A Sydney Morning Herald article discusses a recent Long Covid review paper by Hannah Davis , Eric Topol et al. Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al It has local commentary e.g.
https://twitter.com/user/status/1615193783595077634 I can't help to notice that every time Long Covid is mentioned by anyone in a position of authority in general practice, it always takes second fiddle to promoting general practice, demanding more money and generally being all about their work, never the patients. And of course they do nothing for the patients, it's always someone else's job, even though they know it's no one's responsibility so nothing ever happens. Longer consults aren't useful if there are no tests, tools or treatments. This is the difference between working hard and working smart, and I don't see any smart anywhere in sight. How exactly will LC be taken seriously when the people in charge of things either stay silent, only do virtue signaling or use it as an opportunity to promote their work? Who is going to do that? Of course total silence on any details, this is like a political platform boasting this and that without a plan, and keeping onto the vague aspirational campaign stuff during their actual official work.
Some posts have been moved to: Exercise & Sports Science Australia funds graded exercise study for Long COVID, 2023
Copied from the Long Covid in the media thread From Australia. Long COVID clinics and patients in limbo after federal funding expires, https://www.theage.com.au/national/...-federal-funding-expires-20230130-p5cgez.html
Moved post St Vincent’s has now found funding that will last until the end of March, but without funding certainty, it cannot employ any of the physiotherapists or psychologists the clinic needs. Needs?
Health Committee to hear from long COVID patients and hold roundtable with experts Issue date: Wednesday, 15 February 2023 https://www.aph.gov.au/About_Parlia...VID_patients_and_hold_roundtable_with_experts
Long Covid causing job losses and homelessness in Australia, inquiry hears https://www.theguardian.com/austral...s-and-homelessness-in-australia-inquiry-hears
I haven't tried to access this but thought someone should Ausdoc https://www.ausdoc.com.au/therapy-update/a-gp-guide-to-paediatric-me-cfs/
I don't want to join this doctors' site myself to read the article but I find it depressing that an article meant to inform doctors about paediatric ME/CFS has the above picture at the top of it.
Apologies if this has been highlighted before, but I just came across it. This has a few mentions of ME/CFS: National COVID-19 Health and Research Advisory Committee∗ Date of advice: 26 April 2022 Advice 29: Update on Long COVID https://www.nhmrc.gov.au/sites/default/files/2023-02/NCHRAC-Advice-29-Update-on-Long-COVID.pdf
this article title is in many Australian publications Brain similarities for long COVID, chronic fatigue really need to do something about this constant use of 'chronic fatigue'
ME Advocacy Network Australia have launched a campaign to get Australia's harmful ME/CFS clinical guidelines updated. There's a handy graphic to share and more information here: https://www.meana.me/news/newguidelines And there's a Facebook post here.
Griffith Uni have received a large private grant. Part of which will be used to trial LDN in ME/CFS and LC:
The Griffith team seem to be particularly good at getting research funding. I hope with that amount of money they run a really high quality double blind trial with useful outcome measures and for long enough duration. From what some people report with LDN they will probably need to try different dosage regines too.
The devil will be in the details. But on the face of it this looks quite promising. They seem to have understood this is not well understood yet, needs a multi-factor approach, with long-term commitment, the involvement of all relevant parties, and the relevance of ME to it all. Parliamentary Report on Long Covid establishing a better COVID and long COVID data collection system reviewing antiviral eligibility providing more support and education for GPs to treat long COVID developing evidence-based guidelines for diagnosis and treatment funding state health departments to set up long COVID clinics at public hospitals setting up an expert panel to advise on the impact of poor indoor air quality and ventilation on the economy funding more research into myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) a national summit into Australia's response to COVID, including long COVID _________________ This post has been copied and further posts about the report moved to this thread: Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023
