New Video ME/CFS Scandal Explainer

[Adam pwme]

New Video: George Monbiot describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.

 

[Adam pwme]

The video is a timeline of key events used to illustrate the scandal from the Royal Free and reframing a recognised neurological illness to the withdrawal of harmful and ineffective treatments, includes clips of experts, MPs, patients & news items.

The video is broken down into 27 chapters. See image for list of chapters and how to navigate.

https://pbs.twimg.com/media/Gc59JLXXUAEG3u3?format=jpg&name=large

Timestamps in the description are best, followed by the chapter menu, the progress bar is a bit fiddly.

 

[Adam pwme]

CHAPTERS
0:00 Introduction
2:20 Royal Free Outbreak
2:42 WHO Classifies ME as Neurological
2:58 Mass Hysteria Hypothesis
3:18 Ramsay Definition of ME
4:08 Chronic Fatigue Syndrome
4:45 Wessely’s Psychological Approach
5:39 Oxford Diagnostic Criteria
6:35 Wessely Lobbies the DWP
7:05 Royal Colleges Report
7:53 NHS Clinic and GP Training Video
8:50 Sophia Mirza
9:50 NICE Guideline
10:33 PACE trial
12:16 SMC Harassment Campaign
14:37 Research and Treatment Delivery
15:31 IOM Report
16:25 PACE Long-Term Follow-Up
17:03 PACE Tribunal
18:19 Merryn Crofts
19:05 CDC Removes Treatments
19:22 Treatment Surveys
19:35 UK Parliament
20:39 PACE Reanalysis
21:59 Scottish Parliament
23:05 Tuller’s Open Letter
23:25 NICE Guideline Update
25:16 Conclusion

 

[Adam pwme]

This evidence-heavy video is aimed at journalists and people who may have some knowledge of #MECFS but want to learn more about the #GreatestMedicalScandal. I’ve put the transcript and references on medium.


https://tinyurl.com/MECFS-Scandal-Explainer

 

[Adam pwme]

Massive thanks to @JohnTheJack all his help, his input and proofreading

 

[josepdelafuente]

Amazing work! Thanks so much!

 

[Adam pwme]

Amazing work! Thanks so much!

thanks

 

[JohnTheJack]

New Video: George Monbiot describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.

I know how much work you've put into this, Adam, and how long you have been working on it. Thank you.

 

[EzzieD]

This is a truly excellent video, so comprehensive and well-researched. Thank you for all the hard work put into it.

 

[Fizzlou]

Thank you Adam. Brilliant.

 

[Adam pwme]

This is a truly excellent video, so comprehensive and well-researched. Thank you for all the hard work put into it.

Thanks EzzieD!

 

[Adam pwme]

Thank you Adam. Brilliant.

Thanks Fizzlou!

 

[Trish]

Really good. I can see it's taken a huge amount of work to put together key points in the history. You have managed to make it both succinct and comprehensive, and very clearly presented.

Thank you, @Adam pwme.

 

[Adam pwme]

Really good. I can see it's taken a huge amount of work to put together key points in the history. You have managed to make it both succinct and comprehensive, and very clearly presented.

Thank you, @Adam pwme.

Thanks Trish

 

[Binkie4]

Thank you Adam. Your selection of key dates and description of significant events together with visual emphasis has produced a clear and comprehensive picture of how ME has been treated over the last 50 years or so. A helpful addition to the documentation.

 

[Adam pwme]

Thank you Adam. Your selection of key dates and description of significant events together with visual emphasis has produced a clear and comprehensive picture of how ME has been treated over the last 50 years or so. A helpful addition to the documentation.

Thanks Binkie

 

[MrMagoo]

Brilliant, really punchy.

 

[Adam pwme]

Brilliant, really punchy.

thanks, Mr. Magoo

 

[Hutan]

That's a great video @Adam pwme, thank you for your hard work.

Maybe one on Cochrane's treatment of ME/CFS could be on your 'to do' list?

 

[Adam pwme]

That's a great video @Adam pwme, thank you for your hard work.

Maybe one on Cochrane's treatment of ME/CFS could be on your 'to do' list?

Thanks Hutan, will have a think about Cochrane