New Video ME/CFS Scandal Explainer

New Video: George Monbiot describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.

https://www.youtube.com/watch?v=RiwX9Y0NbiQ

 

The video is a timeline of key events used to illustrate the scandal from the Royal Free and reframing a recognised neurological illness to the withdrawal of harmful and ineffective treatments, includes clips of experts, MPs, patients & news items.

The video is broken down into 27 chapters. See image for list of chapters and how to navigate.

https://pbs.twimg.com/media/Gc59JLXXUAEG3u3?format=jpg&name=large

Timestamps in the description are best, followed by the chapter menu, the progress bar is a bit fiddly.

 

CHAPTERS
0:00 Introduction
2:20 Royal Free Outbreak
2:42 WHO Classifies ME as Neurological
2:58 Mass Hysteria Hypothesis
3:18 Ramsay Definition of ME
4:08 Chronic Fatigue Syndrome
4:45 Wessely’s Psychological Approach
5:39 Oxford Diagnostic Criteria
6:35 Wessely Lobbies the DWP
7:05 Royal Colleges Report
7:53 NHS Clinic and GP Training Video
8:50 Sophia Mirza
9:50 NICE Guideline
10:33 PACE trial
12:16 SMC Harassment Campaign
14:37 Research and Treatment Delivery
15:31 IOM Report
16:25 PACE Long-Term Follow-Up
17:03 PACE Tribunal
18:19 Merryn Crofts
19:05 CDC Removes Treatments
19:22 Treatment Surveys
19:35 UK Parliament
20:39 PACE Reanalysis
21:59 Scottish Parliament
23:05 Tuller’s Open Letter
23:25 NICE Guideline Update
25:16 Conclusion

 

This evidence-heavy video is aimed at journalists and people who may have some knowledge of #MECFS but want to learn more about the #GreatestMedicalScandal. I’ve put the transcript and references on medium.


https://tinyurl.com/MECFS-Scandal-Explainer

 

Massive thanks to @JohnTheJack all his help, his input and proofreading

 

Amazing work! Thanks so much!

 

thanks

 

This is a truly excellent video, so comprehensive and well-researched. Thank you for all the hard work put into it.

 

Thank you Adam. Brilliant.

 

Thanks EzzieD!

 

Thanks Fizzlou!

 

Thanks Trish

 

Thank you Adam. Your selection of key dates and description of significant events together with visual emphasis has produced a clear and comprehensive picture of how ME has been treated over the last 50 years or so. A helpful addition to the documentation.

 

Thanks Binkie

 

Brilliant, really punchy.

 

thanks, Mr. Magoo

 

Thanks Hutan, will have a think about Cochrane