Early-onset hereditary isolated non-neurogenic orthostatic hypotension in a Swedish family, 2023, Jan Fagius et al Swedish researchers looking in detail at a family with orthostatic intolerance
Another opinion piece on ME by Swedish BPS/"cultural illness" proponent Hanne Kjöller She has been talking to Landmark and Vogt, apparently. Vad ska läkaren göra om valet står mellan att kränka eller skada patienten? https://www.dn.se/ledare/hanne-kjol...star-mellan-att-kranka-eller-skada-patienten/
What should the doctor do if the choice is between offending or harming the patient? Starts with a false choice, and just degenerates from there.
Being reminded of when I talked to a doctor in training and we came onto the topic of Lightning Process/Recovery Norway, and he said no doctors would believe such gibberish.
That's very much the same as trying to be racist without being offensive. You can't, because you're wrong. And yeah, all they achieve is doing both in the end. Genius level stuff. And wow is there a lot of debunked nonsense in there, especially the thing about attitude influencing outcomes. It's truly amazing how they talk about beliefs as if we have them, when they clearly are the deluded ones. So many beliefs about illness, so very little reasoning or evidence. It's truly absurd how they talk about listening to the patients. It truly is amazing what people can believe about themselves. They insult us non-stop and talk about not offending. The delusion is staggering.
A book review by Swedish BPS proponent David Gyll in the journal of the Swedish Medical Association. The book being reviewed is "Komplexa syndrom. Om vanliga kontroversiella och svårbegripliga sjukdomstillstånd" by Peter Währborg. Svårvärderad bok om svåra tillstånd https://lakartidningen.se/aktuellt/recensioner/2023/07/svarvarderad-bok-om-svara-tillstand/
A rather precise summary of the BPS model in the review: The relationship between the role of biological, psychological and social factors in people's well-being is a recurring theme. But questions about how these are related and their respective meaning are often left hanging in the air, and the author's stance is inconsistent.
More from Kjöller This time she's celebrating Fink and the Danish BDS model. Paywalled. Hanne Kjöller: Ett kunskapscentrum för postcovid kommer inte göra patienterna friskare https://www.dn.se/ledare/hanne-kjol...tcovid-kommer-inte-gora-patienterna-friskare/
@MittEremltage comments on this on her blog. Do click through, the whole post is worth a read (like all MittEremltage's posts). Ideologi, inte okunskap https://mitteremitage.wordpress.com/2023/08/03/ideologi-inte-okunskap/ Google Translate, English ("Ideology, Not Ignorance")
"@StenHelmfrid Per Fink is promoted by journalist @hanne_kjoller in Swedish daily DN. The Danish parliament decided that the classification of #MECFS should follow the international version of ICD. Fink dismisses the decision and implies that the ICD committee are comparable to flat earthers. "
It is horrendous that one man can wield such dangerous power over very sick people and force them into treatment that makes them even sicker. I am so sad to read this is still happening in Denmark.
He only deserves part of the blame. We know very well how harshly healthcare systems can stamp down any practices they disapprove. They fully approve of this, it can't be otherwise. This is how they get away with such BS, and get platforms to spew lies like this. They don't even bother adhering to basic facts, have no issues lying their ass off, and this also cannot happen without approval from the system. This is not the work of one person, or even a small group. It takes an entire bureaucracy to align with those goals and, especially, to enforce them. Enforcement is everything. Even so-called "human rights" are just promises. It's maddening seeing how this exactly reflects politics. These people apply a playbook that is very successful. A method of discourse that accuses others exactly of what they are doing, that systematically misrepresents all their critics as insane, then uses the power of the state to "prove" it. It's a tyrannical model that heavily relies on a total approach to control and information domination. I believe that these people think they are right, intellectually, but they cannot possibly not know that how they are doing it is coercive, manipulative and unethical. They just seem to think that it's how to "deal" with us. This is a political perspective, it's been a very successful one through history. Which is of course exactly why there are supposed to be safeguards, but a system will not protect from itself when it's the source of the harm.
A physician on X/Twitter fact-checked some of Kjöller's statements: For those of you who missed it earlier, here's a reply written by the Swedish Covid Association to one of Kjöller's earlier editorials, published in DN in February 2021. They fact-checked her piece and found that the studies she cited didn't support her claims. Replik: Hanne Kjöllers berättelse om långtidscovid går inte ihop https://www.dn.se/ledare/replik-hanne-kjollers-berattelse-om-langtidscovid-gar-inte-ihop/
Not sure how much it is covered by the news other places, but the storm Hans is really creating havoc in Norway. There are lots of damage done, and multiple people/places have been evacuated. Such a situation is terrible enough for a healthy person, but being ill on top of that
We have been in and out of the yellow zone, but been spared from more or less all of it. Only some short bursts of real heavy downpour, and the national alarm system errors that have made phones ring extremely hard warning about catastrophes. That alarm is, to say the least, not for people with sound sensitivities and some have gotten it 18 times in a single day due to the error (ours only twice at most). Before this system was rolled out there were several disability advocates, including carers of severe pwME, that tried to explain that not everyone will be able to tolerate the sound. Hope they are ok. Some of the municipalities that have been hit hardest are, if my memory serves correctly, among those with the highest percentage of disabled inhabitants.
medagboken on Instagram writes about Wikström & Malmquists NFT business today: ETA: Some more info on BloggBevakning's blog here.
