https://www.navneuro.com/154/ November 1, 2024 Post navigation This episode is a conversation with Dr. Lucette Cysique about long COVID. We discuss terminology, symptom profiles, epidemiology, biological mechanisms, psychological and sociocultural factors, overlap with chronic fatigue syndrome, overlap with functional neurological disorder, neuropsychological evaluations, and treatment recommendations. If you’d like to receive APA-approved CE credit for listening to this episode, click here. About Lucette Dr. Lucette Cysique is an Associate Professor and Neuropsychologist at the University of New South Wales in Sydney, Australia. She is a cross-disciplinary neuropsychologist with extensive neuroimaging training and long-term experience with neuro-viral and immune biomarkers. She leads a research program into the neurocognitive complications in major infectious diseases (COVID-19, HIV) and their main comorbidities: brain pathological ageing, cardiovascular diseases, and depressive disorders. Her appointment in the Viral Immunology Systems Program at the Kirby Institute involves the overseeing the Australian Partnership for Preparedness Research on Infectious Disease Emergencies (APPRISE) Long COVID Initiative. Working in global epidemies, Dr. Cysique has extensive experience in cross-cultural neuropsychology. Dr. Cysique has held major international and national research responsibilities, with associated funding. She has led the research on more than 40 national and international cohort studies/trials as a neuropsychology or neuroimaging leader. She served as Chair of the NeuroCOVID International Neuropsychological Society (INS) Special Interest Group (SIG). Resources COFFII (Collaborative On Fatigue and Related Symptoms Following Infection) She has received a Mason Foundation grant.
I think they'd all be happy to actually know better. What they don't want is the in-between: doing the work to get there. They'd be happy being handed the full solution. That's what happened with peptic ulcers. The entire scam industry around psychological treatment died out completely as a result of it. Not overnight but in all the years of following all psychosomatic research, how many times have we seen peptic ulcers mentioned in it during that time? Exactly zero. It used to be the defining psychosomatic disorder. They want the result of the work without doing the work. But even worse, they don't think there's any work to be done. Not that kind of work anyway. But they'd all love being handed the result of the work. They're just never going to put any effort into it if it involves anything more than just following a script.
$28 million for research into Post-Acute Sequelae of COVID-19 Applications are open for the 2024 Post-Acute Sequelae of COVID-19 grant opportunity. Funding is from the Medical Research Future Fund (MRFF). Date published: 13 November 2024 Audience: General public https://www.health.gov.au/mrff-28-million-for-research-into-post-acute-sequelae-of-covid-19
A Parliamentary Friends of ME/CFS meeting was held in Canberra yesterday. The Federal Minister for Health and Aged Care, Mark Butler, spoke, along with Senator Jordon Steele-John and MP Dr Mike Freelander, as well as patient advocates Penelope McMillan and Carla T, plus Alan Singh (NHMRC) who gave an update on clinical guidelines, Dr Richard Schloeffel and Professor Paul Fisher. There is a short thread on Twitter and Bluesky as well (identical thread across both platforms). The Twitter thread is on Emerge’s website, and the Bluesky thread is here: https://bsky.app/profile/phoenixme.bsky.social/post/3lb6o4qnjhi2r An audio recording should be available in a couple of days. https://www.emerge.org.au/parliamentary-friends-for-me-cfs/
Andrew Lloyd's post-covid study is currently recruiting. I believe it was funded by the Medical Research Future Fund (MRFF). I got a recruitment text via my GP clinic. I note that the criteria say: "We will exclude anyone with past or current prolonged post-viral symptoms."
A real shame that nobody predicted this would happen and tried to warn the rest of society about what was coming... Oh, wait. We did.
This has all been a thoroughly bizarre and demoralizing demonstration that being right is entirely irrelevant, and neither do facts or reality. You can literally predict the future accurately and even when some people can't keep denying that it's happening, it doesn't even matter one bit. They just shrug. The same people who could get irrationally angry about arbitrary nonsense that would never affect their lives. Humans are far more irrational and bizarrely self-destructive than was believed. And we were already known to be highly irrational and bizarre.
Seeking a member to join the NHMRC Guideline Development Group for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.racp.edu.au/expressions...alomyelitis-chronic-fatigue-syndrome-(me-cfs)
There is a very limited pool of people in Australia who could tick those boxes. Almost all will be members of the psycho-behavioural school. The criteria have clearly been constructed to select one of those people.
Here's the thread for the guideline process: Australia: National Health and Medical Research Council (NHMRC): Development of ME/CFS guidelines
