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ME debate in Danish Parliament March 12 (2019)

Discussion in 'Advocacy Action Alerts' started by andypants, Feb 3, 2019.

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  1. andypants

    andypants Senior Member (Voting Rights)

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    Norway
    Yes. More precisely the somatic.
     
    andypants, Mar 13, 2019
    #41
    rvallee, JaimeS, Sean and 1 other person like this.
  2. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Apparently the motion went through today in Parliament. :woot:
    Quite sure there will be some official confirmation very soon and more on what this means and what will happen next.

    Congratulations Denmark!
     
    Kalliope, Mar 14, 2019
    #42
    Hutan, Ravn, JoanneS and 24 others like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

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    MillionsMissing Denmark confirms the motion went through. This is a historical day!
     
    Kalliope, Mar 14, 2019
    #43
    Amw66, Hutan, Roy S and 18 others like this.
  4. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    107 stemmer? Does this means it has broad support among the political parties?
     
    ME/CFS Skeptic, Mar 14, 2019
    #44
    Hutan, Esther12, JaimeS and 7 others like this.
  5. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Kalliope, Mar 14, 2019
    #45
    Simbindi, Amw66, Hutan and 24 others like this.
  6. Cheshire

    Cheshire Moderator Staff Member

    Messages:
    4,675
    Per Fink's payback.

    Whatever you think ME is (biogical or funkional), PF's behaviour toward Karina Hansen has been nothing but abusive. He bragged about being able to cure her in less than 6 months, detained her 2 (or 3) years and she returned at her parents' in a worst state than she entered the clinic after a juridicial battle (if not she would still be there). Any person with a sense of ethics would have confess to be wrong and would have let her go.
    The fact that he includes in his bodily distress syndrome far too many problems (eg tinnitus), just shows how nonsensical this concept is.
    I hope after this vote, PF's influence will shrink to the size of a nut.
     
    Cheshire, Mar 14, 2019
    #46
    Simbindi, Amw66, Hutan and 17 others like this.
  7. Andy

    Andy Committee Member

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    So about Per Fink sized then... ;)
     
    Andy, Mar 14, 2019
    #47
    lafarfelue, JaimeS, Binkie4 and 4 others like this.
  8. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

    Messages:
    622
    Jeez I'm emotional... Great news!!
     
    Sunshine3, Mar 14, 2019
    #48
    petrichor, JaimeS, Binkie4 and 5 others like this.
  9. Peter

    Peter Senior Member (Voting Rights)

    Messages:
    239
    Very good to see positive steps regarding ME in the country where something was rotten beyond words.

    Don’t know what the world holds for Per Fink, but hopefully he will find something else to do that doesn’t involve human beings.
     
    Peter, Mar 14, 2019
    #49
    Sarah94, Hutan, JaimeS and 14 others like this.
  10. rvallee

    rvallee Senior Member (Voting Rights)

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    Quite something that this ghoul was painted as a victim in the Reuters puff piece. In hindsight they will mostly look creepy and obsessed.

    The whole "I'm just trying to help" trope is very old already. There are no participation trophies in medical research. They are only trying to help themselves.
     
    rvallee, Mar 14, 2019
    #50
    Sarah94, Simbindi, JaimeS and 5 others like this.
  11. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Norway
    Article from a Danish news site about health.

    Sundhetspolitisk Tidsskrift: Afstemning i formiddags: Enigt folketing vil fjerne sygdomme fra gruppen av "funktionelle lidelser"
    google translation: Vote this morning: United Parliament will remove diseases from the group of "functional disorders"

    The treatment of patients such as Marie Louise Gustavussen, which Health Policy Journal has mentioned, is not good enough at all. Patients with myalgic encephalopathy (ME) and chronic fatigue syndrome (CFS) do not receive relevant treatment and treatment offers, and they are stigmatized and placed in the "functional disorders" pathway between somantics and psychiatry.
    A united parliament has decided this morning. All politicians agree to give patients such as Marie Louise Gustavussen a much better treatment.
     
    Kalliope, Mar 14, 2019
    #51
    Simbindi, lafarfelue, Ravn and 7 others like this.
  12. Inara

    Inara Senior Member (Voting Rights)

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    Can someone help me?

    Where do I find information about the motion, i.e. how it was brought on, and the background that led to it? I remember there was a letter - does somebody remember where it can be found?

    Do the German folk here know if such motions are part of the political picture? (What would be motion in German politics?)
     
    Inara, Mar 14, 2019
    #52
    Ravn, rvallee, andypants and 2 others like this.
  13. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Interview with Stig Gerdes, the doctor who helped the Danish ME patient Karina Hansen from Unrest, and who later lost his licence.

    Frederica Dagblad: Stig Gerdes efter afstemning i Folketinget: - Jeg fik ret
    google translation: Stig Gerdes after the Parliament vote: - I was right

    The former and controversial doctor, Stig Gerdes, welcomes a motion from the Parliament Thursday, where 107 votes against zero agreed that the disorders CFS and ME should be considered physical diseases. They no longer belong under the umbrella term "functional disorders", which denotes a number of disorders that the health authorities cannot find physical explanations for.

    Stig Gerdes has for several years been an angry opponent of "functional disorders", which he considers to be a garbage bin designation that allows the medical profession to park patients on futile, psychiatric treatment.

    He lost just over two years ago his doctor's authorization because he stepped reduced the psychiatric medicine to an ME patient without first consulting her guardian and psychiatrist. The authorization case is due for court in August.
     
    Kalliope, Mar 16, 2019
    #53
    Simbindi, Nellie, JohnM and 9 others like this.
  14. rvallee

    rvallee Senior Member (Voting Rights)

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    Someone deserves a very prominent apology. Now that is being silenced.
     
    rvallee, Mar 16, 2019
    #54
    Amw66, Sean, Trish and 2 others like this.
  15. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    Quote from the English translation:
     
    Last edited: Mar 16, 2019
    ME/CFS Skeptic, Mar 16, 2019
    #55
    Simbindi, Amw66, Dx Revision Watch and 8 others like this.
  16. AR68

    AR68 Senior Member (Voting Rights)

    Messages:
    181
    Which indeed it is.

    Start saving up for those court cases, patients.
     
    AR68, Mar 16, 2019
    #56
    rvallee, lafarfelue, Sean and 3 others like this.
  17. Kalliope

    Kalliope Senior Member (Voting Rights)

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    The Danish newspaper Politiken had an editorial about ME yesterday. It's behind paywall, but perhaps someone here has access to it and can give a summary.

    The headline is revealing of its content though:

    Svigtet af samfundet
    Behandlingen av kronisk træthed er en skændsel

    Abandoned by society
    The treatment of chronic fatigue is a disgrace
     
    Kalliope, Mar 17, 2019
    #57
    Andy, Hutan, Ravn and 10 others like this.
  18. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Kalliope, Mar 19, 2019
    #58
    Inara, Andy, Hutan and 6 others like this.
  19. Sbag

    Sbag Senior Member (Voting Rights)

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    420
    In response to the Danish newspaper Politiken article:

    upload_2019-3-22_15-50-3.png

    upload_2019-3-22_15-50-37.png

    upload_2019-3-22_15-51-9.png

    upload_2019-3-22_15-51-38.png
     
    Sbag, Mar 22, 2019
    #59
    Inara, Hutan and rvallee like this.
  20. Trish

    Trish Moderator Staff Member

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    I'm not sure Diane's argument is particularly helpful. I'd rather people stick to arguing on the basis that the BPS treatments don't work and cause harm.
     
    Trish, Mar 22, 2019
    #60
    Sean, TiredSam, Sbag and 4 others like this.
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