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Sweden - RME news

Discussion in 'News from organisations' started by Kalliope, Aug 21, 2018.

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  1. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Several threads have been merged

    ME-conferences in Sweden Oct 17th and 18th 2018

    RME, the Swedish patient organisation, invites once again to two conferences about ME this autumn. Some of the programme is in English, and some in Swedish.

    (I have translated the Swedish parts for this post)

    First conference is in Stockholm Oct 17th
    Step by step - Topical research and possible treatments

    • Opening Henrik Fransson from RME, Ella Bohlin - politician
    • Neuroinflammatoric explanatory models for ME/CFS Prof. Jonas Bergquist
    • Immune-metabolism and ME/CFS Prof. Anders Rosén
    • Analysis of the Rituximab study and other immunological findings Researchers from Bergen university
    • Post Exertional Malaise dr. Katarina Lien
    • Advances in ME/CFS research in USA dr. Zaher Nahle
    • Clinic and research at the ME-center Bragée-clinic dr. Björn Bragée

    Second conference is in Göteborg Oct 18th
    Step by step - Topical research and possible treatments
    • Opening Klas Gillberg from RME
    • Neuroinflammatoric explanatory models for ME/CFS Prof. Jonas Bergquist
    • Immune-metabolism and ME/CFS Prof. Anders Rosén
    • Analysis of the Rituximab study and other immunological findings Researchers from Bergen university
    • Post Exertional Malaise dr. Katarina Lien
    • Advances in ME/CFS Research in USA dr. Zaher Nahle
    • Possibilities for activity and participation in people with ME/CFS Ergonomist Ewa Wadhagen
     
    Last edited by a moderator: Oct 11, 2022
    Kalliope, Aug 21, 2018
    #1
    Inara, MSEsperanza, inox and 14 others like this.
  2. Kalliope

    Kalliope Senior Member (Voting Rights)

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    That's correct. He is now leading the Arthritis National Research Foundation - ANRF - and is representing this organisation as a speaker at the conference.
     
    Kalliope, Aug 21, 2018
    #2
    Andy, Joh and MEMarge like this.
  3. Sasha

    Sasha Senior Member (Voting Rights)

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    That's interesting - I know he hoped to take his interest in ME with him so it will be interesting to see whether they're doing anything.
     
    Sasha, Aug 21, 2018
    #3
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  4. Lisa108

    Lisa108 Senior Member (Voting Rights)

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    The programme of both conferences includes two lectures in English. I emailed RME to ask if they will be livestreamed or videotaped. I got this answer today:

    "Dear Elisabeth,

    I'm so happy that you have observed the information about our conferences. Yes, the conference will be live-streamed and also recorded for later access on our web-site www.rme.nu. Information about the link to the live-stream can be found on our web-site before the conference. [my bold]

    Best wishes,

    Kerstin Heiling

    Chair of RME"

    I wrote them that I learned about their conferences here on S4ME. Does anyone know if they are active here? Shall we invite them?

    Edit: bolding
     
    Last edited: Sep 10, 2018
    Lisa108, Sep 10, 2018
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  5. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Oh, that's great that they will be streaming! Thanks for checking it out, @Lisa108 Am so excited to the prospect of being able to attend the conferences from home :woot:

    There are a few Swedes here, but I don't know if the organisation as such is present at the forum. Sounds like a good idea to send an invite :)
     
    Kalliope, Sep 10, 2018
    #5
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  6. andypants

    andypants Senior Member (Voting Rights)

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    This is next week already! Looking forward to following the live stream from bed. It's starting to become a full time task keeping up with all these conferences :inlove:

    The PwME version of full time, anyway :woot:
     
    andypants, Oct 8, 2018
    #6
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  7. Manganus

    Manganus Established Member (Voting Rights)

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    In English, October 17th:

    14:10 Analysis of the Rituximab study and other immunological findings.
    Researchers from Bergen University

    15:30 Advances in ME/CFS Research in USA
    Dr Zaher Nahle, ANRF, USA
     
    Manganus, Oct 9, 2018
    #7
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  8. Lisa108

    Lisa108 Senior Member (Voting Rights)

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    They are going to be repeated the next day (October 18th), on 14:10 and 16:00 respectively. Looking forward to this!
     
    Lisa108, Oct 9, 2018
    #8
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  9. Dechi

    Dechi Senior Member (Voting Rights)

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    Does anyone have the link to register for the live stream ?
     
    Dechi, Oct 10, 2018
    #9
    Kalliope, andypants and Lisa108 like this.
  10. Lisa108

    Lisa108 Senior Member (Voting Rights)

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    I think it is not posted on their website yet.
     
    Lisa108, Oct 10, 2018
    #10
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  11. Kalliope

    Kalliope Senior Member (Voting Rights)

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    It says on their website that the seminars can be viewed via a link, and that more information will come during October.
    Konferenserna kommer att kunna följas via länk – mera information om detta i oktober.
     
    Kalliope, Oct 10, 2018
    #11
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  12. mango

    mango Senior Member (Voting Rights)

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    mango, Oct 11, 2018
    #12
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  13. mango

    mango Senior Member (Voting Rights)

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    Today is the roundtable meeting in Stockholm.
     
    mango, Oct 16, 2018
    #13
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  14. mango

    mango Senior Member (Voting Rights)

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    mango, Oct 17, 2018
    #14
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  15. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Prof. Jonas Bergquist speaking (in Swedish). Seems to be the same lecture he gave at the Stanford-symposium.
     
    Kalliope, Oct 17, 2018
    #15
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  16. Kalliope

    Kalliope Senior Member (Voting Rights)

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    MD Ingrid Rekeland up now from Fluge/Mella's team, and I think later Øystein Fluge. Rekeland speaks in Norwegian.
    Edit to add
    Slides in English
    RituxME in 2. revision in prestigious journal
     
    Last edited: Oct 17, 2018
    Kalliope, Oct 17, 2018
    #16
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  17. mango

    mango Senior Member (Voting Rights)

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    Recommended hashtags on Twitter etc are #svmecfs and #stegförsteg2018

    (steg för steg = "step by step")
     
    mango, Oct 17, 2018
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  18. mango

    mango Senior Member (Voting Rights)

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    Last edited by a moderator: Oct 11, 2022
    mango, Oct 17, 2018
    #18
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  19. mango

    mango Senior Member (Voting Rights)

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    Last edited by a moderator: Oct 11, 2022
    mango, Oct 17, 2018
    #19
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  20. mango

    mango Senior Member (Voting Rights)

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    "Highlighting what criteria are being used. Canadian criteria ICC and SEID demand PEM (Post-Exertional Malaise) which the Oxford criteria don't do and therefore capture much more [people] and therefore give completely different results. Dr Katarina Lien, Oslo University Hospital #svmecf #stegförsteg2018"
     
    Last edited by a moderator: Oct 11, 2022
    mango, Oct 17, 2018
    #20
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