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News from Doctors with ME

Discussion in 'News from organisations' started by Wyva, Jun 29, 2021.

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Page 2 of 16
  1. chrisb

    chrisb Senior Member (Voting Rights)

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    I wonder whether the founders of DwME ever read of the Trojan Horse.
     
    chrisb, Nov 2, 2021
    #21
    alktipping, Sean, Louie41 and 1 other person like this.
  2. Trish

    Trish Moderator Staff Member

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    I think the statement is generally good, but will likely lead to confusion with this bit which is given a prominent position as one of three quotes before the statement:

    “The commercial opportunities and implications are also notable, not least for the pharmaceutical and financial services industries.”

    If you read through the comments after the statement, they are all fine and welcome comments relevant to the guideline.

    The last one, from Richard Ramyar, who is and economist not a clinician, includes the above quote and explains it further. I guess in that context it makes some sense, but to me it shouldn't be highlighted as one of 3 key points directly related to the guideline and its implementation. Doctors with ME have enough on their plates focusing on medical education and implementation. I don't think they have the resources or expertise to make sweeping statements about medico legal, insurance, commercial and industrial developments. With the possible exception of doing something about people like Sharpe and White in their role as advisors to health insurance companies.

    I think it's a mistake for Doctors with ME to give a platform to an economist with a different agenda. There may be a place for a different organisation to be set up to investigate and advise on medico-legal, insurance, commercial, etc. aspects of ME. I'd rather DwME stuck to their area of expertise.

    But I'm not a member or registered supporter of DwME. I recognise their right to run their organisation as they see fit, and wish them well.


     
    Trish, Nov 2, 2021
    #22
    hibiscuswahine, MEMarge, Tia and 19 others like this.
  3. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Have they forgotten that in August they had claimed:

    "...This was after the final embargoed copy of the guideline already contained last-minute amendments that undermined the entire practical basis of a science-led document."
     
    Dx Revision Watch, Nov 2, 2021
    #23
    alktipping, CRG, Peter Trewhitt and 5 others like this.
  4. obeat

    obeat Senior Member (Voting Rights)

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    obeat, Nov 4, 2021
    #24
    MEMarge, alktipping, Barry and 2 others like this.
  5. Barry

    Barry Senior Member (Voting Rights)

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    Maybe in terms of funding clinical trials?
     
    Barry, Nov 4, 2021
    #25
    alktipping and Ariel like this.
  6. Barry

    Barry Senior Member (Voting Rights)

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    8,421
     
    Barry, Nov 4, 2021
    #26
    Sean, alktipping, SNT Gatchaman and 1 other person like this.
  7. Wonko

    Wonko Senior Member (Voting Rights)

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    It can, and will be, determinedly underestimated, with extreme prejudice to those who say otherwise.

    Have they not met people before?

    Have they not been paying attention?
     
    Wonko, Nov 4, 2021
    #27
    alktipping, shak8 and NelliePledge like this.
  8. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

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    Aotearoa New Zealand
    Dr. Ramyar's statement extract as referenced by Barry above is very true, but I absolutely agree with @Trish. Yes, medicine operates within a society that has established financial constructs, but this isn't "DoctorsAndEconomistsWithME". Personally, I would have preferred the "commercial opportunities" line perhaps be issued as a part of a separate follow-on piece, commenting on the macroeconomic implications. Very many good quotes overall though.
     
    SNT Gatchaman, Nov 4, 2021
    #28
    Louie41, MEMarge, Sly Saint and 8 others like this.
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Nov 6, 2021
    #29
    Peter Trewhitt, Ash, Barry and 1 other person like this.
  10. Ash

    Ash Senior Member (Voting Rights)

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    Ash, Nov 6, 2021
    #30
    Peter Trewhitt likes this.
  11. Wonko

    Wonko Senior Member (Voting Rights)

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    All I saw was a small picture of someone I do not recognise.

    No words, at all, to explain why the picture was there.

    So I assumed it was art, considered wondering why art was there, and decided against it, as not being any of my business.

    ETA - yep, still no words.
     
    Wonko, Nov 6, 2021
    #31
    Louie41, MEMarge, Hutan and 3 others like this.
  12. Trish

    Trish Moderator Staff Member

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    Looks like a mistake to me.
     
    Trish, Nov 6, 2021
    #32
    Louie41, Peter Trewhitt, SNT Gatchaman and 1 other person like this.
  13. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Last edited: Nov 6, 2021
    Dx Revision Watch, Nov 6, 2021
    #33
    Louie41, Barry, Ash and 3 others like this.
  14. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Dx Revision Watch, Nov 6, 2021
    #34
    Barry, Arvo, Ash and 1 other person like this.
  15. Arvo

    Arvo Senior Member (Voting Rights)

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    I think I know him from Twitter.

    Although that one could be one of the other 3....;)
     
    Arvo, Nov 6, 2021
    #35
    Peter Trewhitt likes this.
  16. JemPD

    JemPD Senior Member (Voting Rights)

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    Quick google reveals someone by that name left a psotitve review on Nina Muirhead's CPD module, so possibly a new meber of DwME?
     
    JemPD, Nov 6, 2021
    #36
    MEMarge, Barry and Peter Trewhitt like this.
  17. Andy

    Andy Committee Member

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    Hampshire, UK
    Andy, Nov 6, 2021
    #37
    Barry and Peter Trewhitt like this.
  18. Barry

    Barry Senior Member (Voting Rights)

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    Barry, Nov 6, 2021
    #38
    EzzieD, Sean, Peter Trewhitt and 1 other person like this.
  19. Barry

    Barry Senior Member (Voting Rights)

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    Yes, see above.
     
    Barry, Nov 6, 2021
    #39
    Peter Trewhitt likes this.
  20. Barry

    Barry Senior Member (Voting Rights)

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    Probably not linked to from anywhere on the web site, just an 'orphaned' page maybe.
     
    Barry, Nov 6, 2021
    #40
    Peter Trewhitt and Starlight like this.
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