‘Hard to accept’: Tiff Hall reveals health battle https://www.news.com.au/lifestyle/h...e/news-story/ce36187f04c824916f0a437294d78c90
Interesting - she's a fitness coach and seems to be totally confident she is going to recover. I wish her well.
A paper from a team with links to Austin Health in Melbourne which mentions a new clinic for functional neurological disorders. The thread mentions some people in Australia of interest to ME/CFS advocates. The relationship between psychosocial trauma type and conversion (functional neurological) disorder symptoms: a cross-sectional study, 2021, Morsy
On a related note, I recall that the 'Fatigue Clinic' at the Austin has (or will soon) close since they can't find someone to take it over after the last head retired. That clinic had a reputation for being particularly barbaric.
There was a short story on Tiffiny Hall on A Current Affair tonight (a tabloid current events program). Video: https://9now.nine.com.au/a-current-...out-shock-diagnosis/ckobaqbiw00050io6yuispe5s Text summary: https://9now.nine.com.au/a-current-...n-battle/97565f3e-54d9-45bf-af0b-c2ee15155ee7 It is encouraging that someone of her stature has come forward about having the illness. While the story wasn't too terrible, her social media posts hint that she might end up promoting woo-woo treatments like mindfulness. I hope that proves to be incorrect.
For A Sultana Adultery, that was quite good. They did present it as basically a women's disease, and there was no mention of LC, and it was pretty obviously a PR job as she was a Nine personality, but she was pretty forthright and they had Dr Heidi Nicholl in there and a little ad for Emerge Australia and I imagine that they'd be pretty happy with that.
Ask an Exercise Physiologist: Hacks for burnout and struggling with fatigue The question: I suffer from Chronic Fatigue Syndrome (coming up to 12 years). I was wondering if there are any hacks for preventing burn-out and CFS? Whenever I’m overwhelmed and stressed, my exercise routine is the first thing to go. Hard to push through a weights program when I’m depleted. I’m at the gym 4-6 days a week—it’s all-or-nothing for me. – Sammy, 28 The answer from the physiotherapist who says she has chronic fatigue includes: GET, CBT, pacing, communication, nutrition, sleep hygiene. https://hercanberra.com.au/active/w...acks-for-burnout-and-struggling-with-fatigue/
I read this appalling hercanberra trash a little while ago and now the web page is not available. I hope it stays that way.
job ad Exercise Physiologist Institution Info University of New South Wales High St Kensington, Australia https://uniroles.com.au/display-job/21582/Exercise-Physiologist.html
Ugh. I think it's worth writing to the University. It might be a good opportunity to draw attention to the quality of the research going on associated with that clinic. There was that amazing episode of the recruitment strategy for a CFS trial that involved posters asking 'Are women with CFS ovary-reacting' - discussed here. And then there was that very shoddy piece of work re-analysing the Dubbo study results and completely mis-representing the findings - discussed here.
Rules not enforced are just empty words and a profession can only claim to be based on science if it actually follows through and accepts reality, exemptions like this are exactly why they are not acceptable. A neurological disease, categorized as such, with an immune origin/trigger is neither neurological nor immunological. Evidence is irrelevant in medicine, what matters is what evidence is accepted. They usually align, but when they don't the outcome is disastrous. This is not science and it's immoral. https://twitter.com/user/status/1399220714545115138
An Australian ME patient has written a very good article on lockdowns and how people with chronic illness are ignored in more ways than one: https://www.mamamia.com.au/chronic-illness/
Has anyone taken a look at this beta app from a team in Australia? https://apollojourneys.com/ It is still in development. ---------------------------- Discussed on this thread: Apollo Journeys ME/CFS App
Not seen it, but it sounds like what in computer science is called a hill climbing algorithm. I was using that in 1993 to treat my ME, but was aware of a glaring pitfall of this algorithm - local minima and maxima cause it to deliver sub optimal outcomes.
Notice of recruitment of people with ME/CFS and healthy controls for a study in Victoria: Recruiting: La Trobe University mitochondrial research.
Active Physiotherapy How is ME/CFS treated, and will it get better? https://activephysiowagga.com.au/bl...ephalomyelitis-chronic-fatigue-syndrome-mecfs
I just heard this woman speak on New Zealand radio about the Australian response to Covid-19: WHO advisor and Professor of Epidemiology at the University of New South Wales, Mary-Louise McLaws. She mentioned the risk of Long Covid, specifically talking about how the risks to young adults, those aged less than 39, have not been given the weight that they should have had. She said that it is these people who will raise the children and keep the economy going, and great care must be taken not to handicap them with Long Covid. She mentioned at one point 'ever-lasting symptoms'. I think it's the first time I've seen someone in her sort of position being so explicit about the risk of Long Covid. I think she could be a good person for Australian advocates to be in touch with. @Simone
