SBU (the Swedish Agency for Health Technology Assessment and Assessment of Social Services) comments on an evidence review of psychodynamic therapy for functional somatic disorders. Psykodynamisk terapi vid depression, ångest, funktionella somatiska tillstånd och personlighetssyndrom https://www.sbu.se/2024_03
A great article in forskning.no about living with ME today! No psychologisation and mentioning the lack of knowledge about PEM in healthcare. - I lie straight down with a fever and body aches Physical and social activity is healthy for everyone. What's life like when you can't stand it? I wish it hadn't been said that the worst case scenario is PEM "lasting weeks", but other than that I am very happy with this.
Yet another great article from the same journalist, this time including information on two-day CPETs and how deconditioning does not explain the findings. Why do many people with ME and chronic covid get sick from activity?
And there was an article from the public broadcaster NRK yesterday about a young man bed bound with with ME and EDS who didn't get the help he needs, and a very moving reportage on the evening news about severely ill Emilie who has been bed bound in darkness for years and on the very fragile situation she and her family is in. Some very informative media coverage about ME these days in Norway! Are we finally moving forward from the "ME-debate"?
New blog post by @MittEremltage, highlighting some of the harmful consequences that are affecting pwME due to the political decisions of Region Stockholm. Really well-written and important, as always. Great work, thank you so much MittEremltage! It's a horrible situation, and I really feel for those who are affected Har primärvården i region Stockholm växlat upp? https://mitteremitage.wordpress.com/2024/06/18/har-primarvarden-i-region-stockholm-vaxlat-upp/
(Not ME.) POTS is mentioned in an article in one of Swedens two largest evening newspapers today. Christina Applegates nya sorg: Dottern sjuk https://www.expressen.se/noje/christina-applegates-nya-sorg-dottern-sjuk/
I'm not familiar enough with the terminology in English for politics to know what it would be called, but a representative from a political party has asked the current minister of work in Norway about the situation for pwME and how nothing really has changed the last few years despite clear instructions that things needed to improve. The question and answer can be read here (In Norwegian) A patient advocate noted how the answer was a non-answer: The minister of work replies with something along the lines of "we have instructed the services to improve" but is ignoring that the patients are reporting that several years after this instruction there has been no improvements. What frustrates me most is that a long covid advocate, who has been clear LC is not ME, have commented that it's a good answer, and thus also ignoring that the answer is full of things that should be but is not the reality.
"Can healthcare cure our new widespread disease - post-covid?", a video (54 minutes) by Pandemifonden, recorded today at Almedalsveckan (a Swedish yearly political "festival"). Panelists: • Lisa Noren, MD, Swedish Covid Association • Marie Morell, Regional council member, Östergötland • Marcus Ståhlberg, Cardiologist, Karolinska • Niklas Arnberg, Virologist, Pandemifonden Kan sjukvården bota vår nya folksjukdom - postcovid? https://www.youtube.com/live/5691zdydRMs
