DigitalDrifter, May 7, 2023
    #27
    RedFox, Peter Trewhitt and Sean like this.
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