#MillionsMissing today, 12 May - post news, tweets, etc. here

[Edit: Yes, exactly, word-for-word right. You are amazing! Thank you so, so much... got my heart racing again just to read it!]

 

Now thats product placement
We need more of that.

Perhaps in future years what we should be extra prepared for the CBT/GET backlash, start with and keep repeating PACE makes us worse (and we have proof) so when articles go for more false equivalence we have refuted it already, set the narrative as it were.
Its also a rallying cry (not to say it was not already mentioned, but that BBC piece that ended with a PACEr is infuriating).

 

Did any of the key BPS figures say anything at all on the day? I can't see anything by them.

 

Thank you @Allele for the transcription of the moving speech by @JaimeS .

The realities are tough to read, but necessary.

Bill

 

Damn, I think I just answered my own question:
https://twitter.com/user/status/994897443140587520

 

That has been discussed here, https://www.s4me.info/threads/esther-crawleys-contribution-to-meawarenessweek.4058/

 

https://themighty.com/2018/05/advoc...algic-encephalomyelitis-awareness-day-may-12/

 

https://twitter.com/user/status/994901440845025280

 

I noticed that Jen commented on that one, @Andy!

https://twitter.com/user/status/995928398147997696

 

other responses:

https://twitter.com/user/status/995440144701427713

https://twitter.com/user/status/995439949087432704

https://twitter.com/user/status/995440467071455232

https://twitter.com/user/status/995440315988365312

 

https://twitter.com/user/status/995951419751583744

 

The photo, the photo! Yea, sure, MECFS is just like having a slightly sore neck at end of a busy day.

 

It's less than that - it's just being tired. You shouldn't exaggerate things, you know

 

Hey, everyone, can I ask anyone who still has some energy to help out?

#MEAction is collecting press coverage about #MillionsMissing. Especially the local stuff is important.

It would involve finding link, author, news outlet, country, and putting that into a Google spreadsheet. I just did four and it took me 7 or 8 min.

If you have some energy, please PM me here. It would mean a lot. The people who planned the protests are, as you can well imagine, in a deep hole and still digging.

 

Just about to go for a big lie-down myself but what about starting a new thread with that request in order to draw maximum attention to it? Lots of people probably aren't keeping up with this thread now.

 

Good plan.

Edit: Done -- https://www.s4me.info/threads/millionsmissing-crashed-folk-could-use-some-help.4125/

 

Local TV station in Stavanger, Norway with a short section about Saturday's demonstration.

TV Vest: Norges største samling på ME-dagen (Norway's biggest event on the ME-day)

 

@JaimeS what a powerful speech, we’ll done, and I’m so sorry to hear about your lovely sister

 

Someone cut to my speech and Jen has re-tweeted:

https://twitter.com/user/status/996185644748623873