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News from Australia

Discussion in 'Regional news' started by Kalliope, Oct 14, 2020.

  1. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,520
    Location:
    Aotearoa New Zealand
    A Sydney Morning Herald article discusses a recent Long Covid review paper by Hannah Davis , Eric Topol et al.
    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    It has local commentary e.g.
     
    merylg, mango, Sean and 6 others like this.
  2. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,290
    Location:
    Canada
    https://twitter.com/user/status/1615193783595077634


    I can't help to notice that every time Long Covid is mentioned by anyone in a position of authority in general practice, it always takes second fiddle to promoting general practice, demanding more money and generally being all about their work, never the patients. And of course they do nothing for the patients, it's always someone else's job, even though they know it's no one's responsibility so nothing ever happens. Longer consults aren't useful if there are no tests, tools or treatments. This is the difference between working hard and working smart, and I don't see any smart anywhere in sight.

    How exactly will LC be taken seriously when the people in charge of things either stay silent, only do virtue signaling or use it as an opportunity to promote their work? Who is going to do that? Of course total silence on any details, this is like a political platform boasting this and that without a plan, and keeping onto the vague aspirational campaign stuff during their actual official work.
     
  3. Trish

    Trish Moderator Staff Member

    Messages:
    51,858
    Location:
    UK
  4. Andy

    Andy Committee Member

    Messages:
    21,809
    Location:
    Hampshire, UK
    Last edited by a moderator: Feb 6, 2023
    Hutan and Peter Trewhitt like this.
  5. Sean

    Sean Moderator Staff Member

    Messages:
    7,041
    Location:
    Australia
    Moved post

    St Vincent’s has now found funding that will last until the end of March, but without funding certainty, it cannot employ any of the physiotherapists or psychologists the clinic needs.


    Needs?
     
    Last edited by a moderator: Feb 6, 2023
    merylg, Hutan, oldtimer and 4 others like this.
  6. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,290
    Location:
    Canada
    Wants. Their wants >>>>>>>>>>>> our needs.
     
    merylg, Hutan, oldtimer and 2 others like this.
  7. Solstice

    Solstice Senior Member (Voting Rights)

    Messages:
    1,154
    Oh noes.
     
    Sean likes this.
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    Health Committee to hear from long COVID patients and hold roundtable with experts
    Issue date: Wednesday, 15 February 2023

    https://www.aph.gov.au/About_Parlia...VID_patients_and_hold_roundtable_with_experts
     
    Hutan, RedFox, oldtimer and 1 other person like this.
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    Long Covid causing job losses and homelessness in Australia, inquiry hears
    https://www.theguardian.com/austral...s-and-homelessness-in-australia-inquiry-hears
     
    ahimsa, Hutan, oldtimer and 6 others like this.
  10. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    584
    Location:
    Adelaide, Australia
     
    mango, bobbler, NelliePledge and 7 others like this.
  11. Solstice

    Solstice Senior Member (Voting Rights)

    Messages:
    1,154
    Fuck, nightmarish.
     
    rvallee, mango, bobbler and 4 others like this.
  12. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    I haven't tried to access this but thought someone should
    Ausdoc
    https://www.ausdoc.com.au/therapy-update/a-gp-guide-to-paediatric-me-cfs/
     
    oldtimer, RedFox, Hutan and 2 others like this.
  13. oldtimer

    oldtimer Senior Member (Voting Rights)

    Messages:
    636
    Location:
    Melbourne Australia
    Last edited: Feb 26, 2023
  14. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    4,980
  15. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    this article title is in many Australian publications

    Brain similarities for long COVID, chronic fatigue

    really need to do something about this constant use of 'chronic fatigue'
     
  16. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    584
    Location:
    Adelaide, Australia
    ME Advocacy Network Australia have launched a campaign to get Australia's harmful ME/CFS clinical guidelines updated.

    There's a handy graphic to share and more information here:

    https://www.meana.me/news/newguidelines

    334976484_122287617341508_2563327560464888070_n.jpg

    And there's a Facebook post here.
     
    Last edited: Mar 26, 2023
  17. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

    Messages:
    584
    Location:
    Adelaide, Australia
    Griffith Uni have received a large private grant. Part of which will be used to trial LDN in ME/CFS and LC:

     
  18. Sean

    Sean Moderator Staff Member

    Messages:
    7,041
    Location:
    Australia
    I would like it if they used at least some of that money to increase their sample sizes.
     
  19. Trish

    Trish Moderator Staff Member

    Messages:
    51,858
    Location:
    UK
    The Griffith team seem to be particularly good at getting research funding. I hope with that amount of money they run a really high quality double blind trial with useful outcome measures and for long enough duration. From what some people report with LDN they will probably need to try different dosage regines too.
     
    NelliePledge, RedFox, Dolphin and 5 others like this.
  20. Sean

    Sean Moderator Staff Member

    Messages:
    7,041
    Location:
    Australia
    The devil will be in the details. But on the face of it this looks quite promising. They seem to have understood this is not well understood yet, needs a multi-factor approach, with long-term commitment, the involvement of all relevant parties, and the relevance of ME to it all.

    Parliamentary Report on Long Covid
    • establishing a better COVID and long COVID data collection system
    • reviewing antiviral eligibility
    • providing more support and education for GPs to treat long COVID
    • developing evidence-based guidelines for diagnosis and treatment
    • funding state health departments to set up long COVID clinics at public hospitals
    • setting up an expert panel to advise on the impact of poor indoor air quality and ventilation on the economy
    • funding more research into myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
    • a national summit into Australia's response to COVID, including long COVID
    _________________

    This post has been copied and further posts about the report moved to this thread:
    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023
     
    Last edited by a moderator: Apr 25, 2023

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