News from Aotearoa/New Zealand and the Pacific Islands

Yann04 · May 19, 2025 at 3:36 PM

Dolphin said: ↑

New research using anonymised government records in Stats NZ’s Integrated Data Infrastructure reveals what life is like for people with ME/CFS [in New Zealand].

https://www.odt.co.nz/the-star/study-provides-data-life-me

"study is now under peer review at BMC Public Health"
Click to expand...

In the past year, 18.8% had visited an emergency department, compared with 12.8% of the general population, and 32.8% had been dispensed 10 or more medications, compared with 14.2%.

The study also hinted at diagnostic inequity because Māori and Pasifika were under-represented.

"It is certainly not consistent with the general trends of benefit use in the population.

"So a low percent of Māori, low percent of Pasifika in this ME group on a benefit is very different to the distribution of ethnicity among that other benefit group.

"There is some evidence around access and equities of access to diagnosis."

Long-term data on employment, unemployment and benefit reliance showed how debilitating the condition was, he said.

Only 18.3% of people with ME/CFS were employed, compared with 83.8% of the general population.

Even when looking back one, two or five years, about half of those affected had earned no labour-market income in the preceding five years.
Click to expand...

Ravn · May 20, 2025 at 12:20 AM

Dolphin said: ↑

New research using anonymised government records in Stats NZ’s Integrated Data Infrastructure reveals what life is like for people with ME/CFS [in New Zealand].

https://www.odt.co.nz/the-star/study-provides-data-life-me

"study is now under peer review at BMC Public Health"
Click to expand...

Just guessing but could well be the study discussed in this video:

https://www.s4me.info/threads/nz-an...scholarships-starting-2023.33465/#post-566568

There’s some further discussion about the preliminary data presented in the video in that thread

rvallee · May 20, 2025 at 9:08 PM

Dolphin said: ↑

New research using anonymised government records in Stats NZ’s Integrated Data Infrastructure reveals what life is like for people with ME/CFS [in New Zealand].

https://www.odt.co.nz/the-star/study-provides-data-life-me

"study is now under peer review at BMC Public Health"
Click to expand...

"They are pretty hard for the government to turn a blind eye to."
Click to expand...

Oh, I bet they will. On the strong recommendation of their medical advisers. Because reasons. Penis envy, I think is how it went? Old piss in ancient bottles. Something like that anyway.

Ravn · May 23, 2025 at 8:34 AM

Quick heads up:

RNZ National 9.05am tomorrow (24May)

interview with author and pwME Susanna Clarke

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