ME/CFS contributions at Royal College of Paediatrics and Child Health conference, May 2019

She must have been a good teacher.

 

I'm trying to make sense of what the point of this is and... I can't. The overall substance is about as meaningful as you'd get on average from a week-long assignment to high-schoolers, some of whom would actually do better than this. Nothing of value was discussed, it's blatant that overall this approach is disastrous and a complete waste of resources and lives but none involved are aware of what is right in front of their eyes.

It may use the language of science, but it belongs more to a healing crystal conference than anything having to do with medicine. It's clear that no one involved actually understands even the basics of this disease or is capable of learning from their own mistakes, let alone apply the scientific method.

If they think this is helpful, they are delusional. If they don't care, they don't belong in medicine. Either way, this is as pointless as it's destructive. The people who fund these fools need to learn about opportunity cost. This isn't some innocent mistake, millions are wasted on a junk ideology, millions that could be put to productive use instead.

 

An influential teacher at least:

http://www.bristol.ac.uk/social-community-medicine/people/esther-m-crawley/teaching.html

I don't know about her relation to T. Segal though (the almost omnipresent author of the conference's contributions on ME/CFS) other than Segal perhaps received Crawleys "training package for the diagnosis and management of CFS/ME (2004) which I [=EC] delivered to all CFS/ME services" and cited he SMILE trial in the paper discussed here: https://www.s4me.info/threads/child...litis-where-are-we-now-2019-segal-et-al.9340/

However, Segal's et al recent presentations and papers might do us a favor by displaying that the evidence they try to establish for the 'CFS' treatment offered to children and adoloscents (at maybe one of the larger 'CFS/MUS' treatment centres in the UK?) is highly questionable.

Segal's page at UCL Hospitals:
https://www.uclh.nhs.uk/OurServices/Consultants/Pages/DrTerrySegal.aspx

Forum discussion on Segals's contrubution at last year's conference:
https://www.s4me.info/threads/our-c...iendly-experience-of-going-beyond-audit.3050/

Edited for clarity