Winter sees a downturn for my daughter and she is having real issues with muscles - this post is to sound out how " normal" her experience is for ME, in case it's not!
i have managed to organise a GP home visit next week which will deal with this and some other issues, but any info gratefully received as GP not very knowledgeable but will facilitate referrals if needed.
Muscles have grown very tight generally - to the extent that stomach muscles are so tight she cannnot physically be sick and peeing can take ages ( as can stools)
Muscles seizing , particularly neck , happening more often and both sides at the same time.
Facial mussles are tight which is affecting jaw/ ear/ nose and increasing pressure in head - so feeling of nausea worse and pressure in head increases when ear is on pillow and hearing goes, dizziness increases.
Cognitive mpairment getting worse but varies
All in all pretty crap - but is this all an ME thing?
thanks for any heads up
i have managed to organise a GP home visit next week which will deal with this and some other issues, but any info gratefully received as GP not very knowledgeable but will facilitate referrals if needed.
Muscles have grown very tight generally - to the extent that stomach muscles are so tight she cannnot physically be sick and peeing can take ages ( as can stools)
Muscles seizing , particularly neck , happening more often and both sides at the same time.
Facial mussles are tight which is affecting jaw/ ear/ nose and increasing pressure in head - so feeling of nausea worse and pressure in head increases when ear is on pillow and hearing goes, dizziness increases.
Cognitive mpairment getting worse but varies
All in all pretty crap - but is this all an ME thing?
thanks for any heads up