Michael Sharpe on Radio 4 Today / Tom Feilden BBC (18th march 2019)

I fear Wednesday might be the Guardian!

I was interested to see Frances Ryan tweeting about all this (she writes for Grauniad and I think has muscular dystrophy). But I could not find an email to contact her. The rest of the Grauniad camp have been disastrous.

 

https://twitter.com/user/status/1107673837053853702

 

There is an email address for her on this page, https://muckrack.com/frances-ryan

 

Fremdschämen.

 

That's it.

 

...
Frances Ryan (Journalist) | Wiki & Bio | Everipedia

https://everipedia.org/wiki/lang_en/frances-ryan-journalist/
Frances Ryan is a journalist and political commentator based in the United Kingdom. She writes extensively on inequality, disability, and social mobility for The Guardian as both an opinion and feature writer, as well as other publications such as the New Statesman, The ...
Email‎: ‎frances.ryan.freelance@guardian.co.uk

 

Thanks. I sent a message.

 

And Sharpe witters on about campaigners!

 

He must have been a very naughty boy as a youngster.

 

I find these 'the way that science works is...' arguments interesting. Who gets to decide how 'science' works? Is anyone allowed to suggest the maybe 'science' would be improved if errors in papers were corrected? Or if researchers were expected to engage in reasoned debate about the merits of their work - even after it had passed peer review!?

 

Since he uses the word "campaign" 8 times in the course of one short interview, I wonder in how many other public forums he will vigorously speak out against... uh, "campaigning."

 

Interesting that, isn't it? You mount a campaign against campaigning. Clearly it's OK if done by the right people.

 

It's simpler than that. Sharpe is revealing the fact that he actually thinks science works by being part of the in crowd of keepers of the holy scrolls. This is a view fairly pervasive in Oxford, Wellcome and MRC. You don't get to sit at the same table at dinner unless you have done a page of the scrolls. Fortunately, real science carries on outside of this system - which has become progressively less and less productive in the last thirty years.

 

Dr Porter article is on p4 of this morning's Times2 (Wednesday March 19).

Yesterday's online version used the headline:

"ME: Treatment for chronic fatigue syndrome is a complicated matter"

the print edition uses:

"Treating chronic fatigue is a complicated matter"


Another vehicle for embedding the PACE/Sharpe SMC campaign:

So what is he talking about in this article: fatigue, or chronic fatigue syndrome, or ME and how does he differentiate between them? Or possibly he doesn't.


A few more extracts in this thread, here:

https://www.s4me.info/threads/speci...y-reuters-march-2019.8557/page-33#post-152449

 

It's interesting to contrast his bristling at criticism with what Ron Davis said at the start of his presentation on the first day that he talked in Australia. I'm paraphrasing here because I failed to record it, but the gist was that it is the job of a scientist to get up everyday and try to prove his hypothesis wrong. That's what he does all day, everyday, until he can't think of any other ways to prove himself wrong. Only then does he entertain the notion that his hypothesis might be right.

 

A good resumee re this issue, BBC coverage and media/ Sharpie and friends....

(Claire Fox) the sister of Fiona Fox, the SMC’s chief executive.




"Claire Fox @Fox_Claire
Brilliant interview with @profmsharpe this morning on @BBCr4today Depressing that it was due to the distortion and disruption of scientific research by a particular zealous cohort of intolerant, trolling campaigners (no doubt some of whom I am about to encounter)

BBC Radio 4 Today ✔ @BBCr4today
It's important that science "isn't bent by campaigning" says @profmsharpe. He has stopped his research on chronic fatigue syndrome because of online abuse from campaigners #r4today https://bbc.in/2TOEIcI "

BBC SMC handshttps://mrtopple.com/2019/03/18/the...C6gBC84Ji6xMBgXtuOmp0D7SOoVxQsyCpe_xqjYFOSCkQ

ME, Opinion Articles
The media is waging a coordinated war against chronically ill and disabled people

Posted on 19 Hours Ago by Steve Topple

 

A "label", as he calls it, is crucial if you have a child or young person who requires a reduced school timetable or provision of home tuition, or special arrangements for sitting exams etc.

 

He is trying to gaslight his way out of the quagmire he helped create.

 

Yep. Far more reliant on faith (helpful beliefs?) in doctrines preached, than on scientific evidence. Faith-based systems often seek to dress up their beliefs as evidence based.